Would you like to have your voice heard ? There is an opportunity for you to join the all Ireland #RareDisease research team as a research advocate or co-researcher if you’re interested join the #RAIN #CRAG to work with Queen's University Belfast 🎓 and University College Dublin team. “Be the Voice not the Echo”

It’s time to act now! As the All Ireland interdisciplinary Rare Disease research community we committed to enhancing health outcomes and quality of life for the 410000 people living with a rare disease on the Island of Ireland and we support EJP RD - European Joint Programme on Rare Diseases Action Plan #PLWRD

There’s is still time to register RAiN Symposium on June 10, 2024, at Munster Technological University
Discover the incredible work supporting those living with rare diseases in the South of Ireland. Register using this link
🔗 shorturl.at/yUXJg
#RareDiseases #RAiN #MTUTralee IrishResearchCouncil

Our next major #RAiN event - sorry I’ll miss it. Dr Suja Somanadhan flying our RAiN flag in RoI, while I’m showcasing our #RareDisease #research in England and Scotland 9th-11th June. All go! #RareDisease NI #RARDTAC

I'm excited to join experts by experience at the RAiN
Symposium IT Tralee (Now MTU) RAiN is committed to advancing and promoting #PPIE #EDIfocused rare disease research across Ireland. #RareDiseases #RAiN #Research #Healthcare #Needfocused #solutionbased #PLWRD Prof AJ McKnight UCD Research

Privileged to be part of this task force. UCD School of Nursing, Midwifery & Health Systems Education & Research

Congrats to Melissa Kinch for winning UCD Graduate Studies ThesisIn3 🥳

Ecstatic to represent UCD School of Nursing, Midwifery & Health Systems as 1st & 2nd place in the competition!

I also want to say a huge thank you to my “village” for all their support over the last 3 years, including Brynne Gilmore + Hannah Brown

Ecstatic to have presented my thesis in the University College Dublin Universitas 21 #ThesisIn3 competition, and to have won the competition 🫢.

Delighted to represent UCD School of Nursing, Midwifery & Health Systems.

And

Who better to present with than Sara Dada, runner up, with her talk titled 'It takes a village'! 🥳

Dr Colm Galligan, parent of a child with #PKU , speaks about navigating access to drugs for #raredisease in Ireland

Are you (or a family member) living with a rare kidney disease? Have you transitioned from paediatric (shild) to adult care over the last eight-ten years? Would you be willing to share your experiences on this transition of care? Contact [email protected] to learn more.

Thank you Prof Deirdre Raftery for your kind invitation for me to join the networking event of PINNACLE programme. It’s a true #GLOBAL programme focused to empower female school teachers across #India #Pakistan UCD Global Akhilesh Mishra University College Dublin well done everyone involved 👏❤️

🚨Are you a young person between 18-24 years living with a Rare Renal Disorder or a parent/caregiver? We are looking for young people and parents/caregivers to join our study which examines experiences of moving between paediatric and adult services. Reach out for more info👇🚨

I just co-chaired the RAiN webinar with Melissa Kinch, an enlightening webinar on care coordination across #Europe , #Ireland , and #UK ! Rare diseases' multisystemic nature adds complexity, but we can navigate and improve care coordination with better strategies.

Registration is due to close soon: Coordination of Care webinar #rarediseases , from 12-2 p.m (23.05.24) Speakers include Dr Jessie Dubief Dr Rita Franciso EURORDIS-Rare Diseases Europe Wesley Mulcahy and Anne Lawlor 22Q11 Ireland Children's Health Ireland and Dr Amy Hunter and Dr Holly Walton Genetic Alliance UK

🎊 Amazing presentations by the presenters today. Thank you to each and everyone of you who presented and to those that attended. 😊
IFNA - UK and Ireland Chapter IntlFamNursingAssoc IFNAAUSNZ
Thank you to our chair Dr Suja Somanadhan and panel members veronica swallow Jaden Allan christine english Melissa Kinch

Next presentation for the IFNA UK &Ireland webinar ECR is Yvonne McGague 👏. IFNA - UK and Ireland Chapter IntlFamNursingAssoc IFNAAUSNZ Dr Suja Somanadhan veronica swallow

A great presentation underway by Martina Kennedy 👏. IFNA - UK and Ireland Chapter IntlFamNursingAssoc IFNAAUSNZ Dr Suja Somanadhan veronica swallow

Still time to join the #Free Webinar from #IFNAUKIreland May 20th 12.30 to 14.00 GMT. Great topics and invited speakers. IFNAAUSNZ IntlFamNursingAssoc IFNA - UK and Ireland Chapter Dr Suja Somanadhan
Register below: ucd-ie.zoom.us/rest/webinar/r…

Great engaging session at the National PEWS Train the Trainer session at Portlaoise today👏👏 Glad to be part of the national working PEWS TTT group Children's Health Ireland Siobhán Horkan💙 John Fitzsimons

📢 Join us for the RAiN Webinar on 'Coordination of Care'!Thursday, 23rd May 🕛 12:00 PM - 2:00 PM (GMT+1) I am thrilled to invite you to an engaging webinar on 'Coordination of Care' for rare disease patients.
🔗 Register here: shorturl.at/TXRoE
#RAiNWebinar