FSHD UK founder Rajeshri Badiani recently made waves at the IRC with a captivating presentation - covering our history and her tireless endeavours to create UK clinical readiness. Her presentation elevated the profile of FSHD UK within the international research community.#FSHDUK

Happy World FSHD Day! Share and let everyone know! Lets unite to find a cure - and don't forget to go orange in solidarity #FSHDDay #FSHD #fyp #new #newpost #MD #FSHDUK #WorldFSHDDay #FSH #awareness #like #share #comment #follow

FSHD UK attended a conference with the World FSHD Alliance . Great day and a great turn out!. . #FSHD #FSHDUK #new #post #MD #WorldAlliance #research

Click here - fshdsociety.org/2023/06/30/pas… - to read International Research Congress blog, by Raj Badiani #research #FSHDUK #FSHD #MD #ClinicalTrials #new #share #like #follow

Living with a muscle-wasting or weakening condition in Northern Ireland? Join us for our info day on 5 October! Speakers include experts on neuromuscular services, physiotherapy, disability sports, and mindfulness in Northern Ireland. Register: shorturl.at/iqsL6

Fulcrum clinical trial update! . Click here to read more - ir.fulcrumtx.com/.../fulcrum-an…... . #clinicalTrials #clinicalTrial #fshd #md #fshduk #fyp #new #newpost

A personal thank you from the FSHD-UK team. #thanks #fshd # fshduk #uk #clinicaltrials #md #musculardystrophy

Introducing the FSHD UK Research Team #research #fshd #uk #md #musculardystrophy #clinicaltrials #fshduk

Amazing news update about the hard work we, and others have done for FSHD! . #FSHD #FSHDUK #clinicalTrials #MD #new #newpost #fyp #UK #help #share #like #follow . classic.clinicaltrials.gov/ct2/home

Click the links below to find out more about the two FSHD clinical trials in the UK MANOEUVRE - classic.clinicaltrials.gov/ct2/show/NCT05… Fulcrum - clinicaltrials.gov/study/NCT05397… #MD #clinicaltrials #FSHD #FSHDUK #muscularDystrophy #UK #new #newpost

Looking for an informative webinar this March? Look no further! . #webinar #MDUK #2024 #new #newpost #FSHDUK #fyp #web #MD #muscularDystrophy . Go to link in post, or click here to join - tinyurl.com/2zf6b689

FSHD UK supports #RareDiseaseDay . #FSHD #FSHDUK #clinicalTrials #MD #new #newpost #fyp #UK #help #share #like #follow #2023

FSHD UK is hosting its 3rd patient engagement day! Please join if you can, as the day will be very informative and fun! #MD #FSHDUK #FSHD #new #newpost #london #clinicaltrials #research #patient #info

These guys and everyone running for Muscular Dystrophy UK tomorrow are my absolute heroes!

Thank you for your interest in this event. We have now reached venue capacity. We will be organising patient engagement days in the future. Look out for information on these here and via our website (to be launched soon). #event #new #newpost #fshd #fshduk #group #md #london

Fantastic FSHD patient engagement day hosted by UCLH/FSHD UK! Informative and great audience participation. Thanks to everyone who attended! See you at the next one. #md #fshd #london #patientEngagement #clinicaltrials #fshduk

FSHD UK is delighted to share news about Avidity Biosciences Phase 1/2 FORTITUDE trial. Please read Avidity's full update letter here: twtr.to/U7mbL

Happy World FSHD day 2024! Let’s work together to find a cure. #FSHDDay #FSHD #MD #FSHDUK #WorldFSHDDay #awareness

FSHD swimmers - if you enjoy swimming and would like to take part in this study / project please contact the team on this flyer.

It has been three years since we launched FSHD UK, and today we are excited to announce the launch of our new website. Please visit fshdUK.com 🤩