You can complete this survey if you live with a rheumatic disease(s), such as Juvenile Idiopathic Arthritis or Psoriatic Arthritis, and you are between the ages of 13 and 29.
You can use the link here to access the survey: surveymonkey.com/r/PL69LCT

#makerheumforyouth #tapcxcapa

*ICYMI*: #COVID19 contributed to
25% of maternal deaths in the first two years of the pandemic, with Black pregnant people experiencing a mortality rate nearly 3x higher than their white peers, according to an oversight report to Congress.

axios.com/2022/10/19/cov…

I encourage you all to read Leticia "werewolves are better" Urieta 🎃's work about chronic illness and pain. It's really good: defunktmag.com/post/the-body-…

'Being a former dancer, someone who was once in peak physical condition, it’s hard to reconcile the change in my body from a disease I could feel but not see.'

What's behind the reflection of #chronicillness .

#RA #arthritis #writer
CreakyJoints.org

creakyjoints.ca/living-with-ar…

Presenting will not be my only job at #ACR22 - I will also be a patient reporter for CreakyJoints.org. I'll be searching for news that really matters to rheumatic disease patients!

Do you have a study we should know about?

Endless list of resources for PPE mostly masks in thread below.

Mutual aid organizations, groups, as well as companies and individuals who are giving free resources are centered. Please donate if you can to these places.

#COVID #BringBackMasks #MutualAid #CovidIsntOver

for TRA’s we are rarely raised where we were born. we feel it, even if we don’t say it or express it to our adoptive family. for a lot of non-adopted people tho, they feel at home where they were raised & that’s also true. don’t discount our feelings cause you uncomfortable.

Today will be the last time the CDC provides daily figures for COVID-19. BNO News plans to continue gathering data from local health departments across the U.S.

To those who attacked me personally for complaining that my taxi driver wasn't wearing a mask while coughing and sniffling. I'm a frontline ER MD. We wear masks EVERY shift. If I get covid, a colleague will have to work my shift which adds to their stress. Think about that.

“I'm a part of the CreakyJoints community. What's been really amazing is that there are people of color within the community. We've been able to have conversations about, what does this look like on your skin?” says advocate, Nicole Cech // via. GoodRx
goodrx.com/conditions/pso…

Getting enough #VitaminD ? Vitamin D helps your body absorb #calcium and is essential for #bonehealth . You get most of your vitamin D through exposure to sunlight. It’s also found in vitamin D-rich foods like fatty-fish, mushrooms & eggs.
#WorldOsteoporosisDay Osteoporosis IOF

Did you know that today is #WorldOsteoporosisDay ? We’re joining HealthyWomen.org in encouraging everyone to take control of their bone health by getting a #DXA scan! #YesYouScan healthywomen.org/yesyouscan

Excellent chat with our own fabulous Beth Morton founder of #Migrainechat . Really enjoyed hearing her talk about research, dispelling the myths, and how #migrainechat began.

Exercise for your bones (and muscles). Exercise helps build strong bones when you're younger, and maintains bone strength when you’re older. Check out these bone-friendly exercise tips: creakyjoints.org/diet-exercise/…
#BuildingBetterBones

During yesterday's the #AllCopaysCount Coalition's Hill Day, patient groups met with Senate offices to raise awareness around copay accumulator policies in insurance plans: how they hurt patients, and the simple legislative solution in #HR5801 .

🙌 Thankful for these groups!

Zoe Rothblatt Lene Andersen CreakyJoints.org GHLF I never thought this interview would become an advocacy tool to improve the onboarding experience of patients starting #biosimars for #rheumatoidarthritis in Canada Sandoz JointHealth THANK YOU Zoe and the GHLF team 🙏🏽

Such a great conversation about biologics and biosimilars for #RheumaoidArthritis . Thanks to GHLF for having me and Cristina Montoya - Arthritis Dietitian 🇨🇴🇨🇦 onnthe podcast!