SOFT UK
@soft_uk
SOFT UK provides information and support for those affected by Trisomy 13, Trisomy 18 (Patau's and Edwards' syndrome) and related disorders
ID:237653154
http://www.soft.org.uk 13-01-2011 09:35:58
2,3K Tweets
602 Followers
230 Following
Today we’re asking our community what they would say to another family living with Trisomy 13/ 18. We’re looking for advice, inspiration, or hope.
Comment below and help someone else reading this.
#supportingfamilies #compatiblewithlife
Reminder of our Support Call for Expectant Parents tonight (18/10/22) at 19:30.
For more information or a Zoom link, please email [email protected].
#newparent #pregnancy
Did You Know that you know that you could give via Standing order?
For our banking details, please email [email protected].
Your donation will help us to provide support to families through an incredibly difficult time.
#fundraiseforSOFT #donate
The North West contingent are on our way to Kent, ready for the OurSamBabyLossCharity Our Stars Choir performance tomorrow as part of Medway NHS Foundation Trust service of hope and remembrance. #M25 #babyloss #VeryProud
Whoever you’re lighting a candle for, and wherever you are, we’re right there with you.
Join us tonight at 7pm as we stand with thousands of people to create a #WaveOfLight to remember every little life lost. Light a candle or retweet to show your support ❤️
#BLAW 2022 #BLAW
It is now time for the #WaveOfLight at the end of Baby Loss Awareness Week 2022.
We'd like to invite you to post pictures below of your lit candles in memory of all babies gone to soon.
#BLAW2022 #BabyLossAwareness
Last day of #BLAW2022 and our wonderful Our Stars Choir will be singing as part of the Medway NHS Foundation Trust Service of Remembrance and Hope.
We are incredibly proud of these bereaved parents and our amazing 12 year old bereaved sibling who will also be singing solo. Good luck guys!
As part of the #WaveOfLight & #BLAW2022 my candles at home 2nite, thinking of everyone affected by baby & pregnancy loss & baby death across the world & further committing myself to do everything I can to make maternity bereavement care better & progress with #safermaternitycare
My baby daughter died 23 years ago. I am immensely grateful for the support I received from Sands - baby loss charity 💙🧡 and SOFT UK. I am very hopeful that the stigma around babyloss has reduced and that bereaved parents are better understood and supported. I still miss my girl every day. ⭐️
#BLAW2022 thinking of all who have lost precious babies. For mums and dads, also grandparents and siblings grieving the pain of our children/brothers/sisters and the loss of a little one. We are forever changed but hold onto the light in the darkness John 1:5 Sands - baby loss charity 💙🧡 SOFT UK
Thank you so much to our #RAREfest22 media partners SOFT UK Patient Worthy & BioPartner UK for helping to spread the word about our inclusive event in Cambridge on 25 & 26 Nov, our work & theirs!
Book your FREE tickets: bit.ly/3uFhKWu
#StrongerTogether #RareDisease