Did this trial ever happen? I’m starting montelukast tomorrow, so I’m curious about what to expect

FDA commitments would be key. In Europe, BC007 & temelimab trials are both big enough (100+ participants) to plausibly be approved soon. But in the US, Argenx probably didn’t run a large enough Vyvgart trial (50ish patients). Strong FDA statement 2 years ago might’ve changed that

I don't think it's discussed enough how a whole form of cancer was wiped out by vaccinating against HPV - a virus.

I wasn’t disabled before I got Covid. And studies suggest 40% of people will get to join me by their 3rd infection. And then it’s too late. This is very disingenuous phrasing.

With a drastically, in orders of magnitude, smaller set of resources - patients/allies are doing more for Long Covid patients than the federal government. I’m a firm believer that the orientation towards the disease is to first prove whether we are lying or not wastes resources.

happy pride to palestinian queers

happy pride to sudani queers

happy pride to congolese queers

happy pride to disabled queers

happy pride to queers with long covid

happy pride to queers left behind these recent years

you all deserve a happy pride too 🫶🏾

ATTN: Health / Science Reporters — this new #LongCovid study really deserves coverage. Please take a look at this over the weekend— we need more data like this in front of the general public !!

News from #ASCO24 : There's ample evidence that the #HPV vaccine prevents cervical cancer, but we're now seeing data showing that it also protects men against oral cancer. This took longer because routine vaccination for boys started later.
cancerhealth.com/article/hpv-va…

Totally fascinating data out today involving development of Long Covid-like behavior in rats after injection with human sera containing IgGs from people with Long Covid. Did you know there’s a scientific precedent for this causing bioenergetic impairment? pubmed.ncbi.nlm.nih.gov/14977189/

Fair dues to Stichting Long COVID for contributing towards the funding of many of these banger studies in the Netherlands!

Huge thank to María Richardson, emily fraser 🌿🐌✨ & everyone else involved in both organizing and participating. I thought this was incredibly well done and executed. This will absolutely at least result in The Daily Show / Last Week Tonight teams talking about it.

Really impressed and incredibly grateful for the #GreatestMEdicalScandal / #JohnVsJonVSME campaign. Hashtag / online activism is not pseudo-activism, its one of the most powerful tools we have, and we've seen it single handedly put #LongCovid on the map time and time again.

Hannah Davis Patient-Led Research Collaborative And by Stichting Long COVID! ;)

We want to say THANK YOU to everyone who joined #JohnVsJonVsME #GreatestMEdicalScandal ! Together we trended & hopefully piqued the interest of Last Week Tonight The Daily Show 🔥. See you at Daniel Lewis (but with Long COVID) Space on Mon. to chat re the campaign!
❤️🥄🙌 to all!! johnvsjon.com

Looking for any resources on getting IVIG for someone with IgA deficiency - is it worth the risks? Anything else to consider? #longcovid #neisvoid

Years ago, when Ron Davis discovered that blood from an #MECFS patient placed into healthy blood made the healthy blood 'poop out', I took the organ donor status from my driver's license. It's also recommended that #pwME do not donate blood. That now includes #pwLC .
Janet Dafoe

🚨New #LongCovid study — funded by Patient-Led Research Collaborative

“These findings demonstrate that transfer of IgG from Long COVID patients to mice replicates disease symptoms, underscoring IgG's causative role in Long COVID pathogenesis.”

This is the second study to demonstrate this!

Hannah Davis This seems to happen in fibromyalgia too! pubmed.ncbi.nlm.nih.gov/34196305/. What is going on? Anecdotally, pts with CCI get better on IVIG during active treatment. (Spinal injury can create autoantibodies as well.).

This work was funded in part by Patient-Led Research Collaborative ✨