Standing Up to POTS (@potsactivist) 's Twitter Profile
Standing Up to POTS

@potsactivist

SUTP works to improve quality of life for people living with postural orthostatic tachycardia syndrome (POTS) through research, advocacy, and support.

ID: 2950441900

linkhttps://linktr.ee/sutp calendar_today30-12-2014 01:47:29

1,1K Tweet

5,5K Takipçi

15 Takip Edilen

Standing Up to POTS (@potsactivist) 's Twitter Profile Photo

Each experience in your life may only appear as a single blotch of color, but when combined together, paint the portrait of the person you are. The bright turquoise of #POTS is just one hue on your canvas. #dysautonomia #POTSactivist #SUTP #chronicillness

Each experience in your life may only appear as a single blotch of color, but when combined together, paint the portrait of the person you are. The bright turquoise of #POTS is just one hue on your canvas.

#dysautonomia #POTSactivist #SUTP #chronicillness
Standing Up to POTS (@potsactivist) 's Twitter Profile Photo

Dr. K. is a Chiropractic Doctor who has made it her life’s work to treat seemingly hopeless pain, such as the neurologic pain sometimes seen in POTS, hEDS and CRPS. Listen on your favorite platform or at ThePOTScast.org.

Dr. K. is a Chiropractic Doctor who has made it her life’s work to treat seemingly hopeless pain, such as the neurologic pain sometimes seen in POTS, hEDS and CRPS.  Listen on your favorite platform or at ThePOTScast.org.
Standing Up to POTS (@potsactivist) 's Twitter Profile Photo

A big THANK YOU to Clingman Insurance for sponsoring our annual #SUTP5K again this year! Their donations helps us to award research grant money to top #POTS researchers. This local business knows what it means to give back to the community! clingmaninsurance.com #SUTP

A big THANK YOU to Clingman Insurance for sponsoring our annual #SUTP5K again this year! Their donations helps us to award research grant money to top #POTS researchers. This local business knows what it means to give back to the community! clingmaninsurance.com #SUTP
Standing Up to POTS (@potsactivist) 's Twitter Profile Photo

Microclots are tiny clots in very small capillaries that disrupt blood flow. These microclots deprive the tissue of oxygen, which can result in increased heart rate and fatigue. It's interesting, and we need more work in this area! doi.org/10.3390/jpm140… #POTS #SUTP

Microclots are tiny clots in very small capillaries that disrupt blood flow. These microclots deprive the tissue of oxygen, which can result in increased heart rate and fatigue. It's interesting, and we need more work in this area! doi.org/10.3390/jpm140… #POTS #SUTP
Standing Up to POTS (@potsactivist) 's Twitter Profile Photo

#POTS may be a part of your story, but it's just one piece. It doesn't define who you are. What are other important pieces of your puzzle? #dysautonomia #SUTP #motivationalmonday #chronicillness

#POTS may be a part of your story, but it's just one piece. It doesn't define who you are. What are other important pieces of your puzzle?

#dysautonomia #SUTP #motivationalmonday #chronicillness
Standing Up to POTS (@potsactivist) 's Twitter Profile Photo

Hear Sephora’s story of cheesecake-triggered POTS, a rough ride through OT school, a strong recovery AND then founding the support organization she wishes had been there for her. Listen on your favorite platform or at ThePOTScast.org

Hear Sephora’s story of cheesecake-triggered POTS, a rough ride through OT school, a strong recovery AND then founding the support organization she wishes had been there for her.  Listen on your favorite platform or at ThePOTScast.org
Standing Up to POTS (@potsactivist) 's Twitter Profile Photo

Register today for the 11th Annual #SUTP #5K/2K to support #POTS research. Join us in person at #Wittenberg in Ohio on October 19, or virtually any time and any place. Let's stand together to fund research to improve quality of life for those with POTS. standinguptopots.org/annual-5k

Register today for the 11th Annual #SUTP #5K/2K to support #POTS research. Join us in person at #Wittenberg in Ohio on October 19, or virtually any time and any place.  Let's stand together to fund research to improve quality of life for those with POTS. standinguptopots.org/annual-5k
Standing Up to POTS (@potsactivist) 's Twitter Profile Photo

A recent study found that those with hypermobile #EDS are more likely to develop #POTS after the Gardasil 4 vaccine than controls. We know that POTS and EDS are often comorbid disorders, but don't understand the mechanics of this association. doi.org/10.3390/report… #SUTP

A recent study found that those with hypermobile #EDS are more likely to develop #POTS after the Gardasil 4 vaccine than controls. We know that POTS and EDS are often comorbid disorders, but don't understand the mechanics of this association. doi.org/10.3390/report… #SUTP
Standing Up to POTS (@potsactivist) 's Twitter Profile Photo

If we could control it, we would be able to do all of the things. But somedays we just can't. Please continue to invite us to things. Our hearts are always eager to be included, even if our bodies don't cooperate. #POTS #dysautonomia #chronicillness #SUTP

If we could control it, we would be able to do all of the things. But somedays we just can't. Please continue to invite us to things. Our hearts are always eager to be included, even if our bodies don't cooperate.
#POTS #dysautonomia #chronicillness #SUTP
Standing Up to POTS (@potsactivist) 's Twitter Profile Photo

This episode has everything you need to know about underlying infections as a potential driver of mast cell activation, POTS and more, with one of the world’s leading experts, Dr. Tania Dempsey. Listen on your favorite platform or at thePOTScast.org

This episode has everything you need to know about underlying infections as a potential driver of mast cell activation, POTS and more, with one of the world’s leading experts, Dr. Tania Dempsey.  Listen on your favorite platform or at thePOTScast.org
Standing Up to POTS (@potsactivist) 's Twitter Profile Photo

Diagnosing #POTS is not difficult. Luckily, many more practitioners are becoming aware of POTS which will decrease the diagnostic delay. Increased heart rate and orthostatic intolerance for 3 months or more can be indicative of POTS. doi.org/10.15212/CVIA.… #SUTP

Diagnosing #POTS is not difficult. Luckily, many more practitioners are becoming aware of POTS which will decrease the diagnostic delay. Increased heart rate and orthostatic intolerance for 3 months or more can be indicative of POTS. doi.org/10.15212/CVIA.…
#SUTP
Standing Up to POTS (@potsactivist) 's Twitter Profile Photo

When you only have a limited number of spoons, each one matters. Don't worry about tomorrow's spoons - you don't know how many you'll have. How will you use your spoons today? #POTS #spoonie #dysautonomia

When you only have a limited number of spoons, each one matters. Don't worry about tomorrow's spoons - you don't know how many you'll have. How will you use your spoons today?

#POTS #spoonie #dysautonomia
Standing Up to POTS (@potsactivist) 's Twitter Profile Photo

Congratulations to Ronald of Scottsdale, the winner of this month's drawing! We appreciate everyone who supports #POTS research by registering for our annual 5K/2K. If you would like to join us, register at standinguptopots.org/annual-5k. #SUTP #SUTP5K #dysautonomia

Standing Up to POTS (@potsactivist) 's Twitter Profile Photo

At her worst, Jess could barely talk. Now she’s speaking up to let other patients know the power of persistence. Listen on your favorite platform or at thePOTScast.org.

At her worst, Jess could barely talk.  Now she’s speaking up to let other patients know the power of persistence.  Listen on your favorite platform or at thePOTScast.org.
Standing Up to POTS (@potsactivist) 's Twitter Profile Photo

Register today for the 11th Annual #SUTP #5K/2K. Join us in person at #Wittenberg in Ohio on October 19 to meet other people with POTS while also raising money for POTS research. standinguptopots.org/annual-5k #POTS #dysautonomia #potsresearch #potsawareness

Register today for the 11th Annual #SUTP #5K/2K. Join us in person at #Wittenberg in Ohio on October 19 to meet other people with POTS while also raising money for POTS research.  standinguptopots.org/annual-5k #POTS #dysautonomia #potsresearch #potsawareness