Will Newman
@willgnew
ex-librarian, footballer, reader, morris dancer, papercrafter. Cystinosis campaigner for 'Ellie in my Head' tinyurl.com/r7o54f4 & chair @cystinosisuk
ID: 21644050
https://tinyurl.com/r7o54f4 23-02-2009 10:27:19
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SAVE THE DATE The 2024 CNE International Cystinosis Conference will be hosted by CystinosisUK in Manchester, England. Scientific meeting on 25th July followed by family meeting on 26th and 27th July. cystinosis-europe.eu
Congratulations to the winner and runners-up for the Student Voice Prize 2023! 🏆 Look out for the winning essay and runners-up blogs which will be available to read on #RareDiseaseDay 📷 The Student Voice Prize Beacon for Rare Diseases #SVP23
So privileged to be part of this scheme to share real life experiences of living with a rare condition with medics who really want to make a difference. Medics4RareDiseases Beacon for Rare Diseases CystinosisUK