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I'm in the worst gastroparesis flare I've ever had. I'm limited to liquids and small amounts of soft foods. Here's to hoping it improves before the Hydrocephalus Assoc. Conference next week. Either way, I'm determined to make the most of it. Here's to dancing in the rain!

"Aqua Cranium" A poem written by the talented Edgar Xiong, living with the condition of #hydrocephalus. #HearUs #hydrocephalusawareness #HydroHero #HydroArtist

Let's take a look back at the educational, innovative sessions at the 18th National Conference on #Hydrocephalus last month in Tampa, FL. A special thank you to all of our speakers and panel experts that shared their tremendous knowledge with our community. See you in 2026!

Are you or a loved one taking medication for a chronic condition? If so, we want to know about your experience getting the drug you need. Fill out a survey to share your story: ow.ly/52C650T7KPY

Get Ready for #HAM2024! 🌟 Starting Sept 1st, we’re celebrating the strength of those living with #hydrocephalus in our Faces of Strength, Voices of Hope campaign. Join us in raising awareness & advocating for change! 💙 Learn more: hydroassoc.org/ham2024

📣 Calling all young adults (18-29)! @NextStep is their FALL Campference in Stony Point, NY. The camp takes place Fri., October 11 - Sun., October 13 & is designed for young adults living w/chronic conditions, including #hydrocephalus. Register now: ow.ly/2Zb450TabA1

Check out some more inspirational art from our #community! Title: Butterfly Ventricles 🦋 Artist: Alexandra-Ioana Ivascu 19 years old living with #hydrocephalus, diagnosed at age 11 📸 IG: @brainartgirl

National #MakeAWillMonth may be ending, but you still have the rest of 2024 to secure your future! Become one of our heroes by using your will-POWER with @freewill: frwill.link/HAMAWM24. 🦸 Your superpower can create a lasting legacy for the #hydrocephalus community!

🎉 It’s officially Hydrocephalus Awareness Month #HAM2024! Follow along as we share stories of strength, important resources, and ways to get involved. Join us in raising awareness! 💙 Let’s make an impact together: hydroassoc.org/ham2024/

Meet Gary Chaffee, whose life was transformed by #NPH. After years of struggle and uncertainty, a shunt led to a dramatic improvement, showing that hope and resilience can create a brighter future. #HAM2024 hydroassoc.org/people-view/ga…

🔬 We funded 7 researchers last year for projects aligned with our community’s top priorities. This year, we’re expanding with more awards, including neuropsychology, epidemiology, and engineering. Meet our 2023 Innovator Award recipients: hands.hydroassoc.org/meet-our-2023-… #HAM2024

#HAM2024 is the perfect time to educate everyone about this condition. Watch this video that simplifies what #hydrocephalus is, showcases treatment options, and highlights key symptoms to watch for. Be sure to share it with everyone you know! 💙 youtu.be/lENLz8Z6c0Y?si…

Hydrocephalus Assoc. Conquer Chiari Started a project that I felt needed to be my story, unfiltered, or pretty much the different parallels of how the #hydrocephalus & #Chiarimalformation has either impacted me or given me a clear direction.

Did you know? Hydrocephalus is the most common reason for brain surgery in children. Kids like Aiden, who has bravely undergone 23 brain surgeries, inspire us every day. Let’s spread awareness & support those living with #hydrocephalus. More Info: hydroassoc.org/ham2024 #HAM2024

🌟 Don't miss out! Join us for our next Advocacy Update tomorrow, September 4th, at 7:00 pm Eastern. If you haven’t signed up yet, there's still time—click below to register! us02web.zoom.us/meeting/regist…

Record-breaking $14M grant fuels historic research into idiopathic normal pressure hydrocephalus (iNPH)! This first-of-its-kind trial aims to revolutionize adult #hydrocephalus treatment. Learn more about its potential to transform lives! #HAM2024 🔬annualreport.hydroassoc.org/research/#Reco…

Don’t miss out on the latest updates, inspiring stories, and key information about #HAM2024! Sign up for our email updates and be part of our community’s journey to raise awareness and drive positive change. 💌 Stay in the Loop: hydroassoc.org/hamsignup

School’s back, and we want to make sure teachers have what they need to support our kids with #hydrocephalus. Our Teachers' Guides help them understand the unique challenges our kids might face. Share the right guide for your child’s grade today! #HAM2024 hydroassoc.org/teacher-resour…

This Hydrocephalus Awareness Month, make a big impact by asking your members of Congress to join the #Hydrocephalus Caucus! Let’s raise our voices and make a difference together! #HAM2024 hydroassoc.org/congressional-…

Calling all enthusiastic community members! Join us on #WorldHydrocephalusDay, 9/20, at The Today Show Plaza. Your presence and energy can make a huge difference! Sign up using this form and we will get you connected with our group. forms.gle/4gRfhy6hZysTaf…