Each month, chordoma patients and caregivers meet on Zoom to support and learn from each other, make new friends, and exchange information. Learn more and register for our June support groups: chordoma.org/events

New paper co-authored by our Director of Patient Services underscores the many quality-of-life challenges faced by chordoma survivors: bit.ly/survivorship_p…. It's an outcome of our survivorship survey, which helped guide our growing suite of resources: chordoma.org/survivorship

Our May newsletter is here: bit.ly/CF_0524 📨 Catch up on a chordoma quality-of-life paper, immunotherapy strides, our new Chordoma Foundation Labs account on X, our upcoming Chordoma Community Day in Chicago, and much more! (Subscribe to future updates: chordoma.org/newsletter)

Huge congrats to Owen on his high school graduation! To help celebrate this milestone, he & his family organized an amazing fundraiser to support our mission, for which we're very grateful. 🎓
(Feeling inspired? Learn more about hosting a fundraiser: chordomafoundation.org/fundraise)

A new paper from National Cancer Institute's MyPART/NCI CCR Pediatric Oncology Branch team sheds light on possible inherited genetic predispositions to chordoma. Learn more about their findings and potential implications for patients: chordomafoundation.org/latest-updates…

Our newsletter brings you the latest in chordoma research, events, ways to propel our mission, and more. Subscribe today!
chordomafoundation.org/newsletter

Drug development for rare cancers is often untenable for business. But by making preclinical research much faster and easier we aim to make repurposing or developing drugs for chordoma feasible and even attractive for companies. Thanks to Brad Loncar for highlighting our work!

'It was eye-opening to see the tremendous work CF Labs scientists are putting in to increase chordoma treatment options. The visit instilled in my son a new willingness to beat this monster!' Many thanks to Theodore & Dimitrios for their visit to — & support of — Chordoma Foundation Labs!

We're advancing a comprehensive research roadmap through complementary initiatives that span every stage of treatment development.
chordomafoundation.org/path-to-cures/

Big thanks to Henrietta Page, who hosted an incredible comedy fundraiser to benefit the Chordoma Foundation. 'I was shocked how many people supported this event (including people from my graduating class years & years ago)!' Learn more about fundraising: chordoma.org/fundraise

Join us July 27th for our Chordoma Community Day in Chicago! This special day will be filled with updates on the latest research, sessions to help manage various quality of life concerns, & opportunities to learn how you can make a positive impact. chordomafoundation.org/event/2024-cho…

'We love him, we miss him, and we love to share him with everyone.'
Read more about Jared, whose chordoma journey brought unforgettable moments of courage, love, and hope.
chordomafoundation.org/stories/jared-…

What are the ways chordoma is treated? Explore our info on surgery, radiation, drug therapies, and clinical trials for chordoma.
chordomafoundation.org/treatment-opti…

Recognizing the biologic spectrum across which chordoma behaves, the inclusion of systemic therapy for high risk patients is increasingly important along with supramaximal surgery and radiation. Multidisciplinary work is key and more work is needed…Chordoma Foundation MD Anderson Cancer Center

A heartfelt thank you to everyone who joined us for our Chordoma Community Day in Houston! We couldn't have asked for a better day. 💙
chordomafoundation.org/event/2024-cho…

Join us for our May Virtual Support Groups!
🗓 Patients & survivors: 05/21 @ 6pm EST
🗓 Caregivers: 05/15 @ 7pm EST
🗓 Adolescents & young adults: 05/05 @ 6pm EST
🇩🇪 German speakers: 05/21 @ 5:30pm GMT
🇳🇱 Netherlands: 05/15 & 05/17 @ 5:30pm GMT
chordoma.org/events

ICYMI, our latest Annual Report is here: chordoma.org/AnnualReport20… Grateful to our donors, collaborators, and team members for contributing to our most significant year of progress yet — thank you for bringing so much hope to everyone facing chordoma!

We're here to support you with every part of your chordoma experience — including after treatment. Challenges with pain, fatigue, emotions, mobility, and more are common for chordoma survivors, and we offer a growing number of resources that can help.
chordomafoundation.org/survivorship

Drugs targeting TBXT (brachyury) are needed for chordoma and may benefit other cancers too. But developing them is currently tough. To make it easier Chordoma Foundation Labs is creating a set of capabilities to minimize the time, cost and risk involved. Here’s one, more to come.

3 days until Chordoma Community Day in Houston! There's still time to register and join us for an unforgettable day with fellow survivors, leading experts like Dr. Raza and our founder Josh Sommer, & the chance to empower your journey with new insights.
chordomafoundation.org/event/2024-cho…