SOFT UK(@soft_uk) 's Twitter Profileg
SOFT UK

@soft_uk

SOFT UK provides information and support for those affected by Trisomy 13, Trisomy 18 (Patau's and Edwards' syndrome) and related disorders

ID:237653154

linkhttp://www.soft.org.uk calendar_today13-01-2011 09:35:58

2,3K Tweets

602 Followers

230 Following

SOFT UK(@soft_uk) 's Twitter Profile Photo

Welcome to our newest volunteer, Becky Smith, Mum to Freddie. She will be overseeing our fundraisers, so you may well be in touch if you're planning a fundraiser for us.

Welcome to our newest volunteer, Becky Smith, Mum to Freddie. She will be overseeing our fundraisers, so you may well be in touch if you're planning a fundraiser for us. #volunteer #charity
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SOFT UK(@soft_uk) 's Twitter Profile Photo

DYK that we have seven Facebook support groups?

There is a group for you, no matter where you are in your journey and what path you chose.

*Your Trisomy 13/ 18 Experience
*Ending a Pregnancy
*Grandparents
*Bereaved Parents
*Siblings
*Dads
*Living with Trisomy

DYK that we have seven Facebook support groups? There is a group for you, no matter where you are in your journey and what path you chose. *Your Trisomy 13/ 18 Experience *Ending a Pregnancy *Grandparents *Bereaved Parents *Siblings *Dads *Living with Trisomy #support #softuk
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SOFT UK(@soft_uk) 's Twitter Profile Photo

You shop. Amazon donates. It’s really that simple!

Sign up today by choosing SOFT UK, then shop at smile.amazon.co.uk and we get the donation.

You shop. Amazon donates. It’s really that simple! Sign up today by choosing SOFT UK, then shop at smile.amazon.co.uk and we get the donation. #ShoppingOnAmazon #softuk
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SOFT UK(@soft_uk) 's Twitter Profile Photo

Today we’re asking our community what they would say to another family living with Trisomy 13/ 18. We’re looking for advice, inspiration, or hope.

Comment below and help someone else reading this.

Today we’re asking our community what they would say to another family living with Trisomy 13/ 18. We’re looking for advice, inspiration, or hope. Comment below and help someone else reading this. #supportingfamilies #compatiblewithlife
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If you're ready to share your family story, we’d love to hear it!

You can write a story or we can do a podcast. We're looking for all stories:
- ended pregnancies
- bereavement
- living with Trisomy

Pls get in touch: [email protected]

If you're ready to share your family story, we’d love to hear it! You can write a story or we can do a podcast. We're looking for all stories: - ended pregnancies - bereavement - living with Trisomy Pls get in touch: kate.hart@soft.org.uk #t13 #t18
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Reminder of our Support Call for Expectant Parents tonight (18/10/22) at 19:30.

For more information or a Zoom link, please email [email protected].

Reminder of our Support Call for Expectant Parents tonight (18/10/22) at 19:30. For more information or a Zoom link, please email kate.hart@soft.org.uk. #newparent #pregnancy
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SOFT UK(@soft_uk) 's Twitter Profile Photo

Did You Know that you know that you could give via Standing order?

For our banking details, please email [email protected].

Your donation will help us to provide support to families through an incredibly difficult time.

Did You Know that you know that you could give via Standing order? For our banking details, please email kate.hart@soft.org.uk. Your donation will help us to provide support to families through an incredibly difficult time. #fundraiseforSOFT #donate
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SOFT UK(@soft_uk) 's Twitter Profile Photo

Sue did the Royal Parks Half Marathon on Sunday & would love to give her lion, t- shirt, snood & bag to a family to raise more for SOFT.

Please donate here: justgiving.com/fundraising/su…
and comment ‘done’ to be entered into the draw.
Winner announced 1 Nov '22.

Sue did the Royal Parks Half Marathon on Sunday & would love to give her lion, t- shirt, snood & bag to a family to raise more for SOFT. Please donate here: justgiving.com/fundraising/su… and comment ‘done’ to be entered into the draw. Winner announced 1 Nov '22. #fundraising #raffle
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Tommy's(@tommys) 's Twitter Profile Photo

Whoever you’re lighting a candle for, and wherever you are, we’re right there with you.

Join us tonight at 7pm as we stand with thousands of people to create a to remember every little life lost. Light a candle or retweet to show your support ❤️

2022

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ARCantenatal(@ARCantenatal) 's Twitter Profile Photo

Tonight at 7pm we mark the end of Baby Loss Awareness Week 2022 with the global Wave of Light.

Join us by lighting a candle at 7pm and leave it burning for at least one hour to remember all the babies who have died too soon.

Tonight at 7pm we mark the end of Baby Loss Awareness Week 2022 with the global Wave of Light. Join us by lighting a candle at 7pm and leave it burning for at least one hour to remember all the babies who have died too soon. #WaveOfLight #babyloss #TFMR #BLAW
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OurSamBabyLossCharity(@OurSamCharity) 's Twitter Profile Photo

Last day of and our wonderful Our Stars Choir will be singing as part of the Medway NHS Foundation Trust Service of Remembrance and Hope.
We are incredibly proud of these bereaved parents and our amazing 12 year old bereaved sibling who will also be singing solo. Good luck guys!

Last day of #BLAW2022 and our wonderful Our Stars Choir will be singing as part of the @Medway_NHS_FT Service of Remembrance and Hope. We are incredibly proud of these bereaved parents and our amazing 12 year old bereaved sibling who will also be singing solo. Good luck guys!
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Donna Ockenden FRSA(@DOckendenLtd) 's Twitter Profile Photo

As part of the & my candles at home 2nite, thinking of everyone affected by baby & pregnancy loss & baby death across the world & further committing myself to do everything I can to make maternity bereavement care better & progress with

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Little Mole #StandWithUkraine(@alittlemole) 's Twitter Profile Photo

My baby daughter died 23 years ago. I am immensely grateful for the support I received from Sands - baby loss charity 💙🧡 and SOFT UK. I am very hopeful that the stigma around babyloss has reduced and that bereaved parents are better understood and supported. I still miss my girl every day. ⭐️

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Miranda Adderley(@MIrandaJennieJo) 's Twitter Profile Photo

thinking of all who have lost precious babies. For mums and dads, also grandparents and siblings grieving the pain of our children/brothers/sisters and the loss of a little one. We are forever changed but hold onto the light in the darkness John 1:5 Sands - baby loss charity 💙🧡 SOFT UK

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Cambridge Rare Disease Network(@camraredisease) 's Twitter Profile Photo

Thank you so much to our media partners SOFT UK Patient Worthy & BioPartner UK for helping to spread the word about our inclusive event in Cambridge on 25 & 26 Nov, our work & theirs!
Book your FREE tickets: bit.ly/3uFhKWu

Thank you so much to our #RAREfest22 media partners @soft_uk @PatientWorthy & @BioPartner for helping to spread the word about our inclusive event in Cambridge on 25 & 26 Nov, our work & theirs! Book your FREE tickets: bit.ly/3uFhKWu #StrongerTogether #RareDisease
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