The Lily Foundation (@4lilyfoundation) 's Twitter Profile Photo

Thanks Emily Coady-Stemp & Joshua Askew for sharing news of Kevin Hunter Day 's #marchoftheday raising awareness of #mitochondrialdisease! Putting #mitoonthemap around London & the South East! bbc.com/news/articles/… You can still sponsor Kevin by texting KEVIN to 70560 to donate £10!

The Lily Foundation (@4lilyfoundation) 's Twitter Profile Photo

Not long to this fabulous fundraiser at Christ Church Bath thanks to the Bath Community Band Bath Comm Big Band Thanks SLJO for joining our fight against #mitochondrialdisease ! #music #fundraiser #Bath

StealthBT (@stealthbt) 's Twitter Profile Photo

#WorldMitoWeek ended yesterday, but the journey to raise awareness, generate support, and advance innovation continues. Resources for those living with #MitochondrialDisease and their families are available from MitoAction, United Mitochondrial Disease Foundation, Mito Foundation and International Mito Patients (IMP).

#WorldMitoWeek ended yesterday, but the journey to raise awareness, generate support, and advance innovation continues. Resources for those living with #MitochondrialDisease and their families are available from <a href="/MitoAction/">MitoAction</a>, <a href="/UMDF/">United Mitochondrial Disease Foundation</a>, <a href="/AusMito/">Mito Foundation</a> and International Mito Patients (IMP).
United Mitochondrial Disease Foundation (@umdf) 's Twitter Profile Photo

From the results of surveyed registrants in mitoSHARE, we have more numbers to share on hearing-related symptoms in our patients with #mitochondrialdisease. Elevating #deafawareness and #mitoawareness on #DeafAwarenessMonth Join mitoshare at umdf.org/mitoshare/regi…

From the results of surveyed registrants in mitoSHARE, we have more numbers to share on hearing-related symptoms in our patients with #mitochondrialdisease. Elevating #deafawareness and #mitoawareness on #DeafAwarenessMonth Join mitoshare at umdf.org/mitoshare/regi…
Journal of Child Neurology (@jchildneurol) 's Twitter Profile Photo

Online first at JCN: A questionnaire for parents in a pediatric #mitochondrialdisease clinic: questions that they would like addressed, primary concerns about their child, and goals for their child journals.sagepub.com/doi/10.1177/08… #humanisminmedicine

Online first at JCN: A questionnaire for parents in a pediatric #mitochondrialdisease clinic: questions that they would like addressed, primary concerns about their child, and goals for their child journals.sagepub.com/doi/10.1177/08… #humanisminmedicine
Stemnovate Limited (@stemnovatel) 's Twitter Profile Photo

Mitochondrial disease can cause fatigue, weakness, seizures, heart problems, liver failure, and more. Contact us to volunteer or join our research. hubs.la/Q02QKpK50 #phdlife #scientists #molecularbiology #lifesciences #inspriational #volunteer #mitochondrialdisease

Mitochondrial disease can cause fatigue, weakness, seizures, heart problems, liver failure, and more. Contact us to volunteer or join our research. 

hubs.la/Q02QKpK50

#phdlife #scientists #molecularbiology #lifesciences #inspriational #volunteer #mitochondrialdisease
United Mitochondrial Disease Foundation (@umdf) 's Twitter Profile Photo

#WorldMitoWeek 2024 might be over today, but for patients and families with #mitochondrialdisease -- it's every day. Let's continue to #IlluminateTomorrow and share #mito voices today and every day. #MoreEnergyTogether umdf.org

#WorldMitoWeek 2024 might be over today, but for patients and families with #mitochondrialdisease -- it's every day. Let's continue to #IlluminateTomorrow and share #mito voices today and every day. #MoreEnergyTogether umdf.org
Mito Foundation (@ausmito) 's Twitter Profile Photo

Thank you to everyone who took part in World Mitochondrial Disease Week. Together we've made a huge impact! 💚 Thank you to all the mito community members who have shared your stories and experiences to raise awareness of mito 🙏 #WorldMitoWeek #MitochondrialDisease #mito

Thank you to everyone who took part in World Mitochondrial Disease Week. Together we've made a huge impact! 💚

Thank you to all the mito community members who have shared your stories and experiences to raise awareness of mito 🙏

#WorldMitoWeek #MitochondrialDisease #mito
United Mitochondrial Disease Foundation (@umdf) 's Twitter Profile Photo

Another message from Sara Nowinski, PhD from the Van Andel Institute (VAI) on her hopes for #mitochondrialresearch -- addressing #mitochondrialdisease on a molecular level. #Cures and not just symptom management -- it's our hope, too. Researchers help us #IlluminateTomorrow

United Mitochondrial Disease Foundation (@umdf) 's Twitter Profile Photo

CELEBRATING over 2,000 registrants! Thank you!! Join mitoSHARE and add your data to a registry that drives #mitochondrialdisease research and #clinicaltrials forward. It's the simplest way to make transformative impact for the #mito community. Register at umdf.org/mitoshare-regi…

United Mitochondrial Disease Foundation (@umdf) 's Twitter Profile Photo

Megan lives with a #mitochondrialdisease called #MERRF syndrome which, for her, started with a seizure when she was 16 years old. Megan gives voice to the same HOPE of so many in the #mito community -- a cure. #IlluminateTomorrow Learn more about MERRF at umdf.org/MERRF

CureMITO (@cure_mito) 's Twitter Profile Photo

MRIs often reveal symmetrical lesions in the basal ganglia/brainstem in Leigh syndrome, but genetic testing is needed for a definitive diagnosis. That’s a wrap for our #LeighSyndrome fact series this week! 💙 #CureMito #LeighSyndromeAwareness #MitoWeek2024 #MitochondrialDisease"

MRIs often reveal symmetrical lesions in the basal ganglia/brainstem in Leigh syndrome, but genetic testing is needed for a definitive diagnosis.

That’s a wrap for our #LeighSyndrome fact series this week! 💙 #CureMito #LeighSyndromeAwareness #MitoWeek2024 #MitochondrialDisease"
The Lily Foundation (@4lilyfoundation) 's Twitter Profile Photo

Thanks so much to mito warrior Riaan's family for arranging for so many landmarks to light up green for World #MitochondrialDisease Week in Cardiff last night. Thanks ITV News for sharing Riaan's story and helping put #mitoonthemap itv.com/news/wales/202…

The Lily Foundation (@4lilyfoundation) 's Twitter Profile Photo

There's no cure for #mito...but we're fighting hard to change that!📷Thanks to everyone for sharing & engaging with our posts throughout World #MitochondrialDisease Week, putting #mitoonthemap Keep up to date with our work by signing up to our newsletter: thelilyfoundation.org.uk/contact/

The Lily Foundation (@4lilyfoundation) 's Twitter Profile Photo

Cure EB Queen Elizabeth Olympic Park Thanks so much for the mention Cure EB We are delighted to have a team of Lily supporters getting involved in this fantastic event Queen Elizabeth Olympic Park next weekend. Raising awareness and funds to help fight #mitochondrialdisease supporting our #raredisease community.

The Lily Foundation (@4lilyfoundation) 's Twitter Profile Photo

Listen in to Friday's BBC Beds, Herts & Bucks to hear Angela talk about her amazing son, James who bravely battles #mitochondrialdisease Hear James' #mito story from around 1 hr 15 into the show: bbc.co.uk/sounds/play/p0… Share & help The #LilyFoundation put #mitoonthemap

Listen in to Friday's <a href="/BBC3CR/">BBC Beds, Herts & Bucks</a> to hear Angela talk about her amazing son, James who bravely battles #mitochondrialdisease Hear James' #mito story from around 1 hr 15 into the show: bbc.co.uk/sounds/play/p0…  Share &amp; help The #LilyFoundation put #mitoonthemap
CureMITO (@cure_mito) 's Twitter Profile Photo

The Crites family is lighting up their home in green for Mitochondrial Disease Awareness Week! 💚 Check it out and share your own picture with us in the comments! #leighsyndrome #mitochondrialdisease #mitoawareness #WorldMitoWeek2024

The Crites family is lighting up their home in green for Mitochondrial Disease Awareness Week! 💚 Check it out and share your own picture with us in the comments!

#leighsyndrome #mitochondrialdisease #mitoawareness
#WorldMitoWeek2024
The Lily Foundation (@4lilyfoundation) 's Twitter Profile Photo

Are you #mitoaware? 👪Mitochondrial disease can affect anyone at any age!👪 Please share to help raise awareness during World #MitochondrialDisease Week. Learn more by visiting our website: ⬇️⬇️⬇️ ow.ly/C6KC50TshNf