It's kind of gratifying that sometimes the stupidity of what's written in the Irish Times will occasionally break out and attract international interest.

#LongCovid is complex to diagnose and treat, so we need #biomarkers ! 1. to confirm viral persistence, and 2. to map the failing/overactive immune response. So we tried to hit two birds with one stone using digital transcriptomics 👇👇 (1/n)
thelancet.com/journals/lanmi…

✔️Tilt table test
✔️POTS dx (hyperadrenic)
✔️Officially enrolled in
#DukeRECOVERAUTO
treatment for #LongCOVID
Let’s do this!!

nih.gov/news-events/ne…

Another awesome article by Steve Topple

Let’s make this #MEAwarenessDay the biggest one yet and support Ror Preston with his postcard campaign 😎!!

thecanary.co/trending/2024/…

You’d nearly come away from this thread with the impression that POTS is inevitable in those predisposed to IACCs, and if you don’t currently have it with ME it’s because it hasn’t kicked in yet.

People with ME/CFS and Long COVID:

Were there time gaps between the onset of one symptom group and another?

e.g. did you get ME/CFS in year 0 and get POTS in year 3?

Can more people outside of those directly affected please start talking about this? It's getting a bit ridiculous.

I’m neither a politician nor an economist, but finding it hard to see how it could be good to have 3% of the workforce long term unwell to #LongCovid , yet no moves to acknowledge, mitigate, research or treat?

About 2m people have long Covid in England and Scotland, figures show theguardian.com/society/2024/a…

Otherwise known as 'long COVID' 😃

2 million people living in private households in England and Scotland were experiencing self-reported long COVID

Symptoms continuing for more than four weeks after a confirmed or suspected #COVID19 infection that were not explained by something else.

➡️ ons.gov.uk/peoplepopulati…

We are excited to show you the first video of our campaign. This video will air on Austrian television over the next few weeks.

Please help us raise awareness by sharing this tweet.
More info: weandmecfs.org/awareness

Donations help us liberate those affected. 🙏
#MECFS 💙

How much morbidity does there have to be before it approaches mortality?

How disabled do you have to be from an illness until it's considered near death?

If you spend 40 years in bed, is that not life lost? It's clear that this similarity is considered a very abstract notion.

I'd settle for some good 'ol fashioned pee pee sex. I'm only flesh and pride.

DON'T. LOOK. AWAY. #SaveCarlasLife #MEAwarenessHour

Please meet Pierre, Carla's father. We cannot overstate how distraught he is by what is happening to his daughter. However, he wanted to speak to everyone directly. Please watch & share widely. She is running out of time 💚

I really don't understand what's going on here.

The whole thing with ME is, supposedly, that nothing shows up in tests.

But when someone's SpO2 falls to 72 (normal 95-100), this is due to - what - illness beliefs?