KaterinaRachelDelon (@racheldelon) 's Twitter Profile
KaterinaRachelDelon

@racheldelon

3 years with Longcovid, learning to live with it..go to hell LC..

ID: 1323683232248963073

calendar_today03-11-2020 17:48:01

1,1K Tweet

202 Followers

570 Following

Dr. Beate Jaeger, MD (@beatejaegermd) 's Twitter Profile Photo

I would like to share with you some representative samples of what we are seeing with our new microscope. The fluorescence shows platelet hyperactivation and clumping in long COVID patients.

I would like to share with you some representative samples of what we are seeing with our new microscope. 
The fluorescence shows platelet hyperactivation and clumping in long COVID patients.
UniteToFight2024 (@u2fight_world) 's Twitter Profile Photo

Especially today, on @durchlauren's birthday, we think of Lauren and those she had to left behind: her loving family, dear friends, people who were connected to her in pain. Her desire to leave this life, her death, her fate is what led us to #UniteToFight2024 in the first place.

+ BERLIN BUYERS CLUB + (@berlinbuyers) 's Twitter Profile Photo

Two fellow Long Haulers spontaneously decided to have a protest in front of BMG & I'm all for supporting as many street protests as possible, so l decided to add an idea & put my support behind it. /1

Two fellow Long Haulers spontaneously decided to have a protest in front of BMG & I'm all for supporting as many street protests as possible, so l decided to add an idea & put my support behind it. /1
Naomi Harvey PhD #WearAMask (@naomi_d_harvey) 's Twitter Profile Photo

I’ve had magnesium this morning (which lowers it) & my normal resting lactate for an hour after eating with Mg on board should be 2.1mmol/l, elevated but not enormously. Today? 4.5mmol/l 😒 confirms my mitochondria are struggling more than usual, & validates why I feel so bad.

I’ve had magnesium this morning (which lowers it) & my normal resting lactate for an hour after eating with Mg on board should be 2.1mmol/l, elevated but not enormously. 

Today? 4.5mmol/l 😒 confirms my mitochondria are struggling more than usual, & validates why I feel so bad.
UniteToFight2024 (@u2fight_world) 's Twitter Profile Photo

📢 New Video! Learn about PEM and the principles of pacing for managing #LongCovid and #MECFS from experts Clayton Powers and Amy Mooney (Amy Mooney,OT4ME) at #UniteToFight2024. Discover practical strategies to improve your quality of life. 📽️ Watch now: youtu.be/xt4lCTmV_98

Hannah Davis (@ahandvanish) 's Twitter Profile Photo

Another important paper! Using the UK Biobank to explore hundreds of blood markers for ME/CFS found *116* tests that differed between ME/CFS cases & controls and were able to be replicated! medrxiv.org/content/10.110… #LongCovid 1/

🕸️Dr.T, PhD (@chydorina) 's Twitter Profile Photo

We need to learn from each other. While no one in their right mind would argue that 'mindfullness' is going to treat or cure #MECFS #LongCovid this does not mean it cannot help increase our quality of life (sometimes drastically) and the techniques we learn can often help us to

We need to learn from each other. While no one in their right mind would argue that 'mindfullness' is going to treat or cure #MECFS #LongCovid this does not mean it cannot help increase our quality of life (sometimes drastically) and the techniques we learn can often help us to
Wail of a Tale (Non-Profit) (@wailofatale) 's Twitter Profile Photo

Save the Date! The first Pediatric Long Covid Awareness Week starts September 9th✨ Join us in raising awareness and supporting children affected by Long COVID. Stay tuned for exciting events and ways to get involved, check out the link in our bio! #PediatricLongCOVID

Long COVID Foundation (@longcfoundation) 's Twitter Profile Photo

The World Health Network has put out an article titled "Public Service Announcement --- Scientists and Economists Alert! ---Global Emergency ---Compounded by the AIDS-like Features of SARS-CoV-2 Infection" #LongCOVID #pwLC #LongCOVIDIsUnique whn.global/public-service… 🧵🧵🧵

The Tyee (@thetyee) 's Twitter Profile Photo

Despite the rising number of COVID cases, overwhelmed hospitals and the tremendous long-term toll on individuals, prevention efforts have been abandoned. Andrew Nikiforuk writes. thetyee.ca/Analysis/2024/…

Michael Stingl (@neurostingl) 's Twitter Profile Photo

Wichtige Fragen von WE&ME Foundation an die Parteien vor der Nationalratswahl. Was man tun wird, um die Versorgung von ME/CFS strukturell zu normalisieren, ist leider ein relevantes Thema geworden. Umso mehr, weil Prävention ja keines ist... ots.at/presseaussendu…

UniteToFight2024 (@u2fight_world) 's Twitter Profile Photo

📢 New Video! Edo Plantinga & Dr. Joanneke van Der Nagel (Long Covid Toolkit) present the Long Covid Toolkit, a resource combining science and patient reviews to empower those with #LongCOVID. Learn more about the toolkit at #UniteToFight2024! 📽️ Watch now: youtu.be/eh_JM9uBMsc

Ivona (@ivi81) 's Twitter Profile Photo

My day yesterday 🙌 I did again a 5km walk, 2x 400m running in between. No PEM so far! Last year, this was unthinkable! 💫 I am working now 3 days in a row, let’s see how this one goes 🙌🦾 #LongCovidRecovery

My day yesterday 🙌
I did again a 5km walk, 2x 400m running in between. 
No PEM so far! Last year, this was unthinkable! 💫
I am working now 3 days in a row, let’s see how this one goes 🙌🦾
#LongCovidRecovery
Zdenek Vrozina (@zdenekvrozina) 's Twitter Profile Photo

Když se přestaly nosit roušky v „mírné Omicronové“ fázi pandemie, Cara ve škole pokračovala jako osamělá rouškařka, aby chránila svou imunokompromitovanou matku, která podstupovala chemoterapii. | Irish Independent Comment👇⚠️

Zdenek Vrozina (@zdenekvrozina) 's Twitter Profile Photo

/Tento příběh není vůbec vyjímečný. Podle různých studií, zejména výzkumu publikovaného v časopise The Lancet v roce 2021, bylo odhadnuto, že do konce roku 2021 ztratilo alespoň jednoho rodiče nebo pečovatele více než 5,2 milionu dětí po celém světě v důsledku pandemie COVID-19.

Zdenek Vrozina (@zdenekvrozina) 's Twitter Profile Photo

Rada WHO je jasná – chraňte sebe a své blízké před Covidem. Zůstaňte doma, pokud jste nemocní, testujte se, větrejte, noste roušku, když jste v blízkosti ostatních. Ale pokud nejsou rodiče připraveni říci: „Nesouhlasíme s opakovaným vystavováním našich dětí biologicky

Long COVID Foundation (@longcfoundation) 's Twitter Profile Photo

📣📣📣 The Long COVID Foundation & LCAP (Long Covid Action Project) are thrilled to announce the funding needed by Dr. Johan Van Weyenbergh, and his research team, for Long COVID Biomarkers Validation has been reached. This was accomplished thanks to the incredible support of more than 200 donors,