Organised 229 th #desmoid #supportgroup meeting on last Sunday where Ms Vaishnavi gave an #educational session on desmoid Tumor’s. Joined by 70 patients. Addressed their concerns. #desmoidawarenessmonth #awareness #companionship #education

🔸 Join us *LIVE* on Facebook TODAY, Sept. 25th, from 3-4 PM ET for a conversation with a caregiver of a #desmoid patient, Amanda MacKinnon! To join the event and ask questions, visit our Facebook Live Event link on our feed this today.

THANK YOU to our global #desmoid tumor community for a successful 2024 DTRF “Together We Will” Weekend. It was a wonderful weekend of connection and collaboration! Thank you to our Presenting Sponsor, @SpringWorkstx.

🔸 Join us *LIVE* on Facebook THIS Wednesday, Sept. 25th, from 3-4 PM ET for a conversation with a caregiver of a #desmoid patient Amanda MacKinnon! To join the event and ask questions, visit our Facebook Live Event link on our feed this Wednesday.

Watch this conversation with Raphael Pollock, which gave context to cancer terminology and insight into WHY the medical community talks about #desmoid tumors the way they often do - and the impact of that framing. vimeo.com/620324631 #DesmoidTumor #DTRF #desmoidresearch

🚨 "Together We Will" Weekend online registration closes TOMORROW at midnight ET! Register and use code TWW10 to save 10%. Details and hotel information: bit.ly/2024tww #togetherwewillweekend2024 #DTRF #RFA #desmoid #desmoidresearch #RFA24

Looking to give your newly diagnosed #desmoid patient additional support?  🔗 Visit our First Steps page at DTRF.org and click the link to download, print, and share the new DTRF Patient Brochure: bit.ly/DTRF-brochure #DesmoidTumor #DTRF

📽️ NEW video content is ready to watch! The webinar recording, “One #Desmoid Tumor Patient's Journey," with Young Adult Desmoid Tumor Patient, Megan Barrell, is now available: vimeo.com/1008888124?sha… #DTRF #desmoidtumorawarenessmonth #desmoidawareness

📣 LAST week to register for the #Desmoid Tumor International Research Workshop! Register for our VIRTUAL option for roughly $50 with promo code TWW10! 🔗 Online registration closes on Sept. 17th: bit.ly/2024tww. Thank you to our Presenting Sponsor, @SpringWorkstx.

🔸 Join us TODAY for a Facebook Live 3-4 PM ET for a conversation with #desmoid tumor patient, Megan Barrell! To join the event and ask questions, visit our Facebook Live link on our feed before the start of the event.

🔸 Join us *LIVE* on Facebook THIS Wednesday, Sept. 11th, from 3-4 PM ET for a conversation with #desmoid tumor patient, Megan Barrell! To join the event and ask questions, visit our Facebook Live Event link on our feed this Wednesday.

📽️ NEW video library content is ready to watch! The webinar recording, “Biomarkers: Predicting tumor behavior and choosing therapies," with Dale Shepard, MD, PhD, Medical Oncologist at the Cleveland Clinic, is now available here: vimeo.com/1007444333?sha… #DTRF #desmoid

Organised 227 th #desmoid #supportgroup meeting and an educational session on Role of surgery in desmoid. We thank Dr Akshay Tiwari for educating all patients. It was attended by 75 patients. #awareness #education #companionship

Registration is open for the annual @DTRFInternational Desmoid Tumor Research Workshop on September 20 in Houston, TX and virtually! This is a critically important, collaborative event for researchers and medical professionals in the field of #Desmoid tumor care. Learn more and

💻 Tune in TODAY for the #Desmoid Tumor Awareness Month (DTAM) webinar with special guest Dale R. Shepard, MD, PhD, Medical Oncologist, Cleveland Clinic. 🔗 Register ASAP: zoom.us/webinar/regist…

Organising 227 th #desmoid #supportgroup meeting and an #educational session by Dr Akshay Tiwari on Role of #Surgery in #DesmoidTumors on this Sunday. #awareness #education #companionship #desmoidawarenessmonth

Organised 226 th #desmoid #supportgroup meeting where desmoid patients shared their journeys, shared their concerns, interacted with each other. Joined by 60 patients. Hand foot syndrome, hair fall, pain and high BP are the most common concerns of desmoid patients on Sorafenib.

What better time than Desmoid Tumor Awareness Month to announce my poetry collection Tumor Moon, which revolves around my son's diagnosis w/ a #desmoid tumor, has been accepted for publication! Thank you to Concrete Wolf Poetry Series & judge Raphael Kosek concretewolf.com/contests/2024.…

SEPTEMBER is #Desmoid Tumor Awareness Month! Watch Lynne Hernandez, DTRF Executive Director, kick off this annual global effort to raise #DesmoidAwareness. 🔸 Visit DTRF.org/awareness for more details.

✨ Meet some of our 2024 #Desmoid Tumor Int'l Research Workshop Presenters! 🔗 Register for the DTRF "Together We Will" Weekend with the code TWW10 by 8/31 to get 10% off registration: bit.ly/2024tww 🔗 Book your hotel room by 9/3: bit.ly/DTRF-book-your…