Yet, in NY + LA, they’re seriously considering a mask ban for protestors + regular folk bc…

Wait, I’m not sure why again.

'Make Home Less Fun!' - A Thread about Dangerous Advice

One of the things which parents are frequently told when their children are struggling to attend school - especially, but not exclusively, when absence relates to anxiety and mental health - is to 'make home less fun'.

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For The Sick Times I am looking to speak to people living in the global south who have #LongCovid , POTS and/or dysautonomia and experience heat intolerance as a result of their illness. email me at fionalowenstein @ gmail dot com, and I can share more :)

But when Black content makers many do whom were sharing LOCAL news brought this up ? It got treated as a nuisance

And again THIS THREAD HAS NO CITATIONS

Disabled & high risk people are feeling betrayed & outage by proposed mask bans that are effectively the new Ugly laws in this fascist dystopian eugenic society

No one has our backs except us. Both parties do not deserve our votes

I feel very alone w/ so much rage

How many folks w/LC or another IACC **other than from TBI** have done a glucagon stim test? Asking bc of a study I’ll post below.

If inclined, RTs appreciated, I think not many have done this testing!

If you’ve done it, what’s your IACC and your peak growth hormone level?

Another clue in the brainstem.
' a similar switch from glutamate to GABA in the dorsal raphe neurons of these individuals, suggesting that the mechanisms observed in mice are relevant to human PTSD.'
#LongCovid
Katrin Boniface

psypost.org/neurobiologist…

The man tied lengthwise to the hood of a military jeep in the West Bank by Israeli forces has been with me for days. His name is Mujahed Abadi. This potentially constitutes the war crime of using human shields *but also* a number of other war crimes. 🧵

i missed this a few weeks ago

this reflection on 'academic work' as not mattering, as a strategic lie to make it not political - holy shit

kendraalbert.com/2024/06/07/you…

My Unite to Fight presentation is up on YouTube!

Structured in three parts:
1. My illness timeline
2. Why GET/CBT is useless and harmful
3. The Oxford research project I am currently part of.

My 'committing to the bit, but pacing' (Melissa Mazur phrase!) re. science and language practice is to review subjects through FR/IT/PT vids. Folks often speak slowly when presenting for the general public, & I can then sing to the cat re. 'cellules' :
youtube.com/watch?v=KjY6ru…

Hey #LongCovid friends,
Anyone else out there have Long Covid for four years, then get a cancer diagnosis? ‘Cause that’s me. 😳
Please retweet so we can find each other to discuss the intersection of Long Covid and Cancer. 💚

1. One of my favorite herbs (except when I bump into it) is stinging nettles. It’s delicious as a sautéed green, or in soups/tea. It’s a great fertilizer & has a range of medicinal properties. One of them is mast cell stabilization

The 1st issues that hit me when I got sick in 2005 were idiopathic chronic urticaria & angioedema. I would wake up with my eyes swollen shut, covered in hives, every day for a year. (I now know was MCAS.)

It was awesome to have Dr. Afrin (MCAS expert) present. His 3rd talk, this

Front & back lacing mid-18th c. inspired stays
- made to your measurements
- straps and stomacher
- English 100% cotton coutil w/cotton twill or canvas, German plastic boning
- your choice of printed cotton or linen outer fashion fabric
- 550CAD plus shipping

shout out to Taylor Lorenz @ VidCon on You're Wrong About... saying that disabled people are still in isolation and the rest of the world has the luxury to complain about being in “lockdowns” for two fucking weeks four years ago

Thanks to STAT and Beth Pollack for putting THROUGH THE SHADOWLANDS: A SCIENCE WRITER'S ODYSSEY INTO AN ILLNESS SCIENCE DOESN'T UNDERSTAND on this year's heath and science summer reading list. statnews.com/2024/06/25/sum… #chronicillness #mecfs #longcovid

Glad to see this pop up in my feed today! Julie Rehmeyer's 'Through the Shadowlands: a science writer's odyssey into science doesn't understand' belongs on best lists.

This recent study came out with little fanfare, but it’s something that overlaps with TBI & #LongCovid (two of my passions)
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Growth hormone treatment for neurologic symptoms of post‐acute sequelae of COVID‐19 ascpt.onlinelibrary.wiley.com/doi/10.1111/ct…

Whitney Dafoe & Jen Brea were the first two ME patients I was exposed to. I had ME at the time but I didn’t know it. It was mild & undiagnosed & my main takeaway was “wow, I’m glad whatever I have isn’t *that.*” As I got sicker, it slowly became clear that I *did* have *that.*