The Chronic Theory ♿️
@ZebraOrphans
#LXP #EDS #POTS #Gastroparesis #TMJ
ID:871468753
https://twitter.com 10-10-2012 09:41:38
45,0K Tweets
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What a wonderful morning and start to #IAmExperienceOfCare opening with Heather Wildsmith of Autism Bedfordshire. The videos of lived experience partners were powerful and instrumental to making relevant change and improvement. #ThePowerIsInTheStory
Get your tickets booked for Experience of Care Week 2024! There's a fantastic line-up of guest speakers (including me representing our work for Norfolk and Norwich University Hospitals and Norfolk & Norwich MVP)
Have you booked your place to join us? #IamExperienceofCare #ExpOfCare
Book your place on my storytelling session for experience of care week #Iamexperienceofcare learn more about digital stories and their impact events.england.nhs.uk/events/what-is… the power of storytelling
To celebrate #WorldImmunologyDay I attended 'Immunity in pregnancy and in early life ─ lifelong impact on health'. #PublicHealth #Immunology #HealthScience
A privilege to speak on Getting It Right First Time (GIRFT) Academy to Fellows, with Fez Awan and Jo Fitzgerald 💙 #dreamteam
Brilliant improvement projects underway with significant professional diversity and every “habit of an improver” present 🤩
#bestkindofMonday #coproduction #improvement4impact
#ExpOfCare week has come around fast 💨and what a great packed agenda ! Looking forward to presenting #ImprovingDrEaMing on Wednesday at 2pm with Zoe Packman RN 💙 and #LivedExperience partners Carol Munt The Chronic Theory ♿️ #QICopro 👏🏽👏🏽👏🏽👏🏽 #Coproduction
Göran Henriks Helen Bevan Selina Stephen Richie (He/Him) #slamisours NHS Maudsley The Chronic Theory ♿️ Katrina Nunn Scott Ballard-Ridley Jack Ballard-Ridley Don Berwick Quality Forum sarah o'brien 16/ Visibility of #LivedExperience and Communities panel was fab at #Quality2024 with many co-chairing sessions, facilitating in table exercises and on our stand having conversations with people who were curious about #Coproduction reach out if you would like to know more
9/ I have been previously named in the #DisabilityPower100 and I truly believe the #Quality2024 was more inclusive and accessible but we still have a lot more work to do - thank you to those who allowed me the space to speak up in the local planning advisory committee including…
Göran Henriks Helen Bevan Selina Stephen 10/ Time to continue my #Quality2024 thread!
Let’s talk #accessibility and my views. It was great that people could book scooters in advance for free from Excel as modelled by Richie (He/Him) #slamisours who works in a #LivedExperience role at NHS Maudsley - this was their poster 👏🏽👏🏽
Göran Henriks Helen Bevan Selina Stephen Richie (He/Him) #slamisours NHS Maudsley 11/ Forzana aka The Chronic Theory ♿️ was amazed that her own scooter that she received via a Personal Health Budget had such a good battery. The #Quality2024 was three days and she didn’t even need to charge it up👍🏽 she was able to join in daytime and fun evening activities too ✅
Göran Henriks Helen Bevan Selina Stephen Richie (He/Him) #slamisours NHS Maudsley The Chronic Theory ♿️ Katrina Nunn Scott Ballard-Ridley Jack Ballard-Ridley Don Berwick Quality Forum sarah o'brien 15/ The #LivedExperience and Communities supported each other and people who connected with us throughout #Quality2024 in multiple ways. Some of these may have been more subtle or sometimes as blatant as sitting beside someone on main stage 🙋🏽♀️who hadn’t done that before #Tribe
Brilliant attending the #QualityForum24 last week, attending the brilliant #LivedExperience and Communities panel events with The Chronic Theory ♿️ Tanya Lord ♿️🏳️🌈Cristina Serrão she/her 🇪🇺🇵🇹🇸🇳🇬🇼 Scott Ballard-Ridley Carol Munt #HelloMyNameIs Helen Lee 👋😀 Dave McNally
I throat clear a ridiculous amount.. 😳 ♿️🏳️🌈Cristina Serrão she/her 🇪🇺🇵🇹🇸🇳🇬🇼 check this out… #hEDS #Dysphagia
Showcased my new wheels Quickie Wheelchairs at the Quality Forum last week. The battery life is amazing, it lasted all day. No worries about having to find a charging point which made it easier to enjoy the conference 🎉 #ElectricWheelchair #PHB
The show defo went on! You shined so bright up on the stage just as I described in my Pecha Kucha. I learnt so much from your knowledge you shared but also your dedication and commitment to inclusion, experience and equity. Rest up Queen 💚 #Quality2024
8/ Aside from my injury at #Quality2024 #LivedExperience partners were somehow a little unfortunate with ‘mishaps’ from falls on the DLR, subluxations and dislocations those with #hEDS , cuts and bruises, issues with quiet spaces, and even someone fainting YET they all gave 💯💫