We're pleased to announce our new national MND Association Research Nurse Network - a £5 million investment to give more people with #MND access to clinical trials.

This 5 year investment will build a first-of-its-kind coordinated network of Research Nurses.

Full story below.

This will indeed be a milestone for those living with or affected by this most terrible of diseases. With the opportunities of emerging new treatments it is so important to help the wider population understand. Be there at the ad break then tell us what you think!

We are pleased to announce the appointment of a new Chair, to take affect at the end of May 2024.

Usman Awais Khan will begin a three-year term with SECAmb when current Chair, David Astley, steps down, as previously announced.

Read more here: secamb.nhs.uk/secamb-announc…

What Rob and Kevin have done to raise the profile of this most cruel of diseases and raise much needed funds to help beat it is beyond magnificent. This looks like Kevin’s toughest test to date and as Chair of the MND Association I wish him all the best!

At the Senate Building in Madrid and looking forward to presenting on #patientengagement at #ourbrainsourfuture event for @EU2023ES European Brain Council

Crucial for addressing health inequalities that we give time and space to looking at challenges of cancer prevention, diagnosis, treatment and care through the lens of gender.

The final #EHFG2023 plenary will consider the measures needed to ensure the ongoing sustainability and safeguarding of people-centred social security & welfare systems.

Join us from 13:45 👉 buff.ly/3LDInDH

With Sara Cerdas Yannis Natsis & more!

Gender a crucial issue in health workforce but don’t forget race and ethnicity. 80% of NHS doctors who died of Covid were Black or minority ethnic #ehfg2023

Back at #ehfg2023 - Europe’s Davos for health. Conference theme - Health Systems in Crisis sets a post Covid downbeat tone but engagement with colleagues suggests that all hope is not yet lost!

A big thanks for you support for my ⁦The Great North Run⁩ for ⁦MND Association⁩ today

Boarding the train from Kings Cross to Newcastle - Great North Run less than 24 hours away. Many thanks for all those contributions to MND Association - they make a real difference. Scan QR code to donate - thanks!

3 Takeaways from the fantastic #tippingpointconference

1. Digital is not an enabler it is THE enabler - embrace this
2. We have learnt to talk and share - let’s learn to listen and change
3. Wales is a Goldilocks country - be brave and sieze this opportunity

Bevan Commission

An important takeaway from Bevan-Commission #TheTippingPoint conference is that people are far happier to share - challenges and solutions - than they have ever been. This could be game changing!

Proud to be speaking at the Bevan-Commission #TippingPointConference with a call to action for Wales to become the most health literate country in Europe. lnkd.in/eDTMGriK

Fascinating discussion ⁦Institute of Contemporary Arts⁩ #choreographicdevices challenging us to not ‘snap to the grid’ - so use cash not cards, like things on-line you don’t like and generally confuse those algorithms!

Looking forward to speaking at the #Brain #Innovation Days, bringing together the brain community for 2 full days of high-level brain innovation! I will be facilitating a lnkd.in/enTeVavV session on ALS/MS which I think will…lnkd.in/eQGf2cN7 lnkd.in/ePZeaDEW

When you feel someone just catches the mood…

A fantastic achievement!

Kevin Sinfield carries Rob Burrow over the line at Leeds Marathon.

An emotional point during an inspirational dayThsnks to those who ran, fund raised and supported Motor Neurone Disease (MND) Association lnkd.in/e9vjG-BH

Up here with the mnd team and the atmosphere is just amazing. Very best of luck to all the fantastic runners today #RobBurrowMarathon