Flutters and Strutters (Formerly FibroFlutters) (@fibroflutters) 's Twitter Profile
Flutters and Strutters (Formerly FibroFlutters)

@fibroflutters

Non Profit for chronic (FibroFlutters) & rare illnesses (ZebraStrutters)
Patient Advocacy Organisation
Reg. No. 14065901

ID: 2427427951

linkhttp://www.fibroflutters.com calendar_today04-04-2014 15:04:23

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NHS England (@nhsengland) 's Twitter Profile Photo

Anyone in a mental health crisis can call 111 to receive support from trained mental health professionals. The 24/7 service is available for all ages, including children, providing vital help through a single phone line. ➡️ england.nhs.uk/2024/08/nhs-11… #WorldSuicidePreventionDay

Anyone in a mental health crisis can call 111 to receive support from trained mental health professionals.
 
The 24/7 service is available for all ages, including children, providing vital help through a single phone line. 

➡️ england.nhs.uk/2024/08/nhs-11…

#WorldSuicidePreventionDay
Vanessa Carter 🇬🇧🇿🇦 (@_facesa) 's Twitter Profile Photo

Can people, patients, carers, survivors & people become community leaders for #AMR? Just under 1-hour until the community dialogue begins, co-hosted by ReAct - Action on Antibiotic Resistance and @theamrnarrative The session is open to everyone, so feel free to join in using the hashtag #theAMRnarrative

Plain Language Summaries (@plainlangsumm) 's Twitter Profile Photo

The PAPILLON study compared amivantamab + chemo to chemo alone in patients with EGFR-mutated lung cancer. It established amivantamab + chemo as the new standard of care for newly diagnosed patients with this mutation. hubs.ly/Q02P4VMp0

The PAPILLON study compared amivantamab + chemo to chemo alone in patients with EGFR-mutated lung cancer. It established amivantamab + chemo as the new standard of care for newly diagnosed patients with this mutation.

hubs.ly/Q02P4VMp0
Vanessa Carter 🇬🇧🇿🇦 (@_facesa) 's Twitter Profile Photo

Webinar taking place tomorrow! As patient advocates, taking our efforts to the next level such as policymaking isn't always a clear path We need mentorship, funding & meaningful opportunities that allow patients, carers & survivors to have their voices heard Co-hosted by

Webinar taking place tomorrow! 

As patient advocates, taking our efforts to the next level such as policymaking isn't always a clear path

We need mentorship, funding & meaningful opportunities that allow patients, carers & survivors to have their voices heard

Co-hosted by
Global AMR Media Alliance - GAMA (@globalamrmedia) 's Twitter Profile Photo

★ Watch the presentation of Vanessa Carter, Chair, World Health Organization (WHO) Taskforce of #AMR #Survivors and @TheAMRNarrative (from Global Media Briefing in lead up to UNHLM on #AntimicrobialResistance) ★ Watch 1:00:50 - 1:16:38 of recording youtube.com/live/FV9LGSAvj… Vanessa Carter 🇬🇧🇿🇦 #AMRsurvivors

dazzle4rare (@dazzle4rare) 's Twitter Profile Photo

A systematic review of studies that estimated the burden of chronic non-communicable rare diseases using disability-adjusted life years dlvr.it/TD7Zgx

A systematic review of studies that estimated the burden of chronic non-communicable rare diseases using disability-adjusted life years dlvr.it/TD7Zgx
Libby Humphris (@libbyhumphris) 's Twitter Profile Photo

It was great to be asked to join Natalie J-W at the shared decision making plenary for 3rd year medical students yesterday. Using my lived experience to help inform the next generation of medics, I really enjoyed the day & hope to do more of this in the future. #PatientVoice

It was great to be asked to join <a href="/NJosephWilliams/">Natalie J-W</a> at the shared decision making plenary for 3rd year medical students yesterday. Using my lived experience to help inform the next generation of medics, I really enjoyed the day &amp; hope to do more of this in the future. #PatientVoice
ERN ReCONNET 🇪🇺 (@ern_reconnet) 's Twitter Profile Photo

🆕ERN ReCONNET 🇪🇺 #webinar with Prof Diederichsen with ePAGs Olga n Silke Schlüter moderated by Prof Lundberg 🎯Audience: #patients #caregivers n family members 📌Disease: #myositis 🗓️Sept. 25th - 4pm ✍️Registration is🆓bit.ly/3WUPBbe ⚙️ on IIM bit.ly/46zEHv2

🆕<a href="/ern_reconnet/">ERN ReCONNET 🇪🇺</a>  #webinar with Prof Diederichsen with ePAGs Olga n <a href="/SilkeSchlueter/">Silke Schlüter</a> moderated by Prof Lundberg
🎯Audience: #patients #caregivers n family members
📌Disease: #myositis
🗓️Sept. 25th - 4pm
✍️Registration is🆓bit.ly/3WUPBbe
⚙️ on IIM bit.ly/46zEHv2
NHS Diabetes Programme (@nhsdiabetesprog) 's Twitter Profile Photo

A third of participants on the NHS Type 2 Diabetes Path to Remission Programme achieved remission of type 2 diabetes in a year. Those interested in joining can discuss individual circumstances with their GP or diabetes team at their next appointment. england.nhs.uk/2024/08/third-…

A third of participants on the NHS Type 2 Diabetes Path to Remission Programme achieved remission of type 2 diabetes in a year.

Those interested in joining can discuss individual circumstances with their GP or diabetes team at their next appointment. 

england.nhs.uk/2024/08/third-…
ERN ReCONNET 🇪🇺 (@ern_reconnet) 's Twitter Profile Photo

🎞️Latest @ernreconnet #webinar on #APS w Dr Massimo Radin Dr Foddai n Prof Savino Sciascia is freely available on our #YouTubeChannel! 🔗Link bit.ly/3B376z5 🎓 Registration to other webinars is OPEN and FREE: bit.ly/3DxXDhi 🌐 More ℹ️ reconnet.ern-net.eu

🎞️Latest @ernreconnet #webinar on #APS w Dr <a href="/MassimoRadin/">Massimo Radin</a> Dr Foddai n Prof <a href="/SavinoSciascia/">Savino Sciascia</a>  is freely available on our #YouTubeChannel!
🔗Link bit.ly/3B376z5
🎓 Registration to other webinars is OPEN and FREE: bit.ly/3DxXDhi
🌐 More ℹ️ reconnet.ern-net.eu
Cambridge Rare Disease Network (CamRARE) (@camraredisease) 's Twitter Profile Photo

Why attend #RAREfest24 ? Become inspired like medical student Jenny Yang who was inspired to found Cambridge Rare Disease Society (CamRDS) after attending RAREfest in 2022! Read more in Jenny's blog here... camraredisease.org/introducing-th… #RareDisease #MedicalStudents #MedEd #Medicine

Why attend #RAREfest24 ?
Become inspired like medical student Jenny Yang who was inspired to found Cambridge Rare Disease Society (CamRDS) after attending RAREfest in 2022!
Read more in Jenny's blog here...
camraredisease.org/introducing-th…
#RareDisease #MedicalStudents #MedEd #Medicine
NHS (@nhsuk) 's Twitter Profile Photo

Today is #WorldSepsisDay. Sepsis is a life-threatening reaction to an infection. It can be hard to spot, so get clued up on the symptoms. Find out more ➡️ nhs.uk/sepsis/

#ANDYSMANCLUB (@andysmanclubuk) 's Twitter Profile Photo

#SuicidePreventionWeek ♥️ Credit to Charlie Mackesy for this artwork 🙌 #menssupportgroup #mensmentalhealthawareness #mensmentalhealthsupport

#SuicidePreventionWeek ♥️
Credit to Charlie Mackesy for this artwork 🙌

#menssupportgroup #mensmentalhealthawareness #mensmentalhealthsupport
NIHR Involvement (@nihrinvolvement) 's Twitter Profile Photo

Research teams should try to understand the changes, benefits and learning gained from the insights and experiences of patients, carers and the public. Find out more about the 'Impact' standard, and reflect on whether you're meeting it: sites.google.com/nihr.ac.uk/pi-…

Research teams should try to understand the changes, benefits and learning gained from the insights and experiences of patients, carers and the public.

Find out more about the 'Impact' standard, and reflect on whether you're meeting it: sites.google.com/nihr.ac.uk/pi-…
NHS Diabetes Programme (@nhsdiabetesprog) 's Twitter Profile Photo

If you're at lower risk of diabetic retinopathy, expert advice shows it’s safe to be screened every two years. Diabetic eye screening helps to prevent sight loss. Have regular eye tests and consult your optometrist if you notice changes. nhs.uk/conditions/dia…

If you're at lower risk of diabetic retinopathy, expert advice shows it’s safe to be screened every two years.

Diabetic eye screening helps to prevent sight loss. Have regular eye tests and consult your optometrist if you notice changes.

nhs.uk/conditions/dia…
Gregory Mansfield (@ghmansfield) 's Twitter Profile Photo

When you block a ramp, curb cut or bus stop, whether it’s for a minute or an hour, you are excluding disabled people. Inaccessibility and exclusion are hostile acts against disabled people.

Ataxia and Me CIO 1184030 (@ataxia_and_me) 's Twitter Profile Photo

Ataxia patients often feel daunted and alone when they are first diagnosed. The Chief #Medical Officer in the home is often the patient themselves .. #ataxia #patient #charity #Wales #kNOwATAXIA #AtaxiaAware PLEASE #donate via localgiving.org/appeal/Ataxia_…

Ataxia patients often feel daunted and alone when they are first diagnosed. The Chief #Medical Officer in the home is often the patient themselves ..
#ataxia #patient #charity #Wales
#kNOwATAXIA #AtaxiaAware  PLEASE #donate via
localgiving.org/appeal/Ataxia_…
NIHR Involvement (@nihrinvolvement) 's Twitter Profile Photo

What do young people want health researchers to look into? A group of young people have been taking part in a programme to support them decide on their research and health priorities, and to develop health policy for the future. Find out more: arc-wx.nihr.ac.uk/post/fomo-peri…

Burning Nights CRPS (@bnightscrps) 's Twitter Profile Photo

Thought of the day Don't judge someone's pain level and what they should or should not be able to do. You will never know the pain we endure every day until you've experienced it yourself. #BNightsCRPS #CRPS #crpsawareness #crpswarrior #crpssupport #chronicpain #CRPSisReal

Thought of the day
Don't judge someone's pain level and what they should or should not be able to do. You will never know the pain we endure every day until you've experienced it yourself.   

#BNightsCRPS #CRPS #crpsawareness #crpswarrior #crpssupport #chronicpain #CRPSisReal