Dr. Avik Roy & co-authors examine orthostatic imbalance in people w/ #MECFS using an interesting new experimental model to dissect the metabolic missteps responsible for this effect. Read our summary of the Solve-funded study: ow.ly/PNCN50T85pk #MEAwarenessHour

📢 New Video! Prof. Dr. Georg Schomerus (Georg Schomerus) delves into the stigma of #LongCOVID and #MECFS, exploring the effects of psychologization and the need for better support and awareness. Watch his insightful talk from #UniteToFight2024 now! 📽️ youtu.be/xx8rV2YeIj8

#NotJustFatigue is proud to join the chorus of federal legislators, expert researchers, and individuals around the country in calling on NIH to address federal funding for #MECFS, including incorporating #MECFS into the RECOVER Initiative

(California, USA) "Santa Clara County holds special hearing on long COVID and chronic fatigue syndrome: Local health experts discuss causes, symptoms and best practices for treating debilitating illnesses" paloaltoonline.com/health/2024/09… #MEcfs #CFS #PwME #LongCovid 1/

Bateman Horne Center Melanie Hoppers Supriya Narasimhan 2/ "Panelists and commenters also described the irreversible harm that could occur when health practitioners push ME/CFS patients to exert themselves. (contd)" #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

Bateman Horne Center Melanie Hoppers Supriya Narasimhan 3/ "(Contd) For Enander, a six-minute walk test, that she quit after five minutes, put her flat on her back for two months, she said, noting that more training needs to be provided for physical therapists working with ME/CFS patients." #MEcfs #CFS #PwME #MyalgicE #CFSME #MEeps

Bateman Horne Center Melanie Hoppers Supriya Narasimhan 4/ Disappointing section: "At Santa Clara Valley Healthcare, doctors also use a variety of strategies to help patients manage ME/CFS, Narasimhan said. This includes “pacing,” which is the gradual increase of physical and mental activity to avoid post-exertional malaise. (contd)"

Bateman Horne Center Melanie Hoppers Supriya Narasimhan 5/ "(Contd) Other treatment strategies include pain and sleep management, cognitive behavioral therapy, nutritional support and techniques to improve blood circulation." Though some professionals call this pacing, patients will tend to call it graded exercise/activity

We tallied up some numbers from our Teach ME, Treat ME campaign to educate clinicians and medical students about ME, and the results are fantastic! Our impact continues & the campaign is ongoing! Full update here: meaction.net/2024/09/04/tea… #TeachMETreatME #PwME #MECFS

Read our Solve Science Spotlight summary of the JAMA study of #MECFS onset which compares risks after #COVID vs. other illnesses. #MEAwareness #MEAwarenessHour ow.ly/NHNL50TfRqe

🎉 We're thrilled by the amazing interest in our upcoming hybrid event on September 19th at LSHTM! To join us, please register by clicking the link: forms.office.com/e/HY35YL4u8a or scan the QR code below. We can’t wait to meet you, share our latest research, and answer your questions!

Discriminatory biomarkers Galectin-9 and Artemin in Long COVID with chronic fatigue syndrome: Correlation with inflammatory and cognitive markers frontiersin.org/journals/immun… #LongCovid #MEcfs #CFS #PwME

1) New blog post on 'catastrophizing' and why this concept risks blaming patients by mislabeling their symptoms as exaggerated negative thoughts. mecfsskeptic.com/catastrophizin…

🧵 "The Faulty Battery Clause" A published Irish writer with ME writes eloquently about her first year dealing with ME (she's ill over a decade now) solongasicanbreathe.wordpress.com/2024/08/26/the… #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME 1/

Tom Kindlon I'm so grateful for this honest and insightful piece on living with ME. It's a must-read for anyone who wants to understand the daily struggles and triumphs of someone with this condition.

2/ “I didn’t go about my day boxing & hitting #MyalgicEncephalomyelitis, to do so would have been wasting precious energy. Instead, I danced around her, pacing myself, doing what I could. Attempting to be clever – the way in which a farmer tactically approaches a tumultuous bull”

3/ “That said, everything I did took energy. Washing my teeth, energy. Dressing, energy. And there was no bank to run to asking for a loan. No friend with a basket of extras.” #MyalgicE #CFSME #MEeps #CFIDS

Join us for special screening of ‘Dialogues of a Neglected Illness’ with M.E. Expert Dr. William Weir Q&A pls share #MyalgicEncephalomyelitis #LongCovid Southern Trust Belfast Trust Western Trust Northern Trust South Eastern Trust Northern Ireland Assembly Committee for Health Mike Nesbitt eventbrite.co.uk/e/dialogues-of… @Eventbrite

One of the authors of this article is David Tuller, DrPH davidtuller . We have arranged for him to give a free, 6-venue talking tour (Bray/Cork/Dublin/Galway/Limerick/Sligo) around Ireland in October. For more details see irishmecfs.org/blog/oct-2024-… #LongCovid #PwLC

See you next month!