Rare Diseases Ireland
@RareDiseasesIE
Equitable access to healthcare and opportunity for all!
RDI - advocating for equitable access for the 300,000 people in Ireland living with rare diseases.
17-01-2012 12:42:06
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Stephen Donnelly Chief Medical Officer Department of Health
We agree - much of the burden for evidence generation in support of #NBS should be performed at EU level. Almost 4 years of NSAC & only ADA-SCID has been added to panel HSE Ireland. Ireland now ranks 23rd in Europe. In 2020 we were 20th.
