EDS UK statement re frankly criminal lack of CCI care in the UK… Thankyou for acknowledging it 💙 No one else does.

Huge thanks to the redoubtable Jamie Ducharme for this excellent piece in TIME on Pacing for #MECFS and #LongCOVID. "For years, clinicians tried to treat ME/CFS patients by gradually increasing their physical activity levels... (1/2) time.com/6215346/covid-…

Dear #NEISvoid, there are a couple of (male) clinicians in this thread who truly believe that #FND is a strong, useful, positive diagnosis based on specific signs. My own experience has been dismissed as 'anecdote'. The plural of anecdote is anecdata. Would anyone like to share?

The stains on the seat tell a whole different story tho…😂😂😂

So a man can beat a woman, rape a woman, kill a woman then claim he is a woman and get put in a woman prison but if you're a woman and call this person a man you could end up in prison with them. And it's all because of gender ideology.

I have been given a date for a NHS 🔥Pain Clinic🔥 appt!! 🚨 Tips or pitfalls to avoid? 🙏 I have severe chronic pain, could prob write a book, a course myself on how to manage. I’m medically neglected like so many, I’m my own doc. Will it be CBT with a side of gaslighting??

When I see this fake Prof speaking re ‘patient engagement’…when she literally won’t engage with EDS patients, won’t advocate for them, lies about them, misrepresents them, blocks them…it just blows my damn mind. Clickbait marketing using sick Px stories is NOT engagement. 🤮

Many people with #LongCovid had/have very mild initial cases, but are suffering greatly & need to be taken seriously. What's the point of this thread? Not for pity, vaccine debates, or treatment suggestions. It's to convince YOU, dear colleagues, that #LongCovid is real. /end

Going to NHS pain management clinic today. Expecting little, but got to try and relieve the endless agony.

I’m so proud of breaking the abuse cycle in my birth family. I healed, learnt to be me, then learnt trust, boundries, conflict res. etc. No contact was vital. I worked on my EQ…hubs learnt with me…and is now using these skills building honesty, trust & love with *his* fam 😍

Wow. This Singapore doctor has seen a 30 to 50 percent increase in Slipping Rib syndrome since 2020. Doctor attributes it to deconditioning, but more likely Covid is depleting connective tissue.

There’s a boom right now in doctors and doctor journalists joining and promoting orgs that cut expensive biophysical research, treatments and cures to instead focus on diet, sleep, exercise, mental health to treat Covid, Long Covid, cancer etc I hope this gets investigated 🧵

Growing up with Emotionally Immature Parents (EIP) can create a situation where we don't feel safe in adult relationships. Or we experience what's labeled as social anxiety. HERE'S WHY (🧵):