About half the time Sjögren's occurs in the presence of another autoimmune connective tissue disease, according to Sjögren's Foundation. One of these diseases is Lupus. Yesterday was #WorldLupusDay so we're re-sharing this post from Lupus Alliance.
#autoimmune #patientadvocacy #lupus

In April we launched our WhatsApp support group. We're 86 members strong and growing! Are you living in Ireland and would like to join? Email [email protected] with your name and the county you live in and an admin will add you. #Sjögrens #Sjogrensawareness #autoimmune

We are so happy to get to 500 followers today 🥳 Thank you for all of your support!!!

#sjögrens #sjogrens #sjogrens awareness #autoimmunedisease #500followers #chronicillness #patientadvocacy

Although pediatric #Sjogren Disease, or diagnosis of SD before the age of 18 years, was previously considered quite rare, cases are increasingly reported. ~ Unique Aspects of Pediatric Sjögren Disease #Sjogren sAwarenessMonth ncbi.nlm.nih.gov/pmc/articles/P…

Our co-designed study was selected as the best poster from the patients perspective by the Dutch Sjögren's Advocacy Group @ISSJD2024

A testament to all the hard work and advocacy of Sjögren's Ireland and the support of all our PPI collaborators
RCSI School of Pharmacy and Biomolecular Sciences

#ISSJD2024

A new tool for stratifying children with suspected Sjögren's disease

Linked Comment by Coziana Ciurtin & Elizabeth C Jury Jury Lab thelancet.com/journals/lanrh…

Massive congratulations Dr Joan Ní Gabhann-Dromgoole and Sjögren's Ireland … such important work

We were thrilled to win this award today. It was such an honour to be nominated by our peers in Netherlands 🥳. Many thanks to our researcher collaborators in RCSI PPI Ignite Dr Joan Ní Gabhann-Dromgoole Michelle Flood for their commitment to #Sjogrens research through PPI.

Divi Cornec addressing the 🐘 in the room. What is #Sjogren ? Current CCriteria are limited in many aspects for several patients with “borderline” values for Schirmer, salivary flow, focus score etc. is a schirmer of 7 normal for a 22yo? And why is USF0.13ml/mim normal? #ISSjD2024

Another woman with decades of ' #MECFS ' diagnosis who ended up with autonomic #neuropathy followed by Sjogren's syndrome diagnoses. MDs: don't let #chronicfatigue fool you! Do a thorough workup for #autoimmune disorders. #Dysautonomia #neurotwitter #MedTwitter #RheumTwitter

#Sjogrens disease “endotypes➡️towards precision medicine”
🔑papers📖👇
① symptom based…doi.org/10.1016/S2665-…
② transcriptional based…doi.org/10.1038/s41467…
③ combination…doi.org/10.1016/S2665-…

👉guides potential future treatment strategies✨

#ISSjD2024

Delighted to share ⁦HSE Ireland⁩ ⁦Royal College of Physicians of Ireland⁩ guidelines on care of #pregnancy with Rheumatological disorders ⁦Arthritis Ireland⁩ ⁦CARD⁩ ⁦National Women & Infants Health Programme⁩

#BSR24

Key recommendations in reproductive health for Sjögren's (1 and 2) and Behçet's patients (3)

#pregnancy #reproductivehealth

Fantastic poster presentation by Dr Leslie Laing ISSjD2024

Watch this space for novel treatments of dental caries in #Sjögrens

#ISSJD2024

🔸Effective topical treatment for sicca symptoms

💎 Pearls from the #Guidelines session at #BSR24 :

👁️ Topical treatments for dry eye symptoms in #Sjogren disease
📈 Biomarkers to help predict development of lymphoma in Sjogrens

BSR

#BSR24 Great presentation by Liz Price in summarising new BSR #Sjogren Guidelines. A lot of work done & deserved huge credits 👏 Link to guideline: academic.oup.com/rheumatology/a…

✅ New term: Sjogren’s disease
✅ whole life course approach
✅ great graphical abstract

Thanks Coralie Bouillot for speaking about Neuro Sjögren’s at International Symposium on Sjögren’s Disease 👏👏👏

This is a huge unmet need for patient around the world. We need more awareness of how common & disabling these symptoms are.