Mark Scanlon patient partner, shares his experience with retinoblastoma. #CRRABCupOfTea #retinoblastoma #RB

Noha Soliman expands on the study's methods and results. #CRRABCupOfTea #retinoblastoma #RB

Jane Walter expands on her team's work developing 3D printed eyes for the purpose of medical training. #CRRABCupOfTea #retinoblastoma #RB

CRRAB Parent-In-Research Ivana leads the discussion about the journal topic with input from scientists, ocularists, and ophthalmologists in the community. #CRRABCupOfTea #retinoblastoma #RB

Thank you for joining the June Cup of Tea event! YouTube and Spotify recordings will be available in the coming weeks. Join us again in September for our next Cup of Tea event. #retinoblastoma #RB #eyecancer #CRRABCupofTea

Mark Scanlon patient partner, shares his experience with retinoblastoma. #CRRABCupOfTea #retinoblastoma #RB

The Retinoblastoma Research Community is open to health professionals, researchers, and anyone with a lived experience of retinoblastoma including patients, survivors, parents, and other caregivers! Link in our bio! #RB #EyeCancer #retinoblastoma

We’re creating a new thank you video and we’d like you all to star in it! Would like to be included? Send a video of yourself and your family saying “thank you” to [email protected] along with our consent form: buff.ly/4cePhL5 [Image description: Icon of a megaphone]

Are you interested in learning more about 3D Printing to help increase awareness of retinoblastoma? Check out the new blog post written about the wonderful research being conducted in Dr. Ashwin Mallipatna's lab! buff.ly/3L5yOwB #RB #EyeCancer #retinoblastoma

Join the #Retinoblastoma Research Community! We're open to health professionals, researchers, and anyone with lived experiences of #RB, including patients, survivors, parents, and caregivers. Sign up to receive #research updates and news, link in bio!

This month we'll feature other groups dedicated to #retinoblastoma in our "Friends of CRRAB" posts. First up, Asociación Española de Retinoblastoma (Spanish Retinoblastoma Association) works to ensure that children with #RB have the best possible health care. Learn more RetinoblastomaEspaña 👁

Are you interested in learning more about the Rare Pediatric Eye Cancer (R-PEC) Biobank and how patients are involved through the Patient Advocate Committee? Check out the new blog post by Frances Argento! buff.ly/3XDtTL6 #RB #EyeCancer #retinoblastoma

Did you miss June's Cup of Tea meeting on three-dimensional printing in ophthalmology? If so, recordings are ready! Please check them out on YouTube and Spotify! #retinoblastoma #RB #PatientEngagement

Save the date! On September 17, 2024, we have our next cup of tea! Come out on Zoom at 8PM ET to hear about an article on the impact of RB on Daily Living! Stay tuned for more details in the coming months. #retinoblastoma #RB #PatientEngagement #CRRABCupOfTea

Know the Glow works globally to eliminate preventable childhood blindness through early detection and treatment. They empower parents to see their child’s vision in a new light by raising awareness about The Glow (leukocoria). Learn more: knowtheglow.org #RB #KnowTheGlow

The Canadian Retinoblastoma Society is a registered charity run by a team of committed volunteers for the benefit of Canadians affected by retinoblastoma. Their roots go back to the 1980s! @cdnrbsociety #RB #EyeCancer #retinoblastoma

KAKS, German Children Eye Cancer Foundation, promotes retinoblastoma awareness and research. Since its foundation, the KAKS has initiated, financed, accompanied and completed various retinoblastoma research projects. @kaks_instanews #RB #EyeCancer #retinoblastoma

For some people, Rb can have a lifelong impact. We offer support to our members throughout their lives and we can help with any Rb-related concerns you may have.You can find information for adults on our resources page: buff.ly/3p6RkgK

Your voice matters! A team at SickKids is developing a survey to understand how eye conditions impact appearance. redcap.link/4r9gohs4 #eyehealth #appearance #survey #eyeconditions #retinoblastoma #cornealanesthesia #strabismus #prostheticeye #artificialeye #eyeresearch

#patientpartners want to attend the PiPER@UHN Research Day for FREE? Fill out the application here shorturl.at/nwtnP or see post with more information. #patientorientedresearch #livedexperience #patientexperience #neurodiversity #inclusion