Flutters and Strutters (Formerly FibroFlutters)
@fibroflutters
Non Profit for chronic (FibroFlutters) & rare illnesses (ZebraStrutters)
Patient Advocacy Organisation
Reg. No. 14065901
ID: 2427427951
http://www.fibroflutters.com 04-04-2014 15:04:23
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Can people, patients, carers, survivors & people become community leaders for #AMR? Just under 1-hour until the community dialogue begins, co-hosted by ReAct - Action on Antibiotic Resistance and @theamrnarrative The session is open to everyone, so feel free to join in using the hashtag #theAMRnarrative
★ Watch the presentation of Vanessa Carter, Chair, World Health Organization (WHO) Taskforce of #AMR #Survivors and @TheAMRNarrative (from Global Media Briefing in lead up to UNHLM on #AntimicrobialResistance) ★ Watch 1:00:50 - 1:16:38 of recording youtube.com/live/FV9LGSAvj… Vanessa Carter 🇬🇧🇿🇦 #AMRsurvivors
It was great to be asked to join Natalie J-W at the shared decision making plenary for 3rd year medical students yesterday. Using my lived experience to help inform the next generation of medics, I really enjoyed the day & hope to do more of this in the future. #PatientVoice
🆕ERN ReCONNET 🇪🇺 #webinar with Prof Diederichsen with ePAGs Olga n Silke Schlüter moderated by Prof Lundberg 🎯Audience: #patients #caregivers n family members 📌Disease: #myositis 🗓️Sept. 25th - 4pm ✍️Registration is🆓bit.ly/3WUPBbe ⚙️ on IIM bit.ly/46zEHv2
🎞️Latest @ernreconnet #webinar on #APS w Dr Massimo Radin Dr Foddai n Prof Savino Sciascia is freely available on our #YouTubeChannel! 🔗Link bit.ly/3B376z5 🎓 Registration to other webinars is OPEN and FREE: bit.ly/3DxXDhi 🌐 More ℹ️ reconnet.ern-net.eu