We’ve had a fantastic response to our insights survey from the #MND community so far.

❓What should potential new drugs for MND look like?

Share your thoughts by 2 June ⬇️

Please share with anyone you know affected.
#MND #MotorNeuroneDisease #ALS #ALS awareness #TeamMND

📢Full time PhD studentship and 3 part time doctoral study fee waiver opportunities Health & Social Care, PPI University of Hertfordshire CRIPACC UH UH Health&SocialWork UH Research Office Julia Jones NIHR Research Professor Kathryn Almack Rebecca O'Connell Louca-Mai Brady NIHR ARC East of England details: herts.ac.uk/research/resea… Message me🙏

#PublicInvolvement community!
I'm looking for someone who's doing work on public involvement with people *not* online (due to no access/don't want to engage online) to give a short talk to share learning & approaches.
Please DM me if interested/tag a friend!
#inclusiveinvolvement

Wow, what an opening to #PatientsAsPartners2023 - thank you #MandyGonzalez for sharing your story. Broadway star, breast cancer survivor, advocate, author, inspiration. Fearless. 🌟

To folks working w #Patients as partners, pls remember they have full lives and experiences beyond being a patient in a healthcare system/on a research team. I'm guessing many #PatientPartners don't offer up being a patient outside of these environments #PPI #PatientEngagement

Proud to represent COUCH Health at #BMJRF today. Thanks to Rory Cellan-Jones for chairing a great discussion & BMJ for the opportunity to highlight the vital role #patientinvolvement plays in driving research. And thanks Professor Chris Whitty for a great keynote - set us up well!

Sooo lovely to see colleagues in person, and lots of familiar faces joining virtually too 🥰
#patientengagementfamily

Join us for a webinar this evening (6pm) to hear about shaping and taking part in MS research. There'll be plenty of time for questions too!

I'm speaking along with Ben Jacobs, Sadid and Trishna Bharadia BA(hons), MFPM(hon).

Register to join live or get the recording - trackshorturl.at/bnOZ6

Our survey about #neurodiversity & inclusion in research is still open!
We'd love more people with #neurodiverse conditions to share their experiences.
Please help by completing the survey, sharing the link with your network and/or liking this tweet💛
🔗 couchhealth.fra1.qualtrics.com/jfe/form/SV_6o…

Read Natasha Ratcliffe and Patrick Short's new article, to discover why #precisionmedicine must lose its Eurocentricity if it is to be truly effective for all:

labiotech.eu/opinion/divers…

Community engagement done right - great job More Than a Tremor & team, sounds like a brilliant event! 👏🏽

#CommunityEngagement #Parkinsons

Anyone know a great health/medical #copywrighter ?

Looking for someone available over next 2 weeks who:
☑️ has experience writing patient/site materials for clinical trials
☑️understands healthcare regulations
☑️can write copy for website and socials

DM me if interested!

🚨 Free in 20 mins?
Join me and my wonderful colleagues for a conversation about cultural safety and underrepresentation in clinical research.

Register here (it's free!) 👉🏽 lnkd.in/e6-Ku2ep
#clinicaltrials #inclusiveresearch

Join me, Tina Aswani-Omprakash, MPH, Scout (he/him) & Ebony Scott Lupus Research for a discussion on why prioritising cultural safety is vital for achieving representation in clinical trials.
📅 Wednesday 19 October
🕓11AM ET / 4PM BST / 5PM CET
Register ⬇️
#clinicaltrials #DiversityandInclusion

Please consider donating! 🩸
If you've never done it before - it's quick, mostly painless (the finger prick to test your iron hurts more than the main needle in my opinion!), the staff look after you wonderfully, and you get free tea and biscuits.🍪☕️
#giveblood

People with #Parkinson disease: what do you think are the top three unmet medical needs for you?

[“symptom that is serious and whose treatment is not addressed adequately by currently available therapy”]

Is research focusing on the right thing(s)?

Covid revealed huge inequalities in digital access & health, yet also showed the potential of digital healthcare.

How do we maximise the opportunity created by digital healthcare? Take a first look at a recommendation from our upcoming Digital Divide report, launched next week.