The VHL Awareness month walk is a few short weeks away - Are you joining us on May 18th? 👣

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Are you participating in VHL Awareness Month?

This year, we're inviting the VHL community to join us to walk for VHL Awareness on May 18th 🚶 🚶‍♀️

Register today!

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Extra Extra! The VHL Alliance spring newsletter is available now! 📰

Click the link below to learn about exciting research updates, ongoing advocacy efforts, the results of our community survey, and more!

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The 16th International VHL Medical Symposium, hosted by the VHL Alliance and the San Raffaele Scientific Institute, will bring scientists & clinicians together for two days of collaboration, idea exchange, and thought leadership.

Register now: buff.ly/3xCzNAW

Have you registered for the VHL Alliance Awareness Walk on May 18th?

Your support will help us continue to fund VHL research through our VHL research grants!

Register today: buff.ly/3v6TK1Y

Since the inception of our VHL research grant program we've deployed more than $3 million to support VHL research❗

Want to get involved? You can help us raise funds to support VHL research this May.

Register for the VHL Awareness Month walk here: buff.ly/3v6TK1Y

Get your walking shoes laced up - The VHL Awareness Month walk is on May 18th!

Help us raise $25k to support critical patient support programs.

Register here: buff.ly/3v6TK1Y

Thank you to our partners at KidneyCAN for their work on the Advocacy front earlier this month!

We can't wait to continue to advocate for VHL research support at the federal level 🏛

'I wasn’t really sure what to expect at my first family meeting. I remember thinking:

'OK, there’s a bunch of people affected by VHL in this room, now what?'

The VHL Alliance Family Meeting made me realize I wasn’t alone.

Register here: buff.ly/3uEu3pd

Is anyone else already excited for the next VHL Alliance Young Adult Retreat?

See you in February 2025!

#vhlawareness #vhlcommunity

A massive THANK YOU to our rockstar patient advocates!

Our advocacy efforts would not be possible without your support 💪

Be a part of VHL Alliance history by joining walkers all over the country in the first ever VHL walk!

You can help us raise $25,000 to support VHL research, innovation, and all of the other life-changing VHL Alliance programs!

Sign Up Now 👣
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Are you registered for Family Weekend?

Join us in Dallas Sept 6-8 to connect with the VHL community and learn directly from VHL experts at UT Southwestern.

Secure your spot: buff.ly/3wwv977

There is still time! Register now for the 2024 Spring Advocacy Days hosted by KidneyCAN.

We need your help to keep kidney cancer research funding in place.

Register today at: buff.ly/48zV0s4

It was great to engage with lawmakers on the hill to create change in rare disease policy!

We joined a mighty cohort of patient advocates alongside the EveryLife Foundation 💪

Join the VHL Alliance by participating in the 2024 Spring Advocacy Days hosted by KidneyCAN.

To sign up please visit: buff.ly/48zV0s4

Our largest Young Adult Retreat is complete! ✅

Last weekend, more than 25 young adults with VHL gathered in Washington, D.C. for a weekend of connection, learning, and collaboration.

Join our mailing list below to learn about future events!

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We're ecstatic to welcome UF Health to our Clinical Care Center network!

Read more here: buff.ly/42QCRVZ

Our friends at Triage Cancer are hosting an event on Managing Medical Bills on Feb 27th!

In this webinar you'll learn practical steps to manage medical bills, including how to negotiate your bills and set up payment plans.

Register today: buff.ly/48rBEVY

Mark your calendars! 🗓️ Family weekend is Sept 6-8 in Dallas!

Immerse yourself in a community of strength as we come together to share our VHL experience, build lasting connections, and learn directly from VHL experts.

Click here to register today: buff.ly/3uEu3pd