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Have you recently joined the National #ALSregistry? ALS Registry members can opt in to provide biospecimen samples such as saliva, through the National ALS Biorepository. Find out how you can advance ALS research: bit.ly/462AT4A

Children may be impacted differently when a loved one is diagnosed with #ALS, which is why we provide resources specifically to support young people. Learn more: bit.ly/YouthALS

Thank you Sheldon Whitehouse and Senator Jeff Merkley for re-taking the Ice Bucket Challenge and spreading ALS awareness! #IceBucket10

“ALS is a devastating and fatal neurological disease that can strike anyone at any age. Enactment of the HEALTHY BRAINS Act will help to identify environmental risk factors and lead to the development of new treatments and strategies to prevent ALS and other similar diseases. We

In recognition of the 10th anniversary of the Ice Bucket Challenge, InnoVision CEO Ric Militi and our very own Steve Becvar got dunked on live TV in San Diego to raise awareness for ALS! bit.ly/san-diego-IBC #IceBucket10

Over 36,000 messages have been sent to lawmakers since Aug. 1 by #ALS advocates! Let’s step up our advocacy efforts by using our quick and easy action alert to call local offices TODAY: als.quorum.us/campaign/65283/ #ALSAdvocacy #FundALSResearch #IceBucket10

We made a "splash" with the FOX 5 DC team at the annual CEO Soak event in Washington DC! Fox 5 anchor, Mikea Turner, is no stranger to #ALS after her friend's mother was diagnosed with the disease. We would like to thank Mikea for her longtime support and everyone who helped make

As #ALS progresses, breathing can become more difficult, but there are techniques and equipment that can help. bit.ly/ALSRespiratory #WellnessMonth

Last week our State Policy & Advocacy Team attended the National Conference of State Legislatures 2024 Legislative Summit, the largest gathering of state lawmakers and staff from across the country! We had a great time networking and having conversations around how we make ALS

Join with advocates from across the country like the Rodriguez and Cruz families to take action and fight ALS. See all 8 ways you can make a difference for Advocacy Action Month at als.org/August #Icebucket10 #FundALSResearch #ALSAdvocacy youtu.be/MOT2uXqp5sw

ALS, or amyotrophic lateral sclerosis, is a fatal disease that affects nerve cells in the brain and spinal cord. The disease takes away the ability to walk, talk, eat, and breathe. It's often referred to as Lou Gehrig’s Disease. ❤️💙 💛

Please join us for our monthly Platform Trial update, this Thursday 8/22 at 5 pm EST. This week, we will be joined by guest speakers Dr. Xiaowei (Bill) Su from Penn State Hershey and Dr. Michael Robinson to discuss ALS drug development. Register: partners.zoom.us/webinar/regist…

In recognition of #NationalAccessibleAirTravelDay, we’re sharing comments we submitted to the Secretary of the Department of Transportation along with true stories of the many “flightmares” people living with #ALS and their families have shared. Learn more and become an advocate

Victory in Michigan! The recently enacted state budget includes $745,000 for ALS care services! Join us in thanking Governor @Gretchenwhitmer, Rep. Christine Morse, Rep. Angela Witwer, Sen. State Senator Sylvia Santana, & Sen. Sarah Anthony for improving the lives of Michiganders living with

Thank you, Indiana Gov. Governor Eric Holcomb, Sen. Kyle Walker, & Sen. Ed Charbonneau for supporting S.B. 215, making Medigap plans more affordable, and S.B. 273, expanding biomarker testing for Hoosiers with #ALS! Grateful to our ALS advocates who championed these issues. #ALSAdvocacy

Visit your Members of Congress at their local offices this August! Ask them to take the Ice Bucket Challenge and deliver information on increasing #ALS research funding. Take action: als.quorum.us/campaign/49670/

Lawmakers at every level of government can make an impact in the fight against ALS. Ensure that you are registered to vote and have a plan to vote in whatever way is best for you: als.quorum.us/campaign/48661/ Our action alert can help you register to vote. We also have links to check

This August, hundreds of #ALS advocates across the U.S. asked their lawmakers to take the #Icebucket10 Challenge and to #FundALSResearch. We want to thank this year's sponsors who helped make Advocacy Action Month possible: Mitsubishi Tanabe Pharma America Sanofi US Learn more: als.org/August

.Rep. Jennifer Wexton & Gus Bilirakis introduced the HEALTHY BRAINS Act to help scientists at NIH study how things in the environment might cause brain diseases like #ALS. Tell Congress to pass H.R. 9233 this year: als.quorum.us/campaign/healt… #ALSAdvocacy #HealthyBrainsAct