SOFT UK
@soft_uk
SOFT UK provides information and support for those affected by Trisomy 13, Trisomy 18 (Patau's and Edwards' syndrome) and related disorders
ID:237653154
http://www.soft.org.uk 13-01-2011 09:35:58
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We will be hosting our Coffee With SOFT Zoom call tonight at 19:30. If you'd like to come along and chat with other members of the community and some of the team at SOFT UK, get in touch.
For an invite, email [email protected]
Last call for your SING for SOFT submissions. If you've got a song in you and you'd like to submit a video for our show on Friday, please email it to [email protected]
#christmassong #music #charity
A new study at the University of Oxford is trying to understand whether health-related quality-of-life measures capture the lived experience of people with rare genetic conditions and their families.
Apply to take part.
shorturl.at/zCMS8
#research #trisomy13 #trisomy18
We'd like to invite you to our Living With Trisomy family call on Tuesday 14th at 19:00
The call is for families living with Trisomy 13 or Trisomy 18.
For a call invite, please email [email protected]
#familycall #trisomy13 #trisomy18
This December we will be hosting our Sing For SOFT event! We heard some incredible performers, and can't wait to see what's in store for this years event.
Email [email protected] for details
#music #trisomy #trisomy 13 #trisomy 18 #charityevent
Incase you missed it, our SOFT Scotland Family Day event page is live.
We have presentations from the team at SOFT, partner charities, professionals, and SOFT UK families available to watch there.
soft.org.uk/scotland-famil…
#familyday #ukcharity #trisomy13 #trisomy18
Happy Halloween!
We hope you're doing something exciting and would love to hear what you and your family are dressing up as this Halloween.
#halloween #family #festivity
Today marks the first day of #BabyLossAwarenessWeek .
This is the 21st Baby Loss Awareness Week in the UK, and whilst it has grown over time, the aims of the week remain the same.
This week we join together to remember our babies, raise awareness, and drive change 💖💙
We will be hosting a call on Friday 13th at 19:30 during Baby Loss Awareness Week.
Please get in contact if you'd like to join and speak with families and members from SOFT UK.
Email [email protected] for an invite.
#babylosswareness #blaw2023
We are in the early stages of gathering data and need your help!
soft.org.uk/news/trisomy-1…
#trisomy 13 #trisomy 18 #trisomy
A big congratulations to the 453 charities and community groups in Scotland sharing £11.8 million of #NationalLottery funding today! 🎉
These worthy projects are helping to connect and empower people across Scotland. We thought we'd share some of them in the thread below.👇