Ciara Micks (@ciaramicks) 's Twitter Profile
Ciara Micks

@ciaramicks

I’m 22, I live with Ehlers Danlos Syndrome. My aim is to share info & spread awareness about this not so rare condition

ID: 924320257837322241

linkhttps://www.facebook.com/CiarasFightForLife/ calendar_today28-10-2017 17:01:37

170 Tweet

103 Takipçi

356 Takip Edilen

Rare Diseases Ireland (@rarediseasesie) 's Twitter Profile Photo

This is an excellent opportunity for anyone who wants to expand their advocacy work... Please do apply if this is of interest to you.

The Scoliosis Advocacy Network #BackUs (@scolionetwork) 's Twitter Profile Photo

There is zero accountability. Parents are sleeping on floors in Children's Health Ireland tonight. Nurses are trying to work in tiny rooms with no space. Eilísh Hardiman (she/her) moved to Strategic Programme Director NCH despite her glaring failings as CEO CHI. Simon Harris TD now Taoiseach

DFI (@disabilityfed) 's Twitter Profile Photo

‘Disabled people have a right to live independently and participate in their communities, just like everyone else.’ Great to see this awareness campaign launched housingagency.ie/journey-indepe… #journeytoindependentliving #housing

‘Disabled people have a right to live independently and participate in their communities, just like everyone else.’ Great to see this awareness campaign launched housingagency.ie/journey-indepe… #journeytoindependentliving #housing
RTÉ News (@rtenews) 's Twitter Profile Photo

The judge who made the decision to hand down a three-year suspended sentence to a 22-year-old serving soldier who beat a woman unconscious during an assault in Limerick city two years ago is to retire this week rte.ie/news/2024/0624…

The Ehlers-Danlos Society (@theedsociety) 's Twitter Profile Photo

People who have a type of Ehlers-Danlos syndrome (EDS) or hypermobility spectrum disorder (HSD) may also experience other co-occurring problems such as: 🔵Headaches 🔵Gastrointestinal problems 🔵Autonomic dysfunction 🔵Mast cell activation disorders 🔵Anxiety disorders These

People who have a type of Ehlers-Danlos syndrome (EDS) or hypermobility spectrum disorder (HSD) may also experience other co-occurring problems such as:

🔵Headaches
🔵Gastrointestinal problems
🔵Autonomic dysfunction
🔵Mast cell activation disorders 
🔵Anxiety disorders

These
RTÉ News (@rtenews) 's Twitter Profile Photo

Campaigners are looking for the system to check newborn babies for rare diseases to be expanded in Ireland rte.ie/news/health/20…

Maïa Dunphy (@maiadunphy) 's Twitter Profile Photo

That spineless Crotty lad certainly picked the wrong woman didn't he?!! So much whataboutery at the moment, but the fact is, Natasha O'Brien is a formidable, articulate, strong young woman who will not be silenced. A lot of people seem not to like that. 🧐

Dr Charlotte Proudman (@drproudman) 's Twitter Profile Photo

A man jailed for beating his girlfriend was released after 7 months and immediately killed her, despite her father pleading with the judge not to let him out of jail, or… he would kill her. 'She was basically beaten to death. Her face was smashed in, her head was smashed in,

A man jailed for beating his girlfriend was released after 7 months and immediately killed her, despite her father pleading with the judge not to let him out of jail, or… he would kill her.

'She was basically beaten to death. Her face was smashed in, her head was smashed in,
Diane Masterson (@dianejmasterson) 's Twitter Profile Photo

Devastated this evening. 💔 My applications for support have been formally rejected as of 17.00 today. I can appeal, but only in writing...ideal since I have so much energy and time. There's not a whole lot more I can say.

Liz McGonigal (@lizmcgpr) 's Twitter Profile Photo

I truly don’t understand the bureaucracy - surely this is more cost effective, patient care, not to mention dignity but most all why is an end of life patient having to fight for care? Simon Harris TD Stephen Donnelly Micheál Martin Roderic O’Gorman TD

Irish Kidney Association (@irishkidneyas) 's Twitter Profile Photo

Diane needs appropriate accommodation to be able to do peritoneal dialysis at home as haemodialysis is not a suitable option. A speedy resolution to this issue has to be found. The illness burden of End Stage Kidney Disease is hard enough without having this added anxiety.

Diane Masterson (@dianejmasterson) 's Twitter Profile Photo

Hi Simon Harris TD I am the same age as you. Failures by the State to enact fit for purpose provisions for emergency medical situations, leaves me with no access to critical healthcare. Please let me know where the funeral director should send invoice for my funeral.

Diane Masterson (@dianejmasterson) 's Twitter Profile Photo

An incredible end to a horrendous day. If I haven't thanked you, or responded yet, I promise I will. I'm so appreciative of each comment, good wish, RT & contribution.❤️ I can't tell you how much the support means when I feel very scared & abandoned.

An incredible end to a horrendous day. 

If I haven't thanked you, or responded yet, I promise I will. I'm so appreciative of each comment, good wish, RT & contribution.❤️

I can't tell you how much the support means when I feel very scared & abandoned.
Ciara Micks (@ciaramicks) 's Twitter Profile Photo

Please help Diane Masterson in any way you can by sharing or donating. Help Diane Masterson to access treatment for kidney failure. gofund.me/936c20f2

Diane Masterson (@dianejmasterson) 's Twitter Profile Photo

One of the best people in my life posted this👇🏻 One of the worst parts of this is seeing how angry & upset my friends are.💔 They have never made me feel like I'm whining or a burden. Surround yourself with good people, tell them they matter + how important they are to you. ❤️

One of the best people in my life posted this👇🏻

One of the worst parts of this is seeing how angry & upset my friends are.💔 They have never made me feel like I'm whining or a burden.

Surround yourself with good people, tell them they matter + how important they are to you. ❤️
The Scoliosis Advocacy Network #BackUs (@scolionetwork) 's Twitter Profile Photo

Let’s rewrite this… Stephen Donnelly Waiting lists are “falling”—by shifting record numbers of patients to the suspended outpatient lists. We’ve bypassed national waitlist policies, leaving 60 children unrecorded and without the surgeries they need. #scoliosis Spina Bifida & Hydrocephalus Paediatric Advocacy

Jeannie Di Bon (@jdibon) 's Twitter Profile Photo

I don’t believe strengthwork is the answer for hypermobility. I mean - not the 1st step. If only it were so easy right. Do a few weights or band work & all will be fixed. With our complexity, we need to do some other things before we get to strength. One size does not fit all

Victor Shi (@victorshi2020) 's Twitter Profile Photo

This guy’s name is Dean Withers. He’s 20 years old. And he’s tearing down racist, misogynistic, and totally false claims about Kamala Harris one far-right Republican at a time. Take some time to watch this. It’s so amazing.