CSFLeakMatters
@CSFLeakMatters
There is dignity in a diagnosis. Once a research & clinical OD and nationwide speaker, now a decade completely flattened by spontaneous Spinal Fluid Leaks.
ID:1666836714428530688
08-06-2023 15:57:18
1,0K Tweets
466 Followers
845 Following
Chuck Marvin
@chuckmarvin
Energy, power and climate entrepreneur | Biz Dev @ Spectra Energy Providers | Fan of people and places with good energy, hope, and optimism for the future.
Pam
@pambunnell60
xyz
@riemannsurface1
Neurologist. Masters in mathematics. The greatest enemy of knowledge is not ignorance, it is the illusion of knowledge (S. Hawking).
George Montez
@specialk4u20
Expert๐ฌin breakthrough ketamine assisted therapy treatments for complex mental health disorders.
Tiglath Pileser
@nabatiyehkfour
mathematical physicist !!
KamaGrantham
@2CyILP72i617a
Katie Kelly
@KatieK_Tweets
Advanced Nurse Practioner: ALS instructor, Emergency Nursing with a bit of ICU nursing: wife: mum of boys: overthinker extraordinaire: addicted to puzzles
Sick Social Worker
@sickcaresystems
kyle cimino
@kyle_cimino
live โ love โค explore ๐
Wilfred Gaines
@Wilfred_Gaine
Golf โณ๏ธ lover๐ค
Sarah Rideal
@RidealSarah
TyrrellFoundation
@TyrrellFnd
Patient Advocates. We share Colleen's story to create awareness and support research for spinal CSF leaks. ๐
miss teen crypto
@missteencrypt3
20 years old | #bitcoin ๐ฑ+ NFTs | Event speaker | seen on @foxbusiness | the Daily Zest podcast YouTube.comiss teen cryp| business: [email protected]
Diane
@quigley_diane43
Daniel Rowland
@daniel_rowl2486
Marian
@marianbarragan8
TheObsAnaesthetist
@DrNickB_ObAnaes
Consultant in Anaesthesia & Critical Care - Clinical Lead ObAnaes Limerick ๐ฎ๐ช Tweets own, RT not endorsement โฆโฆ Expect typos
Andreas Yiangou
@DrAndreasY
Clinical Research Fellow Neurology
Austin Heiland
@ToyotaHeilander
Love with cats
@Spread__theLove
CUTE CATS WORLD | Cats Lover | Small efforts to spread love ๐
K, Joseph
@kramers2006
Families for Intractable Pain relief, Adhesive Arachnoiditis, Chrons,Ulcerative colitis,Asbestosis,Electrocution survivor, member National pain council
Natalie Claudia Tate
@NatalieClaudia1
Fun,loving girly girl!!
Emily Ullrichโ๐พโ๐ผโ๐ฝโ๐ฟ
@eullrich11
Anything for a laugh or good cause. Atheist Progressive #Writer #HealthcareJustice #Filmmaker #CPP #Advocate #Activist #CJReform #PoliceReform #BLM! ๐ณ๏ธโ๐#Ally
AloneLonghaulLady
@LadyLonghaul
animal adorer โข impatient advocate โข LC 2020 โข masker โข needs more spoons โข prefers clean air โข some adult language โข #ADHD #HSD #spoonie #pwME #pwLC
Julia DisBABEledโข Irzyk, J.D.โฟ
@juliairzyk
Owner/Head Agent @library_agency. J.D.: Georgetown L'02. Author: Disabilities & the Law, 4th Ed. Tweetsโ legal advice. Lupus Warrior/CPP. She/Her
Enisa Love
@enisa778
I Share What I Love Not What I Hate ๐ฅฐ
The KATT Dazzle
@thekattdazzle
My curse **is** my gift. hEDS+PoTS Intellectual curiosity = my problem. Opinions = MINE. Retweet โ endorsements or represent #Dazzle4Rare
Macy Bernard
@BernardMac58305
Progressive Cat
@ProgressiveCatz
#leftisbest
Faye
@faye_koran
Dr Susan Mollan
@DrMollan
Neuro-ophthalmologist interested in improving patient care through engagement and research.
๐๐ฎ๐๐ฒ ๐๐ฐ๐ต๐ฎ๐ฒ๐ณ๐ฒ๐ฟ
@daveschaeffers
๐๐๐ข๐๐ก๐ฎ ๐จโ๐ฉโ๐งโ๐ฆ๐๐๐ฎ๐จ๐๐๐๐๐ฃ, ๐๐๐ฃ๐๐ง๐๐ก ๐๐ช๐ง๐๐๐ง๐ฎโ๏ธ๐ฅ๐ฉป ๐๐๐จ๐๐ก ๐๐ฃ๐๐ค๐จ๐๐ค๐ฅ๐๐ ๐๐ช๐ง๐๐๐ง๐ฎ๐๐ฟ๐๐ฝ ๐๐๐๐ฅโ๏ธ#LongCovidAware
Mark Blitz
@MarkBlitz6
Legacy Pain Patients Advocate
Andi Buchanan
@andibuchanan
Andrea J. Buchanan, NYT bestselling author. Finalist, 2019 PEN/E.O. Wilson Award for Literary Science Writing for THE BEGINNING OF EVERYTHING
Cora
@corichuc
Csfdisordered
@foggyleakybrain
Previously hobby scientist. Then sufferer of Orthostatic Headache. Now, second half of day & Brain Fog. Advocating for CSF Disorders, CSF Leaks, and IIH.
Katie Tyrrell Weimann, MA, LSW
@KathrynWeimann
Grateful Mama of 3. Advocate. Palliative Care Social Worker Social Work is Social Justice. #spinalcsfleak @tyrrellfnd
Butterfy
@FLButterfly7
Wildly eclectic human: Science, birds, space, butterflies, sex positivity, human rights, parenting Occasionally NSFW/ 18+ She/her
Alice Fricker๐
@FrickerAlice
19, Bedridden for 8yrs with #VerySevereME #SFPN #MCAS #PoTS Chronic Insomnia & Chronic Bladder condition. Mother helps run account.
we keep each other safe
@turnipcub
Disability Justice #maskup (she/her) *broget on Bluesky
Rebecca Devers
@RDevers1991
Odin Suarez
@OSuarez31149
Elizabeth
@elizabethmclaur
Ingrid Schneider
@Ini3007
Leanne
@leanne89wiley
ใใใใ
@kuu_majo
่ณ่้ซๆถฒๆผๅบ็(2019.3ใ) BP5ๅๆธ ๆฒป็ใๅฏพๅฆๆณใซใคใใฆ็ฅใใใใฏใใใพใใ๏ผๅฐพ้ใงๆฒป็ไธญ๏ฝ้ข่ฅฟๅจไฝ
ใ ใใตใ
@XRPgOQHsJQfkioD
ๆ็ดใขใซใซใใใใใช๐ ใจใคใใผใคในใณใใญใใณใซๅๅฟ่ ใใปใผCFGFใๅจใ่ณ่้ซๆถฒๆผๅบ็ๅฏ่งฃ(BP1ๅ)ใจใผใฉในใใณใญใน็ๅ็พคใ่ช่บซใฏ็ฒ็ถ่ บ็ๅ จๆใๆงใ ใชไธ่ชฟใใใไบก็พฉๆฏ(ๅคๅNPD)ใฎใใฉใฆใใiHerbCNJ6779ใๅบไผใใใจใญๅขใใญใใฏใใญใผใชในใฏๆ่ณ่ๅณใใ
ringo25
@ringo25ringo25
2018ๅนด ้ ๆคในใฉในใใง่ณ่้ซๆถฒๆผๅบ็็บ็ 2019ๅนดใใฉใใใใใๆฝ่ก 2022ๅนดใใผใใงไปไบๅงใใพใใ 2023ๅนดใใฉใใใใใๆฝ่ก ๅฑ้บใชใใจใใๆฝ่ก้ขใๆฒๆป ใใใ ่ณ่้ซๆถฒๆผๅบ็ใฎๆคๆปๆฒป็ใๆฉๆใซๅบๆฅใใใใซใชใฃใฆๆฌฒใใ๏ผ๏ผ ใใฉใญใผๆฐใซใชใฃใใใใใพใใ็งใ็กๆญใใฉใญใผOKใงใใ
โ ใกใใกใโ
@cha_cha_db
ๅป็ไฝๅถๆนๅๆดปๅ๐ฅ้ ๅผตใฃใฆใพใ (เนูโขฬฯโขฬ)ู ๐#csfleak ใใฉใญใผใฏๆฐ่ปฝใซใใฆใใ ใใโฃ๏ธ https://t.co/AXkJcc2NCV่ณ่้ซๆถฒๆธๅฐ็ ๐ง ่ณ่้ซๆถฒๆผๅบ็ ๐ง ่จๅ็๐ฅgaslighting(TใผT)
Susan Fairlie Hall
@FairlieHall
Wanting there to be more recognition for the impact ME/CFS has on peoples lives, hoping that better support will be provided.