Congrats to Steve Brine MP on his appointment to Chair of Health and Social Care Committee

Leukaemia Care Blood Cancer Alliance

The weather has most certainly turned, and it’s getting cold out ❄️🍂

Which means it’s the perfect excuse to bag yourself one of our cosy ‘Invisible Illness’ hoodies. 

Be quick though, they’re proving very popular👇
bit.ly/3f7oBDn

Want to learn more about a bone marrow transplant?

Join us alongside Leukaemia Care as we chat to haematology experts about what is involved.

📅 Thursday 17 November
⏰ 6:30pm
📍 Zoom & Facebook Live
🔗 Register: us02web.zoom.us/webinar/regist…

Goldie Horn has a new friend! Inkie has just finishing his gorgeous unicorn .. if you fancy painting a unicorn, the deadline to submit a design is December 1st! The UnicornFest #unicorn #unicorn festival Leukaemia Care

Unicornfest is a Bristol-based sculpture trail to raise awareness and funds for Leukaemia Care. This project led us to become their creative partner, from brand identity and web design to iOS and Android XR App design.

Watch our design story unfold: behance.net/gallery/144180…

“Because there were different ideas of what my diagnosis was, it was hard to tell people about it; there was a debate at that time on whether MDS was a cancer or pre-leukaemia. So, when people asked why I looked so pale I'd just say, “Oh, I’ve just got a funny blood disorder”.

It’s officially been a week since #MDSWorldAwarenessDay , yet our ‘Malignant Diagnosis, Surely?’ campaign remains relevant.  

Along with MDSUK PatientSupport 💙 we are urging NHS England to recognise myelodysplastic syndromes (MDS) as forms of cancer.

Please join! First meeting and it would be awesome to get a regular meeting in place to share thoughts and ideas! 👇🏻👇🏻👇🏻👇🏻👇🏻

We close with a party atmosphere at #CMLHZ22 . Everyone is so happy to spend this time together and we thank Bahija Association_Amal for hosting us here in Marrakesh

Look what my watch told me when Bahija got the best poster award at #CMLHZ22 - when people were applauding! :) The best hearing loss to have.

A big thanks to Šarūnas Narbutas on his time as Chair of CML AdvocatesNetwork, as he steps down from the steering committee after 5 years. Such a powerful voice for the CML community #CMLHZ22

Giora and Rod present him an award in thanks for his service

Panel discussion between Zack, Jan, Viji & Ananda for the shared examples of evidence-based advocacy.
#cmlhz

The @CMLnet regions report from breakouts on advocacy action. Thanks ⁦Zack Pemberton-Whiteley (he/him)⁩ for great summary of busy bees in Western & Eastern Europe & West Asia.. Let’s transform sticky notes into sticky action! #cmlhz22

Zack giving the report for Western & Eastern Europe and West Asia.
#cmlhz22

Presenting on behalf of Friends Of Max The Max Foundation in a few on Evidence Based Advocacy at CML AdvocatesNetwork ‘s #CMLHZ22 - at a CML Horizons’ Meet after years & it feels wonderful to be here and presenting with Jan Geissler Zack Pemberton-Whiteley (he/him)

Some great examples of #EvidenceBasedAdvocacy being shared at #CMLHZ22 this morning by Ananda Plate (@WECANadvocate Myeloma Patients Europe)

Group photo of CML Horizons 2022
#CMLHZ22

Group 2 in advocacy 4: Zack talking about the patients formally involved in access decisions - how can we advocate for access to new therapies
#cmlhz22