lolsob

(Accurate, too)

We live in a dystopian reality where federal testing has to happen to trace outbreaks to certain states. Unreal.

What’s so surprising about the “hur hur it’s just a cold” people is that there’s so much data to the contrary, but even if it wasn’t as convincing, you’d think MAYBE they wouldn’t want to risk the outcomes? It’s so short sighted to continuously roll the dice on your brain.

If you've been hanging out in the #CSFleak community, you probably noticed this lovely human, her videos, advocacy & hard journey.
She stood out for me with her authenticity & honesty in describing an extreme condition, while still giving hope to others. RIP, I salute you 🕊

Heartbroken to hear of Connie’s death. For the last many years she was a friend to me, and many others—in addition to her important advocacy in sharing the realities of living with a complex spinal CSF leak. She was truly a wonderful human being. 💔

Awesome to see Syrinx’s paper on the big screen at #SOAPAM2024 ! 👀 And so glad to see more discussion about post puncture chronic spinal CSF leak and outcomes.