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Please visit our YouTube Channel to watch our "Meet the Professionals" video and learn more about some of the projects we are funding 👩‍🔬 youtube.com/watch?v=0uVxY9…

Check out our new holiday recipes flyer to inspire you this festive season! The flyer is available to download from our patient website. If you would like to receive emails with our new resources please sign up as a member of the Foundation. patient.citrinfoundation.org/wp-content/upl…

After receiving great feedback on the first two episodes of our interview series, we are excited to talk to more of our membership on a wide range of topics. Have a topic you would like to speak about? Drop us an email so we can arrange a call!

Happy Holidays!

A lot of people can feel heightened levels of stress or pressure at the start of a new year. Breathwork is one of the ways that one may use to manage this and promote wellbeing 🧘‍♂️#wellbeingwednesday

Are you signed up to our quarterly newsletter? To read old editions please check the "News and Events" tab on our website

Learn more about our "I am what I love" initiative for this #RareDiseaseDay

Learn more about carbohydrates and the role they play in the CD diet 🥖 instagram.com/p/C3nez23IZsC/…

🚨 IT'S RARE DISEASE DAY GLOBALLY! 🚨 Join us marking #RareDiseaseDay 2024! Spread awareness, share stories, and support those living with rare diseases. Together, we make a lasting impact! #ShareYourColours

Today is #rarediseaseday and we are delighted to celebrate the diverse people we support through our "I am what I love" initiative.

While patients need to manage their intake of carbohydrates, they should not completely eliminate them from their diet. Here are some helpful examples of "good" carbs to opt for when thinking about your meals.

All about snacking!

The function of aspartate in our bodies and how aspartate-rich foods may be beneficial to people living with CD

Wondering what to cook this week? Check out the new Spring recipes on our patient website! patient.citrinfoundation.org/en/category/sp…

Ever wondered about plant vs animal protein?

Last week, our Patient Engagement Team attended the British Inherited Metabolic Disease Group Meeting in Newport, South Wales. This event is the largest meeting of its kind in the United Kingdom and Ireland, bringing together researchers, clinicians, patient groups and industry.

Our new PFC recipe booklet for citrin deficiency patients is now available to download on our patient website. We hope this resource helps make the day-to-day planning of meals easier and that you enjoy some of the tasty recipes!

We are always working to expand our reach to our diverse patient population through multi-language resources. We have recently added Vietnamese to our resource library!

At this year’s SSIEM meeting, the Foundation hosted a roundtable discussion with over 100 attendees, bringing together regulators, patient advocacy groups researchers and clinicians. The event underscored the importance of ongoing dialogue and collaboration among stakeholders.