EURORDIS-Rare Diseases Europe (@eurordis) 's Twitter Profile
EURORDIS-Rare Diseases Europe

@eurordis

An alliance of over 1,000 patient organisations working across borders and diseases to improve the lives of all people living with rare diseases.

ID: 26993786

linkhttp://www.eurordis.org calendar_today27-03-2009 12:29:29

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It is well acknowledged that a different approach is needed to evaluate new orphan medicines compared to standard medicines. But with limited published evidence available, how can we best support clinical decision making for rare disease patients? ➡️ go.eurordis.org/lsP6SB

It is well acknowledged that a different approach is needed to evaluate new orphan medicines compared to standard medicines. 

But with limited published evidence available, how can we best support clinical decision making for rare disease patients? ➡️ go.eurordis.org/lsP6SB