'Nothing really prepares you for that final confirmation when the consultant sits in front of you and says, 'I'm sorry to have to confirm that you have Motor Neurone Disease’.'

🎥EndMND

Celebrating #PrideMonth by standing together with our LGBTQIA+ community 🌈

We need your input to improve our grant pages. Help us ensure everyone can easily access the info they need.

Please take a few minutes to complete our survey 📝

This weekend you might be seeing #GeneralElection canvassers knocking at your door.

This is a great opportunity for you to talk about #MND and encourage your MP candidates to sign the #MND Guarantee.

Download our handy canvasser card here: mndassociation.org/mndguarantee

Please share

The European Commission has approved Tofersen for treating MND in patients with the SOD1 gene alteration. This marks the first EU-approved treatment targeting a genetic cause of MND.

However, NICE's appraisal decision in the UK may limit access to this treatment.

Read the full

𝐋𝐚𝐬𝐭 𝐜𝐡𝐚𝐧𝐜𝐞!

Registration for #MNDEnCouRageUK closes today!

👂Hear about the latest MND research without the jargon
👋 Engage with researchers
🔬 Take part in discussions about research

Spaces are limited! Register your interest today ⬇

mndassociation.org/research/mnd-e…

Check out photos from BwD Police's charity raffle!

They raised a huge £3401 for the Association with special thanks to Frank Skinner MBE and Britain's Got Talent finalist Steve Royle for drawing the winning tickets.

Find out how to fundraise your way below 🎉

What are you doing next weekend? And why is it not making a splash at the Great North Swim?

Swim in the stunning Lake Windermere and support the fight against #MND .

Sign up below now, before it's too late 🏊‍♂️

Stay informed about key deadlines for the upcoming general election.

If you have accessibility needs, find all the info you need to vote easily by visiting the link below 👇

Meet Richard Holmes, diagnosed with Motor Neurone Disease in September 2022.

Watch the full documentary here: youtu.be/6yFzbHru3cI?si…

Ready, set, bake this #NationalBiscuitDay !

Whip up your favorite treats and help us raise funds for those affected by #MND .

Every cookie, cake, and biscuit makes a difference! 🍪

It’s #NationalBiscuitDay . Let’s settle the debate… 🍪

Just 36 days until #GeneralElection2024 !

Do you want your next MP to champion people with #MND ?

Encourage your MP candidates to sign the #MND Guarantee here ⬇️
mndassociation.org/mndguarantee

And please share with family & friends!

Kirti Thakrar lost her husband, Harish, to MND in 2021.

Kirti and her family set up a Tribute Fund in his memory, a special place online to remember Harish and see their incredible fundraising work all in one place.

Watch Harish's story below 🫶

More than 80 #TeamMND cyclists participated in RideLondon this past weekend, raising over £59,700! A heartfelt thank you from the entire MND community.

Sign up for 2025 below 🚴

Have you encouraged your #GeneralElection candidates to sign the #MND Guarantee ?

Ensure your future MP is a champion for people with #MND ! Discover more here ⬇️

mndassociation.org/mndguarantee