Το 2ο Επιστημονικό συνέδριο της ΟΣΑΚ-Cyfpa «Ποιότητα φροντίδας υγείας και ΓεΣΥ: συνεργασία, εκπαίδευση και ενδυνάμωση» θα λάβει χώρα στις 13 Μαϊου στο Κτήριο Διοίκησης της Ελληνικής Τράπεζας cypatient-conference.com 1/2

#EULAR2023 opening ceremony

Great start with the Study Group meeting on ‘Syndemics in RMDs’ at #EULAR2023. Thanks, Elena Nikiphorou, for starting this group 🙏🏻 Latika Chris Wincup Souzi Makri

Pleased to join the EULAR PARE Committee meeting PARE is the network of national organisations of People with rheumatic and musculoskeletal diseases (RMDs) across Europe Ensures the voice of people with RMDs is heard and has influence on decision making eular.org/the-eular-pare…

Patients have a right to be actively engaged in their own care - so why is Shared Decision Making still not the norm? At the Agora annual conference Souzi Makri sheds light. I’m saying more on this here on behalf of the European Alliance for Patient Access Global Alliance for Patient Access

Discussing the importance of raising awareness of rheumatic and musculoskeletal diseases in Europe Challenges, opportunities and great insights at the #PAREConference2023 EULAR PARE is the network of national organisations of People with Arthritis/Rheumatism across Europe

Are you a patient research partner with experience working in a Rheumatology/MSK study? The UoAEpidemiology group of University of Aberdeen iPRePaRe study would love to hear about your experiences in a new questionnaire to explore the perception of PRP work. abdn.ac.uk/iprepare-info

Are you a rheumatology/MSK researcher? Would you like to share your perceptions of the role of patient research partners in research? The UoAEpidemiology group of University of Aberdeen iPRePaRe study would love to hear about your experiences (Link to questionnaire below)

Click here for our new questionnaire to explore the role of PRP work. abdn.ac.uk/iprepare-info

Are you a Patient Research Partner ? Please fill in the below questionnaire!

Our co-designed questionnaire is still open for responses from both patient research partners and researchers in rheumatology/MSK

You can still help us better shape the work of patients in research. Please answer the survey!

Ευχαριστώ πολύ την κα. Κασσιανίδου που ήταν μαζί μας Lina Kassianidou απόψε

It is a pleasure to work with you Paul Studenic ! I am glad I could help!

#EULAR2024 ! Getting ready for the opening !

Thank you so much Joel . It was a real pleasure to do this interview with you !

Great session ! Thank you to all our speakers

A #PRP meeting is such a great start to our Annual Meeting for #HIPPOCRATES_IMI. Thanks to our #PatientResearchPartners, you are just amazing 🥰! Arnon Katz, Denis O'Sullivan, Heidi Bertheussen Maarten de Wit Souzi Makri Elsa Mateus

Want to learn what our patient research partners (PRP) have to say about working in the #SQUEEZE project? 💬 Meet Souzi Makri, who's journey with the #rheumatic disease #RA began in 2008, prompting her to undergo training as a Patient Research Partner by EULAR. #EUprojects

Χαιρετίζουμε τ ιστορική απόφαση π αντανακλά τ αποφασιστικότητα κ τ αφοσίωση σας NikosChristodoulides καθώς κ τ Michael Damianos η οποία ανοίγει τ δρόμο γ τ σεβασμό κ εφαρμογή τ δικαιωμάτων τ ασθενών Συνεχίζει το συμβόλαιο με την κοινωνία των πολιτών ο Πρόεδρος philenews.com/politiki/artic…