Lauren Edwards (@lauren_e20) 's Twitter Profile
Lauren Edwards

@lauren_e20

Founder of Gaucher Stories | Advocate for Gaucher Disease and rare disease awareness. #GaucherStories

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linkhttp://www.gaucherstories.com calendar_today18-09-2013 18:14:37

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Lauren Edwards (@lauren_e20) 's Twitter Profile Photo

As a Gaucher Disease patient, I am happy to raise awareness about GD and all rare diseases on #RareDiseaseDay! #Gaucherdisease #showyourrare #ngf Rare Disease Day

As a Gaucher Disease patient, I am happy to raise awareness about GD and all rare diseases on #RareDiseaseDay! #Gaucherdisease #showyourrare #ngf <a href="/rarediseaseday/">Rare Disease Day</a>
Lauren Edwards (@lauren_e20) 's Twitter Profile Photo

It was awesome sharing my experience with #gaucherdisease with @wegohealth a while ago. I recently made a profile on their site and am looking forward to being patient leader for GD! #raredisease #CareAboutRare #ngf

Lauren Edwards (@lauren_e20) 's Twitter Profile Photo

This is why being an advocate is so important to me. To hear from someone in Zimbabwe who came across my website and is thanking me for my influence fills my heart. I will continue to do this work #gaucherdisease #raredisease #gauchersdisease #rareawareness

This is why being an advocate is so important to me. To hear from someone in Zimbabwe who came across my website and is thanking me for my influence fills my heart. I will continue to do this work #gaucherdisease #raredisease #gauchersdisease #rareawareness
Lauren Edwards (@lauren_e20) 's Twitter Profile Photo

Posting this article in honor of National Gaucher Awareness day #gaucherdisease #RareDisease #rareaware gaucherdisease.org/blog/ambassado…

Lauren Edwards (@lauren_e20) 's Twitter Profile Photo

Thank you to the Gaucher Community Alliance for sending this Gaucher awareness magnet! I can’t wait to put it on display! #gaucherdisease #beawareofrare #raredisease #gauchercommunityalliance #gauchersdisease #rare

Thank you to the Gaucher Community Alliance for sending this Gaucher awareness magnet! I can’t wait to put it on display! #gaucherdisease #beawareofrare #raredisease #gauchercommunityalliance #gauchersdisease #rare
Lauren Edwards (@lauren_e20) 's Twitter Profile Photo

Be sure to register for the Gaucher Community Alliance’s Gaucher Community Patient & Family Conference. As a board member, I am so excited about our inaugural conference and look forward to seeing you there! 😄 gauchercommunity.org/get-involved/p… #GaucherDisease #RareDiseaseAwareness

Lauren Edwards (@lauren_e20) 's Twitter Profile Photo

The Gaucher Community Alliance Patient Conference starts Today! We can’t wait to see everyone in Minneapolis! 👋🏾 #GaucherDisease #GCAConference

The Gaucher Community Alliance Patient Conference starts Today! We can’t wait to see everyone in Minneapolis! 👋🏾 #GaucherDisease #GCAConference
Lauren Edwards (@lauren_e20) 's Twitter Profile Photo

Recently posted my own story about my experience with Gaucher Disease to themighty.com Click here to read themighty.com/2016/05/balanc…

Lauren Edwards (@lauren_e20) 's Twitter Profile Photo

It was a wonderful opportunity to be interviewed by Rare Disease Report & share my experience with #GaucherDisease raredr.com/news/gaucher-i…