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When Emily was diagnosed with a rare NUT carcinoma in 2019, she was told the average life expectancy was six to nine months. Genomic testing identified a treatment Emily is still using today, but she wasn't able to access it until her condition deteriorated.

We’re a finalist in the Health Industry Hub Excellence in Communications Awards, in the NGO of the Year category. Voting closes on Monday, so if our content resonates with you, we’d love your support: bit.ly/4e2jZHP

Em has high-grade #endometrialcancer. Unable to work during treatment, she needs to raise money to afford a therapy that is not listed on the PBS for her type of cancer. Show your support at: bit.ly/3z2RLxJ

Wishing a happy Father’s Day to all the incredible dads in our community – those who are looking out for us on our hard days, and those who need some extra support themselves.

We’re striving to create a better world for rare – the time for talking is over, and it’s time for action. And when we address the inequities facing people diagnosed with rare or less common cancers, we’ll improve cancer outcomes for everyone. 📺 Watch: bit.ly/3Z7MS19

Just because you're ‘rare’ doesn't mean you are alone. Our support groups are a great way to meet others who are walking a similar path. All groups are held at 1.30pm (AEDT) via phone or online. To learn more, phone 1800 257 600

A big ✨ thank you ✨to Charlotte and her team from WiseTech Global, who recently took part in the City2Surf and donated more than $25,000 to Rare Cancers Australia!

Although melanoma is not rare, there’s much we can learn from advances in its treatment to apply to rare cancers. Professor Georgina Long AO shared her insights with us at CanForum 2024 last month: bit.ly/3MAcP1G

Jack has relapsed #Neuroblastoma, a rare and aggressive childhood #cancer. Out of options in Australia, CAR T-cell therapy in Italy is providing much needed hope – at the cost of $700,000: bit.ly/3zjBJ2x

When cancer treatment is over, it’s a good idea to voice your questions and concerns, to get a better understanding of what to expect going forward. Download our Rare Cancer Support Guide for more advice on navigating life after treatment: bit.ly/3AVaEDu

#Breaking Government releases HTA Review Report with 50+ recommendations at #PharmAus #reform #auspol24

BREAKING - We were thrilled to join Stephen Jones MP and Dr Jane Tiller this morning for the banning of life insurers from using genetic tests to deny cover or hike premiums on cancer patients💪 #fairforrare

We were pleased to host Melissa and Claire from Cancer Hub recently for a workshop to help better understand each other’s services, how we can cross-refer, and how we can work together. #cancersupport #collaboration

If someone you love is affected by cancer, take some time out today (or any day!) to check in with them and see how they’re really feeling. Your support could make all the difference. Learn more at: bit.ly/3XFzrEm #ruok

Incremental change is no longer enough. We have called on the entire cancer sector to unite behind a Rare Cancer Moonshot – a bold vision to achieve equity for everyone with cancer: bit.ly/3yGInQm

Two-year-old Luna has #neuroblastoma, a rare and aggressive childhood cancer. Her parents are hoping to raise $500,000 to afford the significant daily costs associated with treatment, and give her the best chance of a bright future: bit.ly/44xwuYs

A #rarecancer diagnosis can feel extremely isolating. Our #supportgroups are a great way to connect with people who understand. All groups are held at 1.30pm (AEDT) via phone or online. Phone 1800 257 600 or email [email protected] #youarenotalone

It's Childhood Cancer Awareness Month. At CanForum, we heard about the opportunities and challenges of children's cancers. We’re determined no one is left behind in our Rare Cancer Moonshot. 📺 Watch more at: youtu.be/hlVcZDYF6Dc?si… #RareCancerMoonshot #childhoodcancer

Dry July fundraising officially wrapped on 31 August, and we’re thrilled with the results from our very first year as a beneficiary of the campaign! #dryjuly #thankyou

To fight her diagnosis of stage 4 non-small cell lung cancer, 34-year-old Jemma needs to find $10,000 every fortnight for potentially life-saving treatment. She can’t do this alone, and is reaching out for help: bit.ly/3XwIWED #NSCLC #rarecancer