Rare Cancers Australia(@RareCancers) 's Twitter Profileg
Rare Cancers Australia

@RareCancers

We work to improve the lives and health outcomes of Australian patients, carers and families affected by a rare or less common cancer diagnosis.

ID:754466798

linkhttps://www.rarecancers.org.au calendar_today13-08-2012 05:04:31

7,0K Tweets

4,1K Followers

3,1K Following

Follow People
Rare Cancers Australia(@RareCancers) 's Twitter Profile Photo

We broadly welcome the recommendations of a report into the inequities facing people with rare and less common . Read more at: bit.ly/3KtmqGN

We broadly welcome the recommendations of a #SenateInquiry report into the inequities facing people with rare and less common #cancer. Read more at: bit.ly/3KtmqGN
account_circle
Rare Cancers Australia(@RareCancers) 's Twitter Profile Photo

Maureen’s three daughters are determined to help their mum survive her extremely rare form of cancer, pleomorphic sarcoma, which is growing inside her heart. They are hoping to raise $25,000 towards potentially life-saving immunotherapy treatment: bit.ly/48X8oqz

Maureen’s three daughters are determined to help their mum survive her extremely rare form of cancer, pleomorphic sarcoma, which is growing inside her heart. They are hoping to raise $25,000 towards potentially life-saving immunotherapy treatment: bit.ly/48X8oqz
account_circle
Rare Cancers Australia(@RareCancers) 's Twitter Profile Photo

is an aggressive childhood brain cancer which has been difficult to research, making treatments elusive. Learn more this DIPG Awareness Day via our Knowledgebase: bit.ly/44Iu2OR

#DIPG is an aggressive childhood brain cancer which has been difficult to research, making treatments elusive. Learn more this DIPG Awareness Day via our Knowledgebase: bit.ly/44Iu2OR
account_circle
Rare Cancers Australia(@RareCancers) 's Twitter Profile Photo

Rare Cancers Awareness Day is coming on 26 June. Stay tuned for resources and info about how you can help raise awareness and show your support for rare.

Rare Cancers Awareness Day is coming on 26 June. Stay tuned for resources and info about how you can help raise awareness and show your support for rare.
account_circle
Rare Cancers Australia(@RareCancers) 's Twitter Profile Photo

Connecting with others facing a journey can bring a sense of understanding and comfort, and remind us we are not alone. RCA are a safe, comfortable space to learn, share, or just listen. Phone 1800 257 600 to register

Connecting with others facing a #rarecancer journey can bring a sense of understanding and comfort, and remind us we are not alone. RCA #supportgroups are a safe, comfortable space to learn, share, or just listen. Phone 1800 257 600 to register #youarenotalone
account_circle
Rare Cancers Australia(@RareCancers) 's Twitter Profile Photo

Dry July starts in just a few weeks! This year, you can go alcohol-free for the month while also supporting Rare Cancers Australia – because nobody should have to face cancer alone. Register at: bit.ly/3wtcpWu

Dry July starts in just a few weeks! This year, you can go alcohol-free for the month while also supporting Rare Cancers Australia – because nobody should have to face cancer alone. Register at: bit.ly/3wtcpWu
account_circle
Rare Cancers Australia(@RareCancers) 's Twitter Profile Photo

Em had to give up work when diagnosed with high-grade endometrial cancer. She is hoping the generosity of others will help her fund the treatment she needs. Show your support: bit.ly/3QDpbbZ

Em had to give up work when diagnosed with high-grade endometrial cancer. She is hoping the generosity of others will help her fund the treatment she needs. Show your support: bit.ly/3QDpbbZ
account_circle
Rare Cancers Australia(@RareCancers) 's Twitter Profile Photo

We’ve welcomed Sarah Benger and Shawn Clackett to our team! Sarah joins us as Head of Policy and Public Affairs, while Shawn is Senior Manager Data, Insights and Policy. Together they’ll help achieve our ambitious policy agenda.

We’ve welcomed Sarah Benger and Shawn Clackett to our team! Sarah joins us as Head of Policy and Public Affairs, while Shawn is Senior Manager Data, Insights and Policy. Together they’ll help achieve our ambitious policy agenda.
account_circle
Rare Cancers Australia(@RareCancers) 's Twitter Profile Photo

A cancer treatment plan includes everything from testing and recommended treatments to expected side effects and results, plus what’s next. Our Rare Cancer Support Guide helps patients understand what questions to ask: bit.ly/3OInM2N

A cancer treatment plan includes everything from testing and recommended treatments to expected side effects and results, plus what’s next. Our Rare Cancer Support Guide helps patients understand what questions to ask: bit.ly/3OInM2N
account_circle
Rare Cancers Australia(@RareCancers) 's Twitter Profile Photo

CanForum 2024 stands poised as the catalyst for a ‘Rare Cancer Moonshot’, bringing together patients, leaders and experts in cancer for big thinking and problem solving.Let us unite, think expansively, be brave and go beyond. Let us make a meaningful impact at .

CanForum 2024 stands poised as the catalyst for a ‘Rare Cancer Moonshot’, bringing together patients, leaders and experts in cancer for big thinking and problem solving.Let us unite, think expansively, be brave and go beyond. Let us make a meaningful impact at #CanForum2024.
account_circle
Rare Cancers Australia(@RareCancers) 's Twitter Profile Photo

The parents of two-year-old Luna are doing everything they can to save their daughter, who has been diagnosed with stage IV , a rare . To access potentially life-saving treatment overseas, they need to raise over $500k: bit.ly/44xwuYs

The parents of two-year-old Luna are doing everything they can to save their daughter, who has been diagnosed with stage IV #neuroblastoma, a rare #childhoodcancer. To access potentially life-saving treatment overseas, they need to raise over $500k: bit.ly/44xwuYs
account_circle
Rare Cancers Australia(@RareCancers) 's Twitter Profile Photo

When you go Dry this July, you can choose Rare Cancers Australia as the beneficiary of your donations! It’s free to register, with so many benefits for your health. Sign up at: bit.ly/4aXk26L

When you go Dry this July, you can choose Rare Cancers Australia as the beneficiary of your donations! It’s free to register, with so many benefits for your health. Sign up at: bit.ly/4aXk26L
account_circle
Rare Cancers Australia(@RareCancers) 's Twitter Profile Photo

This National Myeloma Awareness Month, you can head to our Knowledgebase to learn more about the rare cancer that develops from plasma cells in bone marrow: bit.ly/3QPDYR1

This National Myeloma Awareness Month, you can head to our Knowledgebase to learn more about the rare cancer that develops from plasma cells in bone marrow: bit.ly/3QPDYR1
account_circle
Rare Cancers Australia(@RareCancers) 's Twitter Profile Photo

A huge thanks to organisers of the Liv Sproule Memorial Round at the weekend, raising awareness and funds to support Australians diagnosed with rare and less common cancers in memory of a beloved hockey player: bit.ly/44oYwVH

A huge thanks to organisers of the Liv Sproule Memorial Round at the weekend, raising awareness and funds to support Australians diagnosed with rare and less common cancers in memory of a beloved hockey player: bit.ly/44oYwVH
account_circle
Rare Cancers Australia(@RareCancers) 's Twitter Profile Photo

RCA Support Groups exist to exchange information, to provide support, and to remind people that they are not alone. To learn more or register, phone 1800 257 600 or email [email protected]

RCA Support Groups exist to exchange information, to provide support, and to remind people that they are not alone. To learn more or register, phone 1800 257 600 or email support@rarecancers.org.au #youarenotalone
account_circle
Rare Cancers Australia(@RareCancers) 's Twitter Profile Photo

At age 17, James was diagnosed with a very rare . Seven years and five surgeries later, he needs a different type of treatment – but at a cost of $100,000, this option is unstainable. Please support him if you can: bit.ly/3ucT4I5

At age 17, James was diagnosed with a very rare #livercancer. Seven years and five surgeries later, he needs a different type of treatment – but at a cost of $100,000, this option is unstainable. Please support him if you can: bit.ly/3ucT4I5 #youarenotalone
account_circle
Rare Cancers Australia(@RareCancers) 's Twitter Profile Photo

Shane was just 35 when he passed away from colorectal cancer. His story inspired neighbour and friend Kellie to take on the last month, raising funds and awareness for people with rare cancers.

Shane was just 35 when he passed away from colorectal cancer. His story inspired neighbour and friend Kellie to take on the #kosichallenge last month, raising funds and awareness for people with rare cancers.
account_circle
Rare Cancers Australia(@RareCancers) 's Twitter Profile Photo

It’s a good idea for patients to take a rough timeline of treatments and procedures to appointments, to ensure that a clear and correct record is on hand. Our Treatment booklet has more tips on navigating the health system rarecancers.org.au/page/172/treat…

It’s a good idea for patients to take a rough timeline of treatments and procedures to appointments, to ensure that a clear and correct record is on hand. Our Treatment booklet has more tips on navigating the health system rarecancers.org.au/page/172/treat… #RCSG #cancersupport
account_circle
Rare Cancers Australia(@RareCancers) 's Twitter Profile Photo

Beloved grandmother Carol is facing cancer for the fourth time. Her family dreams of Carol seeing her 11 grandchildren grow up, but with the price tag of $80,000, treatment may be out of reach. Please support this family if you can: bit.ly/3QEM4KZ

Beloved grandmother Carol is facing cancer for the fourth time. Her family dreams of Carol seeing her 11 grandchildren grow up, but with the price tag of $80,000, treatment may be out of reach. Please support this family if you can: bit.ly/3QEM4KZ
account_circle