Our new report reveals that the vast majority of the ME/CFS community have fallen through the cracks and are not being taken seriously by the health and social care system. Read the report here: ow.ly/lXTM50OznJ4 #TakeMEseriously #pwME #MECFS

🚨 ANNOUNCEMENT 🚨 We have been sitting on this quietly but we have been shortlisted for the 2024 nature Inclusive Health Research Awards! Our #Longcovid research has been selected for raising awareness of the lived experience and furthering the mechanistic basis of LC.

🚨 Answer by Andrew Gwynne MP to question on #LongCovid care includes: “These services assess people with long COVID & direct them into care pathways which provide appropriate support & treatment” #LongCovid community: What treatment have you had from the NHS? questions-statements.parliament.uk/written-questi…

Happy to share that Safeairschools.org is born 🥳 Certainly feels like it! Late nights, worn out, financial drain… Proud of us though 🤍 Ruth Brooker Schools should be safe havens & places to learn. They still can be. Shiny new site here 👉🏿 SafeAirSchools.org

We have a N.I. MP interested in joining Westminster #MyalgicEncephalomyelitis APPG to represent the estimated 7500+ patients without specialist services. Action for M.E. ME Association please advise. appgme.co.uk/who-we-are/

Jamie Taylor Yet again I am humbled. I also need a new frock 😀💃🏻 seriously, this is how we keep up the profile of long Covid. By showing that it is worth treating, that long Covid and ME/CFS patients deserve medical care & recognising the importance of leading the way to change.

“Dear Doctors” written by Jes Gordon and performed by MEAction GA. #MEAction Georgia created this powerful video and they also have a #TeachMETreatME event coming up Sept.18 at 4 pm ET. The target is nursing students and medical professionals but all are welcome! Spread the word!

chng.it/7XNLxZ5N8j

Info below is from DP May 2022. NHS England when are you going to remove "extreme tiredness" from your webpage definition of #ME please? #ThereForME ME Association Action for M.E. gov.uk/government/con…

#pwme #pwlc #MECFS

This is the second APPG I've seen posting their election of officers... great to see... I'm just wondering when the APPG for #ME is likely to be reformed? Action for M.E. ME Association Any updates likely soon? 🙏

Hiring from the patient community Amatica Health is looking to hire a member of the patient community (ME/CFS, Long COVID or vaccine injured) to a part time, fully remote role. £15/hour We hope to be hiring more members of the community over time

That would be very helpful wouldn’t it! #SevereME EndMalnutritioninME Action for M.E. ME Association ME Foggy Dog #ThereForME

Today, thirty years ago. The Western Daily Press, England. 14th September 1994. #myalgice #myalgicencephalomyelitis #cfsme #mecfs

I recently learnt that an old #banana 🍌 would attract more #butterflies 🦋. There are fancy hanging 🍌 options. Mine is the shove it on a plant pot option and it works just fine! This has massively increased the numbers of 🦋. #Joy RSPB Weymouth Wetlands RHS Campaign for School Gardening #LongCovidLife

Nico Macdonald Mary Warner Beard Simon Schama David Olusoga skip to the last 10 mins to hear... David Olusoga and his eldest sibling, Yinka Olusoga, discuss their book: 366 days of Black History, illustrated by their sibling, Kemi Olusoga. It's a family affair... bbc.co.uk/programmes/m00…

Join us at the Quadram Institute heritage open day. Come to our exhibition to learn about our #MECFS research

Off to an important family gathering today. This is the me they’ll see… Rather than the #ME they won’t see. Have a decent day all. I’ll see you in the #PEM chamber later ❤️‍🩹

northyorks.gov.uk/news/2024/supp…

Alina MSN, RN, CCRC Letter from the Workwell foundation on the science involved in not exercising if you have MECFS: workwellfoundation.org/wp-content/upl… This is by the United States MECFS Clinician Coalition: mayoclinicproceedings.org/article/S0025-…