CureME - UK ME/CFS Biobank (@mecfsbiobank) 's Twitter Profile
CureME - UK ME/CFS Biobank

@mecfsbiobank

Driving clinical and biomedical research for recognition, diagnosis and treatment of ME/CFS at @LSHTM. Home of the UK ME/CFS Biobank. Advocating for #pwME.

ID: 706858244568977408

linkhttp://cureme.lshtm.ac.uk/ calendar_today07-03-2016 15:05:13

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4,4K Followers

213 Following

CureME - UK ME/CFS Biobank (@mecfsbiobank) 's Twitter Profile Photo

🧬 Join our HHV-6 Study as a healthy control participant! πŸ§ͺ Support #pwME by collecting saliva samples and completing weekly questionnaires from home. 🀝 Get involved: bit.ly/49n0Xtr #MyalgicEncephalomyelitis #MECFS

🧬 Join our HHV-6 Study as a healthy control participant! 

πŸ§ͺ Support #pwME by collecting saliva samples and completing weekly questionnaires from home.

🀝 Get involved: bit.ly/49n0Xtr

#MyalgicEncephalomyelitis #MECFS
CureME - UK ME/CFS Biobank (@mecfsbiobank) 's Twitter Profile Photo

πŸ™Œ Thank you for the extraordinary response to our #HHV6 study! You're making real change for #pwME. πŸ‘©β€πŸ”¬ We are pausing recruitment to evaluate how many potential participants meet study criteria. πŸ“’ Stay in the loop about future recruitment: eepurl.com/huUOiL

πŸ™Œ Thank you for the extraordinary response to our #HHV6 study! You're making real change for #pwME.

πŸ‘©β€πŸ”¬ We are pausing recruitment to evaluate how many potential participants meet study criteria.

πŸ“’ Stay in the loop about future recruitment: eepurl.com/huUOiL
CureME - UK ME/CFS Biobank (@mecfsbiobank) 's Twitter Profile Photo

🀝 Our team has been working collaboratively with NMCB | Nederlandse ME/CVS Cohort en Biobank to establish a new #MECFS biobank in the Netherlands. πŸ“… This January we joined the team, led by Prof. Jos Bosch, to mark the launch of the biobank. πŸ’™ Find out more about NMCB: nmcb.eu

🀝 Our team has been working collaboratively with <a href="/NMCB_studie/">NMCB | Nederlandse ME/CVS Cohort en Biobank</a> to establish a new #MECFS biobank in the Netherlands.

πŸ“… This January we joined the team, led by Prof. Jos Bosch, to mark the launch of the biobank.

πŸ’™ Find out more about NMCB: nmcb.eu
CureME - UK ME/CFS Biobank (@mecfsbiobank) 's Twitter Profile Photo

πŸ”¬ Dr Eliana Lacerda and Caroline Kingdon will join experts from University of Surrey on a 12-month study funded by ME Research UK and ME Association. πŸš€ The diverse team aims to develop a reliable and repeatable diagnostic tool for #MECFS. πŸ’‘ Learn more: bit.ly/48w5U26

πŸ”¬ Dr Eliana Lacerda and Caroline Kingdon will join experts from <a href="/UniOfSurrey/">University of Surrey</a> on a 12-month study funded by <a href="/MEResearchUK/">ME Research UK</a> and <a href="/MEAssociation/">ME Association</a>.

πŸš€ The diverse team aims to develop a reliable and repeatable diagnostic tool for #MECFS.

πŸ’‘ Learn more: bit.ly/48w5U26
CureME - UK ME/CFS Biobank (@mecfsbiobank) 's Twitter Profile Photo

πŸ’™ Are you, or is someone you know, living with #SevereME? 🧬 We need #pwME to participate in our HHV-6 study to help further our understanding of the condition. 🀝 Get involved: bit.ly/48u1bhn #MECFS #MyalgicEncephalomyelitis

πŸ’™ Are you, or is someone you know, living with #SevereME?

🧬 We need #pwME to participate in our HHV-6 study to help further our understanding of the condition.

🀝 Get involved: bit.ly/48u1bhn

#MECFS #MyalgicEncephalomyelitis
CureME - UK ME/CFS Biobank (@mecfsbiobank) 's Twitter Profile Photo

πŸ‘ Another recruitment success for our HHV-6 study! Massive thank you to all those who got in touch. Your participation is key to making a meaningful difference for all #pwME. We're pausing briefly to assess potential participants. πŸ“’ Keep updated: eepurl.com/huUOiL

πŸ‘ Another recruitment success for our HHV-6 study! 

Massive thank you to all those who got in touch. Your participation is key to making a meaningful difference for all #pwME.

We're pausing briefly to assess potential participants. 

πŸ“’ Keep updated: eepurl.com/huUOiL
CureME - UK ME/CFS Biobank (@mecfsbiobank) 's Twitter Profile Photo

πŸ€” Another thoughtful article from George Monbiot which doesn’t shrink from the politicising of this life-changing disease, where #pwME remain so stigmatised. πŸ’ͺ Thank you to all the researchers seeking answers and to those who fund them. theguardian.com/commentisfree/…

CureME - UK ME/CFS Biobank (@mecfsbiobank) 's Twitter Profile Photo

πŸ“’ Have you donated a sample to the UK ME/CFS Biobank or participated in a CureME study? πŸ’¬ Share your experience with us! πŸ™Œ Your story could help shape the future of #MECFS research. Get in touch ➑️ forms.gle/YCYeGabzcqFiQL… #pwME #MyalgicEncephalomyelitis #UKMEB

πŸ“’ Have you donated a sample to the UK ME/CFS Biobank or participated in a CureME study? 

πŸ’¬ Share your experience with us! 

πŸ™Œ Your story could help shape the future of #MECFS research. 

Get in touch ➑️ forms.gle/YCYeGabzcqFiQL… 

#pwME #MyalgicEncephalomyelitis #UKMEB
CureME - UK ME/CFS Biobank (@mecfsbiobank) 's Twitter Profile Photo

πŸŽ‰ The first round of participants in our HHV-6 study have completed their 6 months of sample collection! πŸ‘ Huge thanks to our amazing community of #pwME and healthy controls for helping us advance #MECFS research. πŸ“’ Stay connected for more insights: eepurl.com/huUOiL

πŸŽ‰ The first round of participants in our HHV-6 study have completed their 6 months of sample collection!

πŸ‘ Huge thanks to our amazing community of #pwME and healthy controls for helping us advance #MECFS research.

πŸ“’ Stay connected for more insights: eepurl.com/huUOiL
CureME - UK ME/CFS Biobank (@mecfsbiobank) 's Twitter Profile Photo

πŸ‘ Huge congratulations to Krista Clarke, one of our early career collaborators at University of Surrey, on successfully defending her PhD! 🩸 Using samples from the UK ME/CFS Biobank, Krista examined the differences in the electrical properties of white blood cells in #pwME.

πŸ‘ Huge congratulations to Krista Clarke, one of our early career collaborators at <a href="/UniOfSurrey/">University of Surrey</a>, on successfully defending her PhD!

🩸 Using samples from the UK ME/CFS Biobank, Krista examined the differences in the electrical properties of white blood cells in #pwME.
CureME - UK ME/CFS Biobank (@mecfsbiobank) 's Twitter Profile Photo

πŸ“’ Calling all #pwME! Join the 44 participants in our HHV-6 study who are shaping the future of #MECFS research. If you are: πŸ’™ Male aged 18-30 years old πŸ’™ Female aged 31-40 years old πŸ’™ Female aged 51-59 years old Apply now πŸ‘‰ bit.ly/3Qqctgx

πŸ“’ Calling all #pwME! Join the 44 participants in our HHV-6 study who are shaping the future of #MECFS research.

If you are:

πŸ’™ Male aged 18-30 years old
πŸ’™ Female aged 31-40 years old
πŸ’™ Female aged 51-59 years old

Apply now πŸ‘‰ bit.ly/3Qqctgx
CureME - UK ME/CFS Biobank (@mecfsbiobank) 's Twitter Profile Photo

🩸 Since 2011, the UK ME/CFS Biobank has collected thousands of blood samples from #pwME. πŸ€” But where do these samples go? πŸ’™ This #MEAwarenessDay, we're highlight the pivotal role of global collaboration in driving ME/CFS research. πŸ“– Read more: bit.ly/3WzOPSO

🩸 Since 2011, the UK ME/CFS Biobank has collected thousands of blood samples from #pwME.

πŸ€” But where do these samples go?

πŸ’™ This #MEAwarenessDay, we're highlight the pivotal role of global collaboration in driving ME/CFS research.

πŸ“– Read more: bit.ly/3WzOPSO
CureME - UK ME/CFS Biobank (@mecfsbiobank) 's Twitter Profile Photo

🧬 Join our HHV-6 Study as a healthy control participant! Just 6 more individuals needed to complete our cohort. πŸ§ͺ Support #pwME by collecting saliva samples and completing weekly questionnaires from home. Apply now πŸ‘‰bit.ly/3Vnx2fm #MECFS

🧬 Join our HHV-6 Study as a healthy control participant!  Just 6 more individuals needed to complete our cohort.

πŸ§ͺ Support #pwME by collecting saliva samples and completing weekly questionnaires from home.

Apply now πŸ‘‰bit.ly/3Vnx2fm

#MECFS
CureME - UK ME/CFS Biobank (@mecfsbiobank) 's Twitter Profile Photo

🌟 News from the CureME Research Team🌟 We are delighted to announce that we have now completed the recruitment for our HHV-6 saliva study. Many thanks to all of you who spread the word and helped make this happen.πŸ§ͺπŸ”¬ For study updates, visit our website bit.ly/CureME

🌟 News from the CureME Research Team🌟
We are delighted to announce that we have now completed the recruitment for our HHV-6 saliva study. Many thanks to all of you who spread the word and helped make this happen.πŸ§ͺπŸ”¬
For study updates, visit our website bit.ly/CureME
CureME - UK ME/CFS Biobank (@mecfsbiobank) 's Twitter Profile Photo

During this Severe ME week, we would like to acknowledge all the ME/CFS research participants, particularly those who despite their severe symptoms, have been taking the effort to provide samples and data. πŸ™πŸ’™ Thank you all!🌟 The CureME Research Group

During this Severe ME week, we would like to acknowledge all the ME/CFS research participants, particularly those who despite their severe symptoms, have been taking the effort to provide samples and data. πŸ™πŸ’™
Thank you all!🌟
The CureME Research Group
ME Foggy Dog (@mefoggydog) 's Twitter Profile Photo

Ta da!!! TWO exciting competitions for #pwME to enter. 1. The 'BED for Severe M.E.' Song Contest 2. The 'BED for Severe M.E' Song Contest Logo Competition!!! More info here - docs.google.com/document/d/1pu… Smile For ME CureME - UK ME/CFS Biobank #PwME #BedForSevereME #SevereMEDay

Ta da!!!

TWO exciting competitions for #pwME to enter.

1. The 'BED for Severe M.E.' Song Contest
2. The 'BED for Severe M.E' Song Contest Logo Competition!!!

More info here - docs.google.com/document/d/1pu…

<a href="/SmileForME_xx/">Smile For ME</a> <a href="/mecfsbiobank/">CureME - UK ME/CFS Biobank</a> 

#PwME #BedForSevereME #SevereMEDay
CureME - UK ME/CFS Biobank (@mecfsbiobank) 's Twitter Profile Photo

πŸ“’ Exciting news! Caroline Kingdom, our biobank coordinator, is featured in a Medscape News UK article discussing the striking similarities between Long COVID & ME/CFS. 🧬🌍 Learn how UKMEB data is supporting global research. Read the article here:bit.ly/MECFSandLongCo…

CureME - UK ME/CFS Biobank (@mecfsbiobank) 's Twitter Profile Photo

πŸ“… Save the Date! πŸ—“οΈOn September 19th, join the CureME team at LSHTM from 5 PM to 8 PM for a research exchange. 🧬 We invite ME/CFS patients and researchers to share insights and connect! 🌟#CureME #MECFS #ResearchExchange

CureME - UK ME/CFS Biobank (@mecfsbiobank) 's Twitter Profile Photo

πŸŽ‰ We're thrilled by the amazing interest in our upcoming hybrid event on September 19th at LSHTM! To join us, please register by clicking the link: forms.office.com/e/HY35YL4u8a or scan the QR code below. We can’t wait to meet you, share our latest research, and answer your questions!

πŸŽ‰ We're thrilled by the amazing interest in our upcoming hybrid event on September 19th at LSHTM!
To join us, please register by clicking the link: forms.office.com/e/HY35YL4u8a or scan the QR code below. We can’t wait to meet you, share our latest research, and answer your questions!
CureME - UK ME/CFS Biobank (@mecfsbiobank) 's Twitter Profile Photo

🌟 We’re thrilled with the fantastic response to our upcoming event! 🌟 If you're a carer or someone with an interest in ME/CFS, you’re more than welcome to join us on September 19th! Please register and include any guests who will be attending with you.

🌟 We’re thrilled with the fantastic response to our upcoming event! 🌟
If you're a carer or someone with an interest in ME/CFS, you’re more than welcome to join us on September 19th!
Please register  and include any guests who will be attending with you.