'When you’re a carer, it’s a strange bubble you end up in when you can't participate in the real world.'

Rosie was a carer for her Mam, Alyson, who had MND. She has generously shared her personal experience and advice for other carers.

Read Rosie's full story 👇

The spotlight has been neurofilament recently, but what is it?

Neurofilament levels can indicate how much damage is happening to motor neurons.

Neurofilament is now being used in clinical trials to see if a potential treatment is beneficial.

More ⬇️

On Sunday, Nick, who has MND, began an epic challenge: cycling 444 miles from Suffolk to Cornwall.

He's aiming to raise £50,000 for MND Association, Challenging MND and My Name'5 Doddie Foundation.

'My diagnosis has prompted me to ‘do more in ‘24’.'

Good luck, Nick! 🎉

New #MNDMatters episode out now! 🚨

Tune in as familiar face Martyn Barrow shares his heartfelt journey of caring for his wife, Anna, who lives with MND. Hear about the challenges, the love, and the strength of their family.

Listen below.

#CarersWeek

Can't make it in person? No worries! The MND Association's Annual General Meeting 2024 will be available for members online.

🗓 26 June
🕒 17:00pm

Join us from the comfort of your home to stay informed about our mission and impact.

Join us on Wed 19 Jun 24 at Birchwood Park for our 𝐌𝐍𝐃 𝐀𝐰𝐚𝐫𝐞𝐧𝐞𝐬𝐬 𝐅𝐢𝐥𝐦 𝐄𝐯𝐞𝐧𝐢𝐧𝐠 𝟐𝟎𝟐𝟒 aligning with Global MND Awareness Day (21 June) for a special screening of Top Gun: Maverick all whilst raising awareness and supporting those affected by MND.

We'll

If you've been affected by Paul's motor neurone disease storyline in Coronation Street, you can speak to the MND Association's MND Connect Helpline.

Visit mndassociation.org/mndconnect
Call 0808 802 6262
Email [email protected]

@ITVCorrie #Corrie

A survey we carried out showed 68% of carers described the cost of caring as ‘severe’ with 29% describing it as ‘very severe’.

No one should face financial difficulty because of caring.

Take action: mndassoc.org/xeaction
Full story: mndassoc.org/carersexpenses

#CarersWeek 💙

'I don’t have time for marathon training. A head shave would get people talking and didn’t require hours of training so I decided it had to be done!'

Scott shaved his head to raise vital funds for the Association following his good friend Phil was diagnosed with MND 🧡

🚨Data from our Carers Survey reveals how many carers are being forced into debt to cover care-related expenses.

Read the full article here 👇
mndassociation.org/media/latest-n…

Click here to complete the survey and share your experience of caring 👇
smartsurvey.co.uk/s/FinancialImp…

#CarersWeek

Martyn's life changed when his wife, Anna, was diagnosed with MND in 2023.

As a full-time #carer and father, he opened up candidly about his experiences, 'If you don't have a voice, you're hindered and the person you’re supporting is hindered.'

Read their full story below 💙

Support the #MNDGuarantee this #CarersWeek and prioritise the tireless heroes caring for people with MND.

Every carer deserves the security, support, and recognition they need. Take action today.

Follow @MNDCampaigns and use our easy tools to contact your candidate below 👇

53% of current and former unpaid carers say that caring had a negative impact on their physical health. Today our theme is health and social care for #CarersWeek

Read our full report here: go.carersuk.org/CW24report?utm…

Harborough dad pounds the pavement for MND Association after son was diagnosed with motor neurone disease. Read the full story below 🧡harboroughmail.co.uk/news/people/ha…

“When I heard Rob had passed away, the first words I could think of were thank you”

Earlier this morning, @EdSlater, who is living with motor neurone disease, shared his tribute to Rob Burrow on BBC Breakfast.

#MND #BBCBreakfast

𝟐 𝐖𝐞𝐞𝐤𝐬 𝐓𝐨 𝐆𝐨

It’s getting closer… The ToyotaUK charity bike ride from Portsmouth to Newcastle upon Tyne in aid of MND Association is just around the corner!

Thank you so much to everybody who has been kind enough to donate so far 👏
justgiving.com/page/jake-smit…

“I think that sometimes people take on a caring role, but don’t realise they are carers and don’t get the help that is available to them” - MND Carer.

Explore the services available to all the heroes supporting someone living with MND below 🫶

#CarersWeek

This #CarersWeek we want to highlight Gareth who cares for his wife, Sarah, who was diagnosed with #MND in December 2023.

'I don’t want to feel I am letting anyone down. It’s juggling so many different things, not just care.'

Read Gareth's full story below 💙