UK Government Petition - Fund Continued Access for CF Modulators

Please can EVERYONE IN UK SIGN and EVERYONE SHARE! This is an entirely NEW petition and we need every single person's signature on this.

Please save the lives of children like Rufus 💜

petition.parliament.uk/petitions/6506…

You may have seen the flags flying from the towers and steeples of Cambridge colleges today to mark the royal birthday but did you notice a more unusual celebration at Trinity? For years the statue of Henry VIII over the Great Gate has held a wooden chair leg after the original…

When I was ten I wrote to Stephen Fry to tell him how much I liked “the Harry Potter tapes” and he replied… yesterday he lent his voice to the audio of my book Jeoffry: The Poet’s Cat, out from Spiracle Audiobooks on 1 Dec (not on tape), and I was just as thrilled as when I was ten.

telegraph.co.uk/news/2023/11/1…

The coffin of the Unknown Warrior lying in state in Westminster Abbey before burial, in 1920.

#LestWeForget2023

In the Telegraph today will be a very informative article on the recent news for #cysticfibrosis in regard to the draft recommendation from NICE on #Kaftrio and modulator drugs for CF.

And guess who's mentioned!

Its also on their website (link in comments)! #CFCommunity

So excited! I am exhibiting my new Animal Alphabet Print range Artificationuk alongside other amazing creatives at the W3 Gallery.
Come along and say hello.
#Creative #creatives #art #art ist #children #children s #children sbooks

Please like, share, retweet and make your own!
#SaveUs #CysticFibrosis #VertexSaveUs #LivesBeforeProfit #Kaftrio Cystic Fibrosis Trust Cystic Fibrosis Foundation Vertex Pharmaceuticals Vertex Save Us Strawfie Challenge BBC Yorkshire BBC News (UK) ITV News Channel 4 News NICE NHS BBC News (UK)round Guardian news The Times and The Sunday Times

'Knit' Glass Sculptures by Carol Milne #WomensArt

#CFCommunity #CFParents #CysticFibrosis #CFCarers

If like us, you're still numb at the uncertainty of what the recent news means for your little ones future. I want you to know you can reach out to me, my wife and my family, to talk.

You're not alone and we will fight together.

It's diagnosis day round two, the uncertainty of what life will hold for Rufus. It's taken my day and will probably take many more in the weeks to come.

Thanks to those of you offering support, I'll explain below some of the things you can do (and will add as I find more!)...

Don’t miss our ‘Festival Extra’ on Saturday November 11th: 2pm or 3.30 at Chiswick Library. Lisa Read + Kim Ansell will read and sign copies of their new Inky Flamingo book Maximus the Mouse. Ages 2-7. Event free, but tickets must be booked here: ticketsource.co.uk/chiswickbookfe…

Thank you so much Chiswick Book Festival for adding an extra day to your amazing Book Festival, just for Maximus the Mouse.
Kim and I are are so excited to be at Chiswick Library on Sat 11th Nov. We will be reading Maximus, signings books & getting creative with our colouring sheets 🐭🌸🦩

We didn’t read Maximus the Mouse Chiswick Book Festival this year as we were both unwell HOWEVER we’re excited to say an extra day has been added just for us! We will be @ Chiswick Library Sat 11th Nov. Come along & say hello, hear Kim read and get creative with our colouring sheets.🐭🌸🦩

Watching the Kiwi v Arg game in the stadium, it is so clear that the AB players understand the fundamentals of the game completely.

At this rate Avanti West Coast should at least build Preston a flash new cab rank, equipped with late night coffee facilities for the drivers.

Emma Kunz (1892-1963), Swiss healer, visionary and outsider artist who published three books and produced many drawings #WomensArt

I’m not quite sure how to explain what’s happened tonight, because it’s still happening - but here goes…

At 4:40pm I jumped on a train from London to Edinburgh..

It was comfy, it was quiet

In hindsight, too good to last…

Lovely poetry event today ⁦Chiswick Book Festival⁩ with ⁦Debra Bertulis⁩ and #WhereDoWishesGo ⁦⁦Bounce Sales and Marketing ❤️📗⁩ ⁦Bounce Waterstones⁩

This is the 90th birthday cake we presented to Michael Frayn Chiswick Book Festival ArtsEd, displaying some of his best-known novels, plays, memoir ‘Among Others’ + Olivier Awards candlestick. Thanks to amazing local baker/cake decorator Sara Gronmark - + sponsor ArtsSociety Chiswick.