Check out my blog talking about the research project we are carrying out to help optimise #NIV care for people living with #MND mndresearch.blog/2020/10/15/opt… MND Association MND Research Neuroscience Institute

A new neck collar developed by NIHR-funded researchers is helping people with #MotorNeuroneDisease to eat, communicate, drive and carry out other day-to-day activities. Find out more: bit.ly/3li4ksr #NIHRMakingaDifference | D4D: The NIHR HRC in long term conditions

This year's Stephen Hawking Foundation lecture, focused on effective respiratory care in #MND, will be live-streamed on 25 November, 6:15pm-9pm. To book your place, visit rcn.org.uk/SHFL20

If you are an MotorNeuroneDisease please get yourself on the MND Register The more our MND Research scientists know about us, the sooner we will have effective treatments. email.mndassociation.org/40VQ-16LJ1-086… King's MND Centre

Please get board this adventure. Not only for MND research but the mental challenge and for your own satisfaction. I’ll be there to congratulate you all on return.

Today is the last day to complete our online survey about #HCP experiences of caring for people living with #MND #ALS during #COVID19. To complete the survey: docs.google.com/forms/d/e/1FAI… Thank you to everyone who has completed it or shared our advert. MND Research Chris McDermott

Are you a professional supporting someone with #MND at the end of life? We have information to support you. Visit bit.ly/2CSHu8s for further info, or to download our End of Life Guide for professionals.

Are you or a family member living with #MND or #Parkinsons ? We'd love you to be involved in co-designing a new learning resource for care workers - find out more at tinyurl.com/yyevmer3 South Yorkshire MNDA MND Association Chris McDermott Parkinson's UK Parkinsons UK Oxford

Researchers at several UK universities are conducting a short survey to understand the experiences of people with #MND during the #COVID19 pandemic. How have you been affected? Has it impacted your health & social care? Find out more & take part ⬇️ mndassociation.org/impact-of-covi…

If you're living with #MND in the UK and the #COVID19 pandemic has impacted your health and social care, researchers at The University of Sheffield UCL King's College London UEA and University of Liverpool want to hear from you. Last chance to take part in this survey ⬇️ mndassociation.org/research/impac…

Its just one week until the 2020 Stephen Hawking Foundation lecture, focused on effective respiratory care in #MND. It will be presented by ronan astin. The event is run in partnership with The RCN, and sponsored by The Stephen Hawking Foundation. To book your place, visit rcn.org.uk/SHFL20

Ten years ago today we opened the Sheffield Institute for Translational Neuroscience (SITraN). Over the next few weeks, we will be sharing stories and films about research that has happened in the last decade. #sitran10years sheffield.ac.uk/neuroscience-i…

About 50% of people with #MND develop changes in thinking & behaviour. King's College London researchers want to find out the best way of measuring this. Take part in this research by completing a series of computerised questionnaires and puzzle-like tests ⬇️ mndassociation.org/measuring-cogn…

Every year #MND claims the independence of over 2,000 people in the UK. In the first of our #SITraN10year stories, researchers explain how they work to enhance the quality of life of MND patients while we wait for effective therapies to come through. sheffield.ac.uk/neuroscience-i…

Did you know supplementary oxygen therapy can have a serious detrimental effect in people with #MND? See our guide for #paramedics and other professionals working in acute/emergency medicine: bit.ly/3izPv3H

Lucy and her twin sister are doing the Virtual Kiltwalk in April to raise funds for MND Scotland Please consider donating to help this charity to fund vital research and provide support to people living with #MND #ALS virtual.thekiltwalk.co.uk/fundraising/Sc… Thank you!

Thank you to everyone who has helped out with this study in the past - we are getting close to finalising the toolkit. We are looking for #HCPs whose work involves #MND and #NIV services to help test the resource and complete this survey: forms.gle/EzgdoJTJvHZLyg…

Thank you to those who have already filled in our survey, we are still looking for #HCPs working in #NIV and #MND services to help test our new educational resource and provide invaluable feedback to help shape the final product Fill in the survey here: forms.gle/y5zvDkXHbMpgkf…

Do you support people with #MND on #NIV in the community or in a hospice setting? If so we'd love for you to review the "withdrawal of NIV and end of life care" section of our new educational toolkit and feedback to us - link to website found in survey: forms.gle/8f3sSMGQKbhZsG…

We're still looking for #HCPs working within services supporting people with #MND who use, or may use #NIV to review our new educational toolkit and complete a short survey (forms.gle/jMgis3nikUzDmS…). Your feedback will be really valuable in helping to shape the final resource!