Living with chronic illness means constantly fighting to get back to your baseline. We experience set backs all the time and it may take days, weeks or months to get back to our baseline, only for us to experience another set back and the cycle repeats. It takes an incredible

Sensory overload is such a weird feeling to describe. How would you explain it?

POTS is so much more than a high HR. It's unfathomable fatigue, its pain throughout your body. It's walking through life feeling drunk all the time, like you’re walking on a boat It’s having brain fog so bad you forget where you are. It’s gastro pain, blood pooling

What’s one thing you wish people would stop assuming about life with a chronic illness? Let’s talk about the misconceptions that don’t reflect our reality.

The problem with being told, “Put your health above everything else right now,” is that it can make you feel like your life is being sidelined. When your health remains stagnant or continues to decline, it becomes increasingly challenging to connect with the things that once

Remember a time you had the flu. Remember how bad you felt? You probably even stayed home from work for a few days in bed. Now imagine feeling like that everyday, 24/7. Except now you can't call out of work, you have bills and a family to provide for. You have obligations at

Supplemental oxygen for POTS to help with brain fog and blood flow. What do you guys think?

What's a piece of advice you would give to someone who wants to support a loved one with a chronic illness, but doesn't know how?

Chronic illness exists on a spectrum, with patients experiencing varying degrees of severity, from mild symptoms to being completely bed-bound. It’s never a one-size-fits-all situation. Don’t assume that two people with the same diagnosis face the same challenges. And

What’s a change you wish the healthcare system would make to better support those with chronic illness? Whether it’s more time with doctors, better accessibility, or something else?

I hate chest pains with POTS. Sitting here wondering if now is the time to go to the ER or if it will pass like it always does.

So whatever I have been doing for the past year has not been working, I feel as if I have gone backwards instead of forward with my illnesses. Medication wise I haven’t tried much, only been on a beta blocker but really want to try mestinon. Going to try and bump my infusions

What have been some of your worst experiences within the medical system ? Share your stories.

Hello friends. I’m finally doing it. Starting Monday I will be taking a leave from work and trying to focus on healing this damn body. 🤞