News Release - Missing Person, Perth Avenue and Bloor Street West area
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Masked at the Movies is back on June 8 at the Textile Museum of Canada with a perfect, anti-establishment comedy. I can't think of a better way to spend a Saturday afternoon. Any questions or concerns, send me an email or DM! 🍕🎸

💪 Don't underestimate the power of physical activity for healthy aging!

A new study finds that following WHO physical activity guidelines, even starting later in life, improves physical health and quality of life in older women 💃🤸

It's never too late to start! 🌟

Loved listening to these folks. Another tremendous event in PxP series. If 'for patients, by patients' piques your curiosity check out: pxphub.org Many patients feel PxP is providing a space for patient leadership that's rare ... Dr. Dawn Richards, PhD (Follow Dawn Richards)

Co-production Week Wales
Wythnos Gydgynhyrchu Cymru

Save the date 20th-24th May 2024
Cadwch 20–24 Mai 2024 yn rhydd!

Join the Conversation
Ymunwch â'r Sgwrs

#CoproductionIsFundamental
#MaeCydgynhyrchuYnHanfodol

What are the key challenges and hidden costs of public involvement? We held an event last year exploring this with members of the workforce presenting evidence and experience to NIHR leaders.

Find a full report, including recommendations, here ⬇️nihr.ac.uk/documents/the-…

So #PatientEngagement peeps - this might interest you. Fun fact - the SPOR Evidence Alliance had a priority setting activity last year to prioritize 20 project ideas submitted by patients/the public and those that were finded are co-led by patients/public. 1/

Patient authorship of medical research publications: An evolution, revolution, and solution? Prof. Karen Woolley Dr. Dawn Richards, PhD BMJ Patient Editor Open Access onlinelibrary.wiley.com/doi/abs/10.100…

#CANTRAIN - Clinical Trials Training Programs is now accepting your applications for master's, doctoral and postdoc studentships and fellowships until Friday May 31, 2024. APPLY.
bit.ly/3UP6jcd

...this way and get a conversation going about what we need to improve #patientengagement in pharmaceutical policy in Canada. (7/7)

...
- how patient engagement is integrated into the pharmaceutical system,
- gaps/challenges in patient engagement strategies and practices, and
- opportunities/next steps for patient engagement

I'm open to discussing what I did in other ways but thought I'd start...(6/7)

...I also consulted with a small and very knowledgeable group of patient partners (Patient Commando dr. marney paradis Dr. Dawn Richards, PhD Linda Wilhelm Maureen Smith).

Over the coming weeks, I would like to share some of the work I did on this platform, like: ...(5/7)

...across the entire pharmaceutical system – yes, this is incredibly massive and has immense scope. Most days I felt like I was floating at 50,000 feet but I also felt quite privileged to have the opportunity to do some deep thinking about these issues... (4/7)

...drug pricing, regulatory drug approvals, health technology assessment, and even drug shortages (by the way, I’m experiencing a drug shortage right now!). With staff at Health Canada, we scoped out the work so that I would do a broad assessment of #patientengagement ..(3/7)

to create a Canadian Drug Agency (CDA).” – more info about CDATO here: lnkd.in/eQf-g_tW

I have over fifteen years experience as a patient partner and working with patient organizations such as CAPA to share patient perspectives in research...(2/7)

It is not broadly known that I worked as very possibly the first Patient Advisor at Health Canada from January to March 2024. I worked with the Canadian Drug Agency Transition Office (CDATO) who is broadly tasked with “developing options for a vision, mandate and plan... (1/7)

📢 Are you or someone you know a patient advocate? PCORI is offering scholarships to bring your voice to a national healthcare stage. Share this opportunity! #PCORI24

Details ➡️ pcori.me/3W1MnE0

Not sure about using the word 'stakeholder' in research? These are 2 great resources to share a bit about its history and connotations. Thank you Runcie C.W. Chidebe for sharing them with me
blogs.lse.ac.uk/impactofsocial… and ncbi.nlm.nih.gov/pmc/articles/P…

Check out our new report! Community feedback for improving cancer care for sexual and gender diverse folks.

Exciting new opportunities on our #clinicaltrials job board:

✔️ Clinical trials coordinator
✔️ Respiratory research program manager
✔️ Research coordinator
✔️ Clinical trials nurse coordinator

And more: bit.ly/42qR9uh

#clinicalresearch #jobalerts #bchiring