#LongCOVID #MECFS folks, IVIG question: I fully & medically qualify for IVIG but my insurance demands last step of get Prevnar vaccine & test a month later for immune response. I'm concerned about getting a vaccine I don't need & losing baseline. Anyone have experiences to share?

"I will always be on the side of those who have nothing and who are not even allowed to enjoy the nothing they have in peace." - Federico García Lorca

Fact checked this for press recently: Pres. Biden literally mentions #LongCOVID once per year. Always only in annual ADA White House anniversary event speech. Same for 2023 & 2022. Once per year. Not SOTU, not presidential budget request--only when no impact on budget or policy.

The US unceremoniously surpassed 1,200,000 confirmed covid deaths in August

Whoever on VP Harris campaign came up with debate strategy to raise size & audience leaving Trump rallies is brilliant. It automatically glitches him every time. Freight train straight to "THEY'RE EATING YOUR CATS! YOUR DOGS!" Want bad, bizarre, viral Trump debate clips? RALLIES!

Wow, Trump doesn't realize he's in danger. Classic prosecutor tactic: calmly & specifically poke bad actors on stand, who triggered, can't resist punch back. They FEEL strong but actually become weak by losing control in front of court. Tonight that court is the American people.

Former staffer point: "your rallies are small, weird & folks get bored" clearly & carefully workshopped in debate prep. Don't ignore that VP Harris used it to NOT answer immigration question where she's exposed. Trump didn't even read closing statement his staff drafted for him.

We've got a winner in the critical Kasparov primary! Well said Garry Kasparov & let's hope for this kind of vehement disagreement that should be welcomed in all functioning democracies.

AIM “today announced that an analysis of the complete clinical patient data from the AMP-518 clinical trial supported the Company’s belief in Ampligen as a potential therapeutic for people with the moderate-to-severe Post-COVID condition of fatigue, and that this would be the…

Again today, I pray for the families I met at St Vincents on 9/11, doing crisis counseling as they desperately searched NYC on foot, in ash. The pregnant women who never found husbands, the man in my church who searched the pile every day for his brother's body--Lord, have mercy.

Kansas Reflector: 'Whatever you want to believe, COVID-19 still surges through Kansas. Even worse waits in the wings' "The virus is real. The illnesses and deaths and long COVID cases are real." kansasreflector.com/2024/09/12/wha…

For people with severe Long COVID, medical care is out of reach thesicktimes.org/2024/09/17/for… ❤️ featuring patient stories from Dianna Cowern, Natalie Schnack, Rye Wheeler, and myself

Meighan Stone | @meighanstone.bsky.social Zeest Khan, MD Michael Sieverts

When the Taliban took control of Afghanistan in August 2021, women were soon banned from the legal profession. Many female judges and legal professionals fled; others remain. Join us Thursday @ 10am ET for a discussion via LinkedIn Audio Event: bit.ly/4dhpyRQ

This is both very disappointing & not surprising. I hope the RECOVER-TLC workshop organizers will use the opportunity of next week's NIAID meeting to take this on directly & new leadership will share their plans to address.

📣📣📣Some U.S. advocacy news to share from our work at Long COVID Campaign LongCOVIDCampaign:

📣ROLL CALL: Are you coming in-person to NIH RECOVER-TLC Bethesda meeting next week? If so can LongCOVIDCampaign: ✅Invite you to COVID-safe community meetup Monday night? ✅Meet any last travel stipend needs to ensure diverse attendance? ✅Be of local help to other patient-advocates?