'Health System #Resilience in #rare and complex #diseases context: looking for the determinants' webinar by prof. Giuseppe Turchetti and Gelareh Emami SantAnnaPisa

🗓️Thursday 27 October 2022 - 16.00 CET

➡️Register for the webinar by clicking on the link us02web.zoom.us/webinar/regist…

The moment you get the diagnosis of lupus you check Dr. Google, where you find all sort of information. From now on, you can find the highest quality information in #Lupus100 .
Our goal is to make it available in 18 European languages!
lupus100.org

Thanks for a fruitful meeting! 🙏🏻

🇪🇺 Promising projects ahead where collaboration between clinicians and ePAG patient advocates is the key to success.

#ERNReCONNET

The #ERNReCONNET Board of Network is now taking place on line. A lot of work, a lot of good things to do together.

ERN ReCONNET. More than a Network.

💻New free MOOC: EJP RD - European Joint Programme on Rare Diseases launches a new MOOC entitled “Introduction to translational research for Rare Diseases” enabling you to explore therapeutic development process from the unique perspective of rare diseases
ℹ️More information: ejprarediseases.org/ejp-rd-launche…

An overlook on the current registries for rare and complex connective tissue diseases and the future scenario of To…
ERN ReCONNET 🇪🇺
pubmed.ncbi.nlm.nih.gov/36226147/

✅ I'm happy to share my main clinical pearls for the diagnosis of relapsing #polychondritis ⬇️ as I will discuss today in my talk at #SAR2022 . Muchas gracias to Comunidad SAR for the amazing invitation in Cordoba 🙏

📣 The following #EULAR OnlineCourses start on 17 October!

👉 1st EULAR Evidence Based Practice Online Course for Health Professionals
👉 1st EULAR Online Course for Patient Research Partners

Register today 👉 bit.ly/2yBoEP2

#eularEducation #EULAR

🚨Only 5 days left before the end of early bird registration (lower fee!) at the 7th RE(ACT) Congress and the 5th IRDiRC Conference will be held in person next March 2023.
ℹ️More information:ejprarediseases.org/save-the-date-…

Our Chair, Jeanette Andersen, presents #Lupus100 . A website in which lupus patients will be able to find validated information to answer all their questions.
Visit lupus100.org
In collaboration with ERN ReCONNET 🇪🇺 ,Fai2r and Katana Santé
#LUPUS2022

At LUPUS EUROPE we believe that patients have a great potential to be an added value in R&D and that is why we invest in training and have created our PAN: trained patients involved in research projects with EULAR, SLEuro & ERN ReCONNET 🇪🇺
#LUPUS2022

#ERNReCONNET member Frédéric Houssiau on 'Update on #lupus nephritis treatment: new options, at last!' at the 13th European Lupus Meeting

#lupus 2022
#lupus 100

sleuromeeting.com

✅ Today at 09:50, I will chair 🧑‍🎓 the #LUPUS2022 session about neuropsychiatric #Lupus ( #NPSLE ). Please join us 🙏 and check the attribution strategy typically used in #SLE when confronted to NPSLE symptoms ⬇️

#LUPUS2022
Prof. Arnaud Laurent ARNAUD gives a great presentation on male patients with SLE.
☑️SLE more common in female
☑️In some studies, SLE more delayed and more severe in men
☑️Different data in literature (influence by confusing factors)
SLEuro