Sally Light (@sallylight17) 's Twitter Profile
Sally Light

@sallylight17

Previously Chief Executive of the MND Association. Ongoing supporter of the MND community. Pond swimmer and yoga student. Views my own.

ID: 1369058154

calendar_today21-04-2013 08:55:36

9,9K Tweet

3,3K Followers

424 Following

MND Association (@mndassoc) 's Twitter Profile Photo

We’re sorry to hear that Doddie Weir OBE has died. Since sharing his MND diagnosis in 2017, Doddie became an inspiration to many, raising awareness and campaigning tirelessly on behalf of those with MND. Our thoughts are with Doddie’s wife Kathy, his 3 sons, family and friends.

We’re sorry to hear that Doddie Weir OBE has died.

Since sharing his MND diagnosis in 2017, Doddie became an inspiration to many, raising awareness and campaigning tirelessly on behalf of those with MND.

Our thoughts are with Doddie’s wife Kathy, his 3 sons, family and friends.
Sally Light (@sallylight17) 's Twitter Profile Photo

I am so saddened to hear about Doddie Weir’s death. Doddie has been tireless with his awareness raising & campaigning. It was a privilege to have met him. I am so thankful for his support. He inspired so many. My thoughts are with his family, friends & everyone at My Name'5 Doddie Foundation.

MND Association (@mndassoc) 's Twitter Profile Photo

Our response to Health and Social Care Secretary Steve Barclay's comments about the £50 million promised by GOV.UK for #MND research. 𝐅𝐮𝐥𝐥 𝐬𝐭𝐚𝐭𝐞𝐦𝐞𝐧𝐭: mndassociation.org/response-to-st… We are #United2EndMND.

Our response to Health and Social Care Secretary  Steve Barclay's comments about the £50 million promised by <a href="/GOVUK/">GOV.UK</a> for #MND research.

𝐅𝐮𝐥𝐥 𝐬𝐭𝐚𝐭𝐞𝐦𝐞𝐧𝐭: mndassociation.org/response-to-st…

We are #United2EndMND.
MND Association (@mndassoc) 's Twitter Profile Photo

What is motor neurone disease (#MND)? It kills a third of people within a year, and more than half within two years of diagnosis. 𝐈𝐭 𝐡𝐚𝐬 𝐧𝐨 𝐜𝐮𝐫𝐞. Please help us raise awareness. Share the facts. #BBCSPOTY #SPOTY

What is motor neurone disease (#MND)?

It kills a third of people within a year, and more than half within two years of diagnosis.

𝐈𝐭 𝐡𝐚𝐬 𝐧𝐨 𝐜𝐮𝐫𝐞.

Please help us raise awareness. Share the facts.

#BBCSPOTY #SPOTY
Sally Light (@sallylight17) 's Twitter Profile Photo

So brilliant to see. Congratulations Rob Burrow CBE and your best friend Kev. MND Association couldn’t be more delighted to see you recognised in this way at #SPOTY . So well deserved 👏🏼👏🏼👏🏼🧡💙

So brilliant to see. Congratulations <a href="/Rob7Burrow/">Rob Burrow CBE</a> and your best friend Kev. <a href="/mndassoc/">MND Association</a> couldn’t be more delighted to see you recognised in this way at #SPOTY . So well deserved 👏🏼👏🏼👏🏼🧡💙
Sally Light (@sallylight17) 's Twitter Profile Photo

Today was my penultimate day MND Association after 10 years working with the very best staff, volunteers, trustees & supporters on behalf of the MND community. Thank you for the opportunity & for your support, challenge & partnership over the years. Best of luck to @Tanyacurry2 🧡💙

Today was my penultimate day <a href="/mndassoc/">MND Association</a> after 10 years working with the very best staff, volunteers, trustees &amp; supporters on behalf of the MND community. Thank you for the opportunity &amp; for your support, challenge &amp; partnership over the years. Best of luck to @Tanyacurry2 🧡💙
MND Association (@mndassoc) 's Twitter Profile Photo

𝐇𝐚𝐩𝐩𝐲 𝐍𝐞𝐰 𝐘𝐞𝐚𝐫 🥳 We wish you all a very happy 2023. We'll continue to fight motor neurone disease alongside you. Our vision is a world free from #MND, we will achieve it!

𝐇𝐚𝐩𝐩𝐲 𝐍𝐞𝐰 𝐘𝐞𝐚𝐫 🥳

We wish you all a very happy 2023. We'll continue to fight motor neurone disease alongside you.

Our vision is a world free from #MND, we will achieve it!
Sally Light (@sallylight17) 's Twitter Profile Photo

I've signed the The Neurological Alliance petition, calling for UK governments to urgently establish a Neuro Taskforce. Add your name too! tinyurl.com/BackThe1in6 #BackThe1in6

Sally Light (@sallylight17) 's Twitter Profile Photo

Very moving to see Rob Burrow CBE & his parents on BBC Yorkshire this evening. Accepting his very well deserved award on behalf of the whole #MND community and pressing for the remaining money from the £50m for MND research. Congratulations Rob and all 👏🏼👏🏼🧡💙

MND Research (@premiumxremark) 's Twitter Profile Photo

Thanks to everyone who generously supports our research programme MND Association were able to award £6.1 million in new #MND research grants in 2022.* 🧪🥼 Find out about the new research we are funding in our blog ⬇ *As of 31 Dec 2022 mndresearch.blog/2023/03/09/one…

Nicola Waters (@aberdarenic) 's Twitter Profile Photo

Really proud to be a co-author of this essay about the £50m research investment campaign with Lee Millard David Setters (who started it all!) MummywithMND and the late Chris Johnson QPM What a journey it’s been! academic.oup.com/brain/advance-…

Sally Light (@sallylight17) 's Twitter Profile Photo

Thinking of and sending best wishes to the whole MND community on Global MND/ALS Awareness Day 🧡💙 #notimetowait #globalfight #beatingMNDtogether

MND Research (@premiumxremark) 's Twitter Profile Photo

Are you living with or affected by #MND and interested in research? The Patient Fellows Program can help you attend the 34th International Symposium on ALS/MND! 📆 Deadline 21 July 🌍 In person (Switzerland) and 🌐online places available More info ⬇ alspatientfellows.org

Sally Light (@sallylight17) 's Twitter Profile Photo

Many congratulations on the creation of this game changing Institute. So good to see it come to fruition #bettertogether 👍🏼👏🏼👏🏼👏🏼

Sally Light (@sallylight17) 's Twitter Profile Photo

Great to be part of the group of #MND supporters York Racecourse this afternoon to see the unstoppable Kev Sinfield go another #extramile for Rob Burrow CBE and the MND community. Huge thanks to him and his team and good luck 🧡💙 👏🏼👏🏼

Great to be part of the group of #MND supporters <a href="/yorkracecourse/">York Racecourse</a> this afternoon to see the unstoppable Kev Sinfield go another #extramile for <a href="/Rob7Burrow/">Rob Burrow CBE</a> and the MND community. Huge thanks to him and his team and good luck 🧡💙 👏🏼👏🏼
MND Association (@mndassoc) 's Twitter Profile Photo

Today, on Rob Burrow Day and the day of Rob's funeral, we want to pay tribute to all he has done for the MND Association and the MND community. We will be forever grateful. Thank you Rob.