NORD (@rarediseases) 's Twitter Profile
NORD

@rarediseases

National Organization for Rare Disorders (#NORD) is the voice of the #RareDisease community. Official US sponsor of #RareDiseaseDay.

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linkhttp://rarediseases.org calendar_today29-10-2009 18:24:33

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NORD
@rarediseases

22 days ago

Krissy Dilger of SRNA was joined by Dr. Shuvro Roy for a podcast episode on "The Role of Physicians and Patients in Legislative Advocacy." Dr. Roy talked about the importance of physicians engaging in legislative advocacy by sharing their practice stories and providing