MND Research
@mndresearch
Research Development team at the Motor Neurone Disease Association of England, Wales & NI. We fund and promote cutting-edge #MND research & organise #alsmndsymp
ID:151456736
https://www.mndassociation.org/research 03-06-2010 13:07:57
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To what extent is your quality of life affected by your neurological condition?
Having #MND affects all aspects of a person's life.
Share your own reality in order to help bring change in the current system.
Respond to the The Neurological Alliance survey here ⬇️
neurolifenow.typeform.com/Mar-Apr24?utm_…
Warning: Websites and social media are full of claims with high promises for ALS/MND treatments. Read about ten red flags you should watch for from #ALSUntangled
ow.ly/8YN850Q1rFk
Protect yourself and others from the spread of misinformation.
#ALSMNDWithoutBorders
What is a placebo? 💊
A placebo is a ‘dummy drug’ which looks and tastes the same as the treatment being tested.
Placebo groups are used in clinical trials to ensure any beneficial effects observed are entirely down to the treatment.
#ClinicalTrials101
The world of clinical trials can be a daunting place.
To help de-mystify clinical trials we will be breaking down some of the key terms and abbreviations in our new #ClinicalTrials101 series.
Make sure you follow the # to stay up to date!
Great to see the injustice of the situation around assessing tofersen in the headlines.
Read Daniel Boffey's full article via The Guardian below 👇
theguardian.com/society/2024/a…
Tofersen is an effective therapy for the 2% of people with #ALS #MND who carry a genetic variation in their SOD1 gene. Whether it is available in the UK depends on a cost threshold and assessment by NICE. The system is outdated:
theguardian.com/society/2024/a…
UK MND Research Institute MND Association