Congrats to the Clemy Crew for a successful first fundraiser! 🏃‍♂️👟 On May 18, 16 participants took on the Famous Idaho Potato Marathon, raising $2,775 for SRNA! Every step honored Clementine Newton-Thompson’s 3-year journey with a spinal cord injury. #StrongerTogether

Join us for an online support group meeting hosted by Doug and Holly, our Utah Support Group Leaders, in collaboration with Guthy-Jackson Fdn! Anyone is welcome, no matter where you are located. Sign up today at buff.ly/4dR6tGW.

Krissy Dilger of SRNA was joined by Dr. Shuvro Roy for a podcast episode on "The Role of Physicians and Patients in Legislative Advocacy." Dr. Roy talked about the importance of physicians engaging in legislative advocacy by sharing their practice stories and providing

Here’s a sneak peek of Amber’s story, launching on September 5. Get ready to watch her full story and celebrate the amazing power of our community with us! Head to buff.ly/4cKBjQQ to learn more. #SRNA30Years #PowerOfCommunity

Have you or a loved one been diagnosed with a #neuroimmune condition as a child or young adult? Nationwide Children's Hospital is proud to present Neuroimmune Family Education Day on Sept 14! Learn more and register at buff.ly/4cVFits. Guthy-Jackson Fdn The Sumaira Foundation Nationwide Children's Hospital

Amber was diagnosed with #NMOSD in 2012. She shares: “All of the sudden, it’s not the same anymore. You can’t be there for nobody. You can’t even be there for yourself. It was a hard pill to swallow. I didn’t know who I was anymore.” Watch her story at buff.ly/4cKBjQQ.

Please welcome our newest volunteer, Sophie Barry! 🎉 "I volunteer with SRNA because I understand the challenges of living with a rare neuroimmune disease, and I’m passionate about providing support to others navigating similar journeys."

Sign up for Community Connections: Talking about Advocacy, happening this Friday! Join community advocate Leah Campbell, and Jim Sliney from Patients Rising to learn how you can become a better advocate for #rareneuroimmunedisorders in the US. buff.ly/3z8Fact

Join us as part of our 30th Anniversary Matching Campaign in making an impact for those living with and caring for those with #rareneuroimmunedisorders, like Amber, Alan, Becca, Abby, Francisco, & Ashley. Give today at buff.ly/47lQApU. #SRNA30Years #PowerOfCommunity

In this Community Spotlight episode of our Ask the Expert podcast, Kim Harrison joins SRNA's Lydia Dubose to share her journey with #transversemyelitis, adaptive sports, and challenges she has faced since her diagnosis. Listen to the full episode at buff.ly/3ZkpdL2.

Join us for an online support group meeting hosted by Emily, our Sibling Support Group Leader, in collaboration with the Guthy-Jackson Fdn! This group is for siblings 18+ years or older of individuals diagnosed with ADEM, AFM, MOGAD, NMOSD, ON, or TM. buff.ly/3YWjevD.

Introducing our Back-to-School Kit! 📚 ✏️ This helpful resource includes a list of common accommodations schools can offer, a simple guide about your diagnosis that can be shared with teachers, parents, or classmates, and more. Check out the full kit at buff.ly/4emyGp9.

Are you an adult with NMO in the USA? We are looking for you to complete a paid study on the social determinants of health & financial impact of NMO in the USA. Please see: 🇺🇸👉🧠rally.massgeneralbrigham.org/study/nmo The Sumaira Foundation Guthy-Jackson Fdn SRNA MGH Neurology NMOSD_HU Mass General Research Institute

Excited to share this new series we did with our friends at NeurologyLive®! The first four episodes are LIVE! Listen now at neurologylive.com/sap-partner/sr… #MOGAD #neurotwitter